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        New Message Board Archives >> 2006 General Board Posts >> Skilly is back, anyone here now that was here then
        
(Message started by: lskilly on Sep 20^th, 2006, 7:23pm)

Title: Skilly is back, anyone here now that was here then
Post by lskilly on Sep 20^th, 2006, 7:23pm

Just thought I would see if anyone has a long memory. I was here last 8 years ago. My memory is so poor I cant think of the name of anone who was here then.

Title: Re: Skilly is back, anyone here now that was here
Post by JenniferD on Sep 20^th, 2006, 7:35pm

Well then, its time to reintroduce yourself. Hi skilly. :) Nice to meet you. We've kept the light on.

Jen

Title: Re: Skilly is back, anyone here now that was here
Post by brewcrew on Sep 20^th, 2006, 9:57pm

Pleased to meet you, Skilly. Welcome back. Unlike you, I was not here 8 years ago. This place must have just started back then.

Regards,

Bill

Title: Skilly is back
Post by cootie on Sep 20^th, 2006, 11:45pm

Has this site been here 'that long' ? My how time 'fries' Pam

Title: Re: Skilly is back, anyone here now that was here
Post by Charlie on Sep 21^st, 2006, 7:43pm

http://www.netsync.net/users/charlies/gifs/blackboard wb.gif I've been here just about 6 years so we haven't met.
Hope you stick around and reintroduce yourself.

Charlie

Title: Re: Skilly is back, anyone here now that was here
Post by lskilly on Sep 27^th, 2006, 7:35pm

Yep it was here 8 years ago. Just a fledgling site but I see it has blossomed. Hard to believe there are so many of us. I am 66 now and glad to say hello again to those who can understand when I say it hurts. I live in Western Washington and looking at the map I see there are not to many of us here.

I used to chat with one guy from Oregon and a lady from PA be cant remember their names.

Currently I am back in Biofeedback to control the pain. Aslo have Zomig on hand in case I cant abort the cluster.
I was able to control the cluster and got confident. Didnt keep doing the biofeedback work thought man I have these whipped. That was dumb.

Title: Re: Skilly is back, anyone here now that was here
Post by Jonny on Sep 27^th, 2006, 7:43pm

Check the archives from the old board, as you can see this is a whole new set up.

Welcome back!

Title: Re: Skilly is back, anyone here now that was here
Post by lskilly on Sep 27^th, 2006, 7:48pm

Thanks I didnt think of the archives.

Oh there is one other thing I am doing allot of this time. Praying. Maybe this run of clusters is a good thing for me. they have brought me back to God.

Skilly

Title: Re: Skilly is back, anyone here now that was here
Post by Ree on Sep 27^th, 2006, 8:28pm

Skilly they have a way of bringing you to your knees... Nice to have you back sorry you are suffering.... be well
Ree

Title: Re: Skilly is back, anyone here now that was here
Post by ShariRae on Sep 27^th, 2006, 11:40pm

Welcome Home Skilly..sorry ya had to find your way back though :(

Much Love
Shari

Title: Re: Skilly is back, anyone here now that was here
Post by Karla on Sep 27^th, 2006, 11:43pm

WB Skilly. I remember you! You will have to research the board to see your old post and your interactions. Glad you have been doing well.

Title: Re: Skilly is back, anyone here now that was here
Post by lskilly on Oct 1^st, 2006, 1:08pm

Hi Carla

Nice to say hello. Hard to believe so many suffer with the same pain and still not an answer. when I went to my doc he looked through my files and said they tried everything before and thats all thats' available other than the Zomig and the nasal spay imitrex that was justcoming out then.

The support of the board then and now is great. Just commuicating with others that can understand is heartning. I am still mostly in the one a night phase but am having a few at odd times during the day. Tried to come here during an attack but cant stand to try and read. I am progressing with the self hypnosis and am able to go deeper into the trance to block the pain. It's still takeing me 30 minutes or so to get to that level but when I finnaly get there I can ease the pain.

Title: Re: Skilly is back, anyone here now that was here
Post by Yorky on Oct 1^st, 2006, 1:25pm

on 09/27/06 at 20:28:30, Ree wrote:

Skilly they have a way of bringing you to your knees... Nice to have you back sorry you are suffering.... be well
Ree

hi skilly...try to keep off your knee's at your age. ;).sorry you needed to come back..since you were born in 1940..when did your ha's start, how long before you were diagnosed, what medication have you tried.....and what are you on now? good luck buddy.

Title: Re: Skilly is back, anyone here now that was here
Post by DonnaHar on Oct 1^st, 2006, 3:36pm

I joined in mid 1999, so we must know some of the same people......thing is, those who left come back with new names which I don't recognize. Is yours the same now as it was then?

Those of us in our '60's didn't have any meds to use on CH. Later, Sansert came out for Horner's Syndrome which many of us were diagnosed with, but that didn't work on me and I heard such bad things about it later that I was glad it didn't work. I stopped having CH's in 1986 and was never treated for cluster headaches, but found this site when my son was in a bad cycle. He found relief with Prednisone.

Like others say, sorry you had to look for us again, but glad you found us.

Welcome home.

Title: Re: Skilly is back, anyone here now that was here
Post by Karla on Oct 1^st, 2006, 3:54pm

The nasal spray is something you are going to want to try! It works and takes away the ha as fast as a shot without the needles. In 6-15 min. the pain is gone. That beats an hr effect for the imitrex pill. Good luck!

Title: Re: Skilly is back, anyone here now that was here
Post by Linda_Howell on Oct 1^st, 2006, 4:12pm

Quote:

My memory is so poor I cant think of the name of anone who was here then.

I was. ;;D

Title: Re: Skilly is back, anyone here now that was here
Post by lskilly on Oct 3^rd, 2006, 8:59pm

Hi Lina and agian to everyone. Hope you are all doing well.

I do spend more time on my knees this time. Be surprised at the things I find while I am down there. a couple of Flies I had tied, really hard candy. No money yet but I am hoping, Oh and God. He seems to be helping allot. Anyway I sure am keeping him busy talking to him.
Someone wrote that these go away at 70,,, good I only have 3 1/2 more years to go!!!!

Title: Re: Skilly is back, anyone here now that was here
Post by lskilly on Oct 4^th, 2006, 8:36pm

Yes I think the name is the same. It might of been just Skilly back then.