Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006 General Board Posts >> One month ago today....
        
(Message started by: brewcrew on Sep 20^th, 2006, 12:07pm)

Title: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 12:07pm

...I had my last hit. I started taking my prescribed Sansert, and after two days of some really disgusting side-effects, I have been hit-free!

I have a call into my neuro's office because he told me to call him once I had been hit-free for one month. We will discuss which of the three preventatives I will start tapering off of.

There are little tears of joy welling up in my eyes as I type this. First time since mid-January. Best thing about it - sleeping through the night.

Just wanted to share a bit of my happy heart today.

Bill

Title: Re: One month ago today....
Post by nani on Sep 20^th, 2006, 12:10pm

http://forums.offtopic.com/images/smilies/hsdance.gif?SSImageQuality=Full

YAY!!!!!!!

http://bestsmileys.com/hugging/2.gif

Title: Re: One month ago today....
Post by Paul98 on Sep 20^th, 2006, 12:14pm

Glad to hear it Bill. Next up-two months PF! :)

-P.

Title: Re: One month ago today....
Post by JenniferD on Sep 20^th, 2006, 12:35pm

[smiley=hug.gif] yay! I'm happy for ya brew!

Jen

Title: Re: One month ago today....
Post by JeffB on Sep 20^th, 2006, 12:38pm

Bitchin, dude! [smiley=thumb.gif]

Title: Re: One month ago today....
Post by JDH on Sep 20^th, 2006, 12:56pm

Fuckeneh!!!
Welcome back to pf living.

Jim

Title: Re: One month ago today....
Post by pattik on Sep 20^th, 2006, 1:00pm

Fantastic news, Bill. And keep us posted. ;;D

Title: Re: One month ago today....
Post by BMoneeTheMoneeMan on Sep 20^th, 2006, 1:21pm

Thats awesome!!!

Title: Re: One month ago today....
Post by Richr8 on Sep 20^th, 2006, 1:26pm

Great to hear Bill. Atleast for episodics, it's the one thing we have, that is, knowing that PF time is somewhere ahead.

Title: Re: One month ago today....
Post by TxBasslady on Sep 20^th, 2006, 2:23pm

PF is always good news for the Brewcrewster Clan.. ;;D..and even better news for the rest of the family.

http://www.cybergifs.com/faces/dancing.gif

http://www.cybergifs.com/faces/iluvyousmiley.gif
Jean

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 2:52pm

on 09/20/06 at 14:23:35, TxBasslady wrote:

What the hell are those, Jean? Dancing marshmallows? Maybe fondue pots? Doesn't matter - they made me smile. ;;D

Seriously, thanks everybody for the kind words and wishes. I'm more and more convinced that it's not the pain of each individual hit that weakens us - it's the constant battle, the lack of sleep, and the demoralization that takes the most expensive toll. When any of us gets a break, a time to recharge the batteries, it's time for us all to rejoice.

I'll keep all y'all posted on how it goes.

(that "all y'all" stuff is for Jean and anyone else from south of the Mason-Dixon line)

Bill

Title: Re: One month ago today....
Post by Carl_D on Sep 20^th, 2006, 4:02pm

Now that is something to dance about.

http://i51.photobucket.com/albums/f359/Mack420Danger/FarleyChippendale.gif

Hope you stay PF Brewski,
Carl

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 4:24pm

on 09/20/06 at 16:02:23, Carl_D wrote:

Now that is something to dance about.

http://i51.photobucket.com/albums/f359/Mack420Danger/FarleyChippendale.gif

Hope you stay PF Brewski,
Carl

OMG - Chris Farley as Barney, the Chippendale dancer. One of my favorite SNL skits of all time.

Short story - I took a day off two years ago and asked my then 12-year-old son what he wanted to do for the day. He said, "Let's go to Madison and find Chris Farley's grave." We did, and we found it. Both of us standing there in silent awe, so many SNL reels playing in our heads. It was one of those father/son moments not to be forgotten.

Thanks for the kind words, and for the memories, Carl.

Title: Re: One month ago today....
Post by tanner on Sep 20^th, 2006, 4:30pm

Great news Brew :D

Every victory counts a lot and gives the rest of us hope!

