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New Message Board Archives >> 2006 General Board Posts >> Is this person one of us
(Message started by: Opus on Sep 14th, 2006, 9:33pm)

Title: Is this person one of us
Post by Opus on Sep 14th, 2006, 9:33pm

I just found this blog (http://www.mkanderson.com/portal/index.php?name=News&file=article&sid=242)


If this person is already a member here I apologize.

If they are not then I will try to contact them about CH.com, O2 and splitting trex shots.

Paul

Title: Re: Is this person one of us
Post by Jonny on Sep 14th, 2006, 9:41pm
Whoever it is, Paul....hes one hell of a writer!!!!

Title: Re: Is this person one of us
Post by Grandma_Sweet_Boy on Sep 14th, 2006, 9:44pm
Nice catch Paul - the writing style is different from most of our good folks here so who knows, perhaps you will find a new person and bring them here.

I agree with Jonny - the writing style is sure something.  Well thought out and very well put together.

Let us know, okay?

Carol

Title: Re: Is this person one of us
Post by georgej on Sep 14th, 2006, 9:44pm

on 09/14/06 at 21:33:11, Opus wrote:
I just found this blog (http://www.mkanderson.com/portal/index.php?name=News&file=article&sid=242)


If this person is already a member here I apologize.

If they are not then I will try to contact them about CH.com, O2 and splitting trex shots.

Paul


Don't know if he is or not, but he's seen us.  There's a link to clusterheadaches.com in the text of his original post.  (Marked in red.)

Best,

George

Title: Re: Is this person one of us
Post by BMoneeTheMoneeMan on Sep 14th, 2006, 9:46pm
please do, man.  
Sounds like this chap could use a little help.
I betcha it's Burt
;)
[smiley=laugh.gif]

Title: Re: Is this person one of us
Post by Ree on Sep 14th, 2006, 9:48pm
we have MR..... don't know about MK... ree

Title: Re: Is this person one of us
Post by Charlie on Sep 15th, 2006, 2:02am
Hell of a blogger anyway.

Interesting character and I have to hope that he's full of shit and doesn't have them.

From his writing though, he does. Rats.

Charlie

Title: Re: Is this person one of us
Post by JenniferD on Sep 15th, 2006, 8:50am
Hope he doesn't think he's dealing with this alone.

Title: Re: Is this person one of us
Post by chewy on Sep 15th, 2006, 9:08am
Nov 15, 2005 - 10:00 AM

Was written almost a year ago. Still can't hurt to shoot him an email.

Title: Re: Is this person one of us
Post by Carl_D on Sep 15th, 2006, 2:48pm
Very interesting note here...

One person to respond to his blog is named 'euphoricdream'

This same user-name posted 4 clips from the movie "Pi" on Youtube.com. I found those 4 clips when I did a search for clusters on youtube.

I am going to try and locate my youtube user info since I never really logged in to do anything and contact this 'euphoricdream' and see if he is one of us. Couldn't hurt.

Carl

Title: Re: Is this person one of us
Post by Tiannia on Sep 15th, 2006, 3:18pm

on 09/15/06 at 14:48:08, Carl_D wrote:
Very interesting note here...

One person to respond to his blog is named 'euphoricdream'

This same user-name posted 4 clips from the movie "Pi" on Youtube.com. I found those 4 clips when I did a search for clusters on youtube.

I am going to try and locate my youtube user info since I never really logged in to do anything and contact this 'euphoricdream' and see if he is one of us. Couldn't hurt.

Carl


I caught that too Carl. This other person states that they have them as well. Might want to try and get ahold of nboth of them

Title: Re: Is this person one of us
Post by purpleydog on Sep 15th, 2006, 6:39pm
I wonder if this person has already been here, and been chased off because as a newbie, he was told he didn't have CH? Sounds like he has experience with meds. But was told he didn't know what he was talking about as a newbie. Would be a good question to ask him, Paul.

Title: Re: Is this person one of us
Post by georgej on Sep 15th, 2006, 11:11pm

on 09/15/06 at 18:39:36, purpleydog wrote:
I wonder if this person has already been here, and been chased off because as a newbie, he was told he didn't have CH? Sounds like he has experience with meds. But was told he didn't know what he was talking about as a newbie. Would be a good question to ask him, Paul.


I doubt he'd have given us a link if he had a beef.  Just my 2 cents.  Could be he's just not a joiner.  

George

Title: Re: Is this person one of us
Post by chewy on Sep 16th, 2006, 7:03am

Quote:
But was told he didn't know what he was talking about as a newbie.


How do you get that impression from that blog?

Title: Re: Is this person one of us
Post by Kevin_M on Sep 16th, 2006, 7:36am

on 09/15/06 at 18:39:36, purpleydog wrote:
I wonder if this person has already been here,


The first two years I came and visited were only while in cycle and a month after, then left because of other things, I got involved only gradually.  Many, many don't stay after a first visit but know where to go when needed.  After coming back a few times, I hung out.  

It looks much more likely he may have gotten some advice or info here possibly, but as of the time of the blog, was still unaware of the Imitrex tip.


Quote:
I'm going to get back to writing this week as the other treatments have made things bearable. I'm on Prednisone and Verapamil,


If he is episodic, he may return on his own again.

Title: Re: Is this person one of us
Post by Opus on Sep 16th, 2006, 7:09pm
Thanks all,

I still don't see the link, but I will join and try to contact him. Even if it is only a comment to his blog, which he posted to 9/8, it might help him on his next cycle.


Paul

Title: Re: Is this person one of us
Post by Jonny on Sep 20th, 2006, 4:01pm

on 09/15/06 at 14:48:08, Carl_D wrote:
Very interesting note here...

One person to respond to his blog is named 'euphoricdream'

This same user-name posted 4 clips from the movie "Pi" on Youtube.com. I found those 4 clips when I did a search for clusters on youtube.

I am going to try and locate my youtube user info since I never really logged in to do anything and contact this 'euphoricdream' and see if he is one of us. Couldn't hurt.

Carl


Mystery solved ;;D

"euphoricdream wrote:

> Sure do. Episodic. I actually uploaded these videos so I could out them on clusterheadaches.com awhile back. My handle on ch.com is "dissident".

We know this dude  8)

Title: Re: Is this person one of us
Post by Carl_D on Sep 20th, 2006, 4:06pm

on 09/20/06 at 16:01:50, Jonny wrote:
Mystery solved ;;D

"euphoricdream wrote:

> Sure do. Episodic. I actually uploaded these videos so I could out them on clusterheadaches.com awhile back. My handle on ch.com is "dissident".

We know this dude  8)



Ah-Ha! I'm friends with that dude on myspace!

Cool Beanie

Title: Re: Is this person one of us
Post by Jonny on Sep 20th, 2006, 4:09pm
I saw your post and had to go looking for this dude, Carl.....I spend hours on Youtube....LMAO ;;D

Title: Re: Is this person one of us
Post by Carl_D on Sep 20th, 2006, 4:11pm

on 09/20/06 at 16:09:59, Jonny wrote:
I saw your post and had to go looking for this dude, Carl.....I spend hours on Youtube....LMAO ;;D


The thing is addictive. You can find just about anything on Youtube. Great for checking out old videos and band clips and... other things, lol.



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