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        New Message Board Archives >> 2006 General Board Posts >> The Respite has ended
        
(Message started by: roy21302 on Sep 25^th, 2006, 12:50pm)

Title: The Respite has ended
Post by roy21302 on Sep 25^th, 2006, 12:50pm

Hi Folks,
Some of you may know I been trying topamax, since the 2nd August, well I started low on only 12.5mg am and pm and gradually built up to 50mg am 50mg pm. I thought they were doing me some good as I seemed to be getting some PF time with them, then a couple of weeks ago I started to get a rash real bad, now that is really bad, Doc reckons the Topo is causing it, and to cap it all the CH is back BIG time, I been getting hit 3-4 time a night the last few nights and all at kip 9-10. A couple of time even the Imigran inj have not touched it, I am not getting any sleep, thus feel like crap, and don't have very high opinion of dopeymax, suppose it will take weeks to get off the damn stuff now. Make you wonder if it is worth pissing about with all these different pills. Over the last 30 years I must have tried everything shown over on the left, the only thing that usually gets rid of the pain for me is the IMi inj, ice packs and sitting it out. I hate this bloody thing sorry to go on Cheers Roy :-[ PS Any one got a gun???ha ha

Title: Re: The Respite has ended
Post by Yorky on Sep 25^th, 2006, 1:04pm

very sorry to hear this roy..i know you had hopes with topmax...thinking of you buddy.

Title: Re: The Respite has ended
Post by Sean_C on Sep 25^th, 2006, 1:10pm

Hang tough Roy, always remember just because a preventative didn't work the first ime, doesn't mean it won't work the next. I'm hoping you get some relief soon. Do you use o2?

Keep the faith,

Sean...............................

Title: Re: The Respite has ended
Post by TxBasslady on Sep 25^th, 2006, 2:56pm

Lots of pf vibes for you, Roy. :-*

I know it's tough....but hang in there and for sure better days are coming, sweetie.

Jean

Title: Re: The Respite has ended
Post by Richr8 on Sep 25^th, 2006, 3:10pm

on 09/25/06 at 12:50:08, roy21302 wrote:

I am not getting any sleep, thus feel like crap

This is a big problem for me as well. Last year the folks on this site intoduced me to Melatonin and it helped me get a little more sleep. I would take 6-9 mg before bed and was able to get between 4-6 hours sleep. You might give that a shot. Also, I would like to repeat, if you do not have Oxygen, get it! You atleast need to know if it works for you because it provides lots of relief for many of us.

Title: Re: The Respite has ended
Post by ShariRae on Sep 25^th, 2006, 10:16pm

Have you tired Verapamil? Works for a lot of folks :)

Much Love
Shari

Title: Re: The Respite has ended
Post by alchemy on Sep 25^th, 2006, 10:17pm

Hang tough Roy there's alot of help here for you

Title: Re: The Respite has ended
Post by Fredmyyster on Sep 25^th, 2006, 10:31pm

Roy, Fioricet worked for me..... give it a try, what the hell.... good luck bro ....

Title: Re: The Respite has ended
Post by roy21302 on Sep 26^th, 2006, 9:44am

Thanks for your replies, I already take verapamil and O2 does not work for me, I have tried it a couple of times now I wish it did. I still feel dreadful, got the most awful shadow today had 4 hits last night, but only about 4 or 5's so see how it goes now Cheers Roy :-[

Title: Re: The Respite has ended
Post by Charlie on Sep 26^th, 2006, 3:49pm

Damn. Sorry you're having such a time. Topamax is a weird thing. Used it for my seizures for awhile.

That rash is a sign that it's time to get some help. Big side-effect warning, they say. I think your doc is right.

Charlie

Title: Re: The Respite has ended
Post by LeLimey on Sep 26^th, 2006, 4:02pm

Hi Roy, when are you back to see Dr Bahra? We need to get you some relief hon. How is Shirley doing? She must be devastated for you too. You know where I am, I'm only at the end of a phone and I'll come and see you if you like :) There! If that don't scare you silly nothing will! [smiley=hug.gif]

Title: Re: The Respite has ended
Post by roy21302 on Sep 27^th, 2006, 11:53am

Thanks for the replies, Charle I sent you a message hope you don't mind, Helen I'll be in touch, I am waiting for Dr Bahra to phone me back I spoke to some one at the HA group at QS this morning. Things seem a whisper easier today shadow only slight Cheers Roy :-[

Title: Re: The Respite has ended
Post by rickyshot on Sep 27^th, 2006, 6:53pm

Sorry to hear it Roy. I find that this thing gets used to meds and you have to cycle meds. I am immune to all meds except DHE, prednisone and of course busting. Red bulls help my shadows. Have you tried that.