Now keep up the good work......Tim

Title: Re: One month ago today....
Post by sandie99 on Sep 20^th, 2006, 4:51pm

FANTASTIC!!!!!!!!!!!!!! ;;D ;;D ;;D
May there be lots of PF months in your future, following this one! :)

Best wishes,
Sanna

Title: Re: One month ago today....
Post by Charlie on Sep 20^th, 2006, 7:12pm

http://www.kolobok.wrg.ru/smiles/standart/yahoo.gif?SSImageQuality=Full http://forums.offtopic.com/images/smilies/hsdance.gif?SSImageQuality=Full http://home.arcor.de/jbseite/icon_slide.gif?SSImageQuality=Full

Charlie

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 7:39pm

Update #1 - Talked to my neuro's nurse this afternoon, and the first step I get to take is to cut my verapamil dosage from 480 mg/day to 240 mg/day for one month. If still h/a free, cut the verapamil altogether. One bridge at a time.

You guys are the best.

Title: Re: One month ago today....
Post by Mr. Happy on Sep 20^th, 2006, 7:40pm

Hey, Brew......what'd ya have to go thru to "Score the Goods," as it were, since it's out of production in the US?
(You may have explained this elsewhere, but I have the attention span of a gnat.)

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 8:20pm

on 09/20/06 at 19:40:10, Mr. Happy wrote:

Hey, Brew......what'd ya have to go thru to "Score the Goods," as it were, since it's out of production in the US?
(You may have explained this elsewhere, but I have the attention span of a gnat.)

Well, you and I are cut from the same cloth, my friend. I did discuss it elsewhere, but I haven't got a clue where. ;;D

I scored the first month's worth at the following:

http://www.pharmawebcanada.com/

Then I found out that my insurance company (Cigna) has its own in-house compounding pharmacy (Tel-Drug). I paid $124 for the first month's supply (of which Cigna will pay half since it's an out-of-network pharmacy). When I go through Tel-Drug, they make it up themselves and charge me $75 for a 3-month supply.

There are compounding pharmacies all over the place - that may be the route you need to go. It'll come with its generic name attached: methysergide maleate. If this doesn't work for you, Canada is still an option. Good luck, and feel free to PM me if you need more info.

Title: Re: One month ago today....
Post by Jonny on Sep 20^th, 2006, 8:24pm

on 09/20/06 at 20:20:49, brewcrew wrote:

There are compounding pharmacies all over the place

When they stopped making what worked for me....NancyC searched the net and found a place by me that compounded what I needed.

Thanks again, Nanc :-*

Title: Re: One month ago today....
Post by Mr. Happy on Sep 20^th, 2006, 8:34pm

on 09/20/06 at 12:07:48, brewcrew wrote:

two days of some really disgusting side-effects

Shit.
I meant to ask you what they were first time around.

Shit.
Hap

Title: Re: One month ago today....
Post by jimmers on Sep 20^th, 2006, 8:43pm

Glad your feeling better Brew! Now take me to lunch ya cheap bastard! ;;D

Seeya

Jimmers

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 8:46pm

on 09/20/06 at 20:34:56, Mr. Happy wrote:

Shit.
I meant to ask you what they were first time around.

Shit.
Hap

I told you, we're cut from the same cloth. You nailed both of them!

Wait - It was shit and puke. And visual auras (not so disgusting - actually kinda fun). And jaw clenching.

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 8:51pm

on 09/20/06 at 20:43:23, jimmers wrote:

Glad your feeling better Brew! Now take me to lunch ya cheap bastard! ;;D

Seeya

Jimmers

Yeah, yeah, yeah. As soon as I find out what my travel plans are for next week, I'll give you a call. Should know something tomorrow or Friday. You have to figure out where we're going, though. Think about what time and where and I'll be all over it.

And thanks for your kind words.

Title: Re: One month ago today....
Post by Grandma_Sweet_Boy on Sep 20^th, 2006, 8:57pm

That's great news Bill. Glad to hear it's all starting to settle down for you again.

Hugs from "your partner in Orange" ;)

Carol

Title: Re: One month ago today....
Post by georgej on Sep 20^th, 2006, 9:44pm

Great to hear, Bill. Glad you're back in the land of the painfree. Good to hear that Sansert did the deed for you.

And jeez--no more hospital stays, okay? You scared hell out of us about a month ago.

Best always,

George

Title: Re: One month ago today....
Post by brewcrew on Sep 20^th, 2006, 9:50pm

on 09/20/06 at 21:44:32, georgej wrote:

And jeez--no more hospital stays, okay? You scared hell out of us about a month ago.

Thanks, George. I'm gonna try like hell to stay out of that place. It was the second time for me, and I will not take a third called strike. I'm going down swinging from now on. 8)