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Title: Headache Thinking... Post by Jonny on Sep 4th, 2006, 7:20pm We can talk HA's here folks ;) |
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Title: Re: Headache Thinking... Post by vig on Sep 4th, 2006, 7:23pm I haven't had a headaCHe in 3 months. ;;D |
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Title: Re: Headache Thinking... Post by Jonny on Sep 4th, 2006, 7:23pm Good for you, Bro.....same here |
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Title: Re: Headache Thinking... Post by alchemy on Sep 4th, 2006, 7:31pm I would like one day off from ch's. Right now just one day would be the treat of a lifetime |
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Title: Re: Headache Thinking... Post by tanner on Sep 4th, 2006, 7:34pm Havin em every day Bro, and they are as bad as I have ever had,.....but in the larger scope of life i have had some huge weights lifted off my shoulders, I have friends like you and, I am going to deal with whatever shit gets teown my way. i feel and hurt for every horrible thing that happens in this family of ours, but i will reach out for help and I will reach out to help, and I will not take part in any of the BS crap that divides and hurts us as a whole. happy b-day again....Tim |
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Title: Re: Headache Thinking... Post by Jonny on Sep 4th, 2006, 7:34pm on 09/04/06 at 19:31:25, alchemy wrote:
Sorry, Bro....I know what you go through and wish I could change it :'( |
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Title: Re: Headache Thinking... Post by pattik on Sep 4th, 2006, 7:40pm on 09/04/06 at 19:34:28, tanner wrote:
Sorry you're hurting, Tim.:( My latest cycle ended in May, although I was randomly hit a few days ago. The good news is that my first try at alternatives worked like a charm to abort it ;;D Patti |
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Title: Re: Headache Thinking... Post by Jonny on Sep 4th, 2006, 7:47pm Thanks Tim....things will get better, Bro.....they have too!! |
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Title: Re: Headache Thinking... Post by chewy on Sep 4th, 2006, 7:48pm How about we set some ground rules. LMAO! |
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Title: Re: Headache Thinking... Post by Melissa on Sep 4th, 2006, 7:51pm Ever since I received my Taurine supplements in the mail, the 1 pill a day I've been taking has made my "fleas" disappear!! :D Coincidence or not, I don't care, I'm just happy my head is behaving. ;;Dmel |
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Title: Re: Headache Thinking... Post by vig on Sep 4th, 2006, 7:55pm on 09/04/06 at 19:31:25, alchemy wrote:
start thinking about the days when they'll be gone. it'll happen bro. ;;D |
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Title: Re: Headache Thinking... Post by unsolved1 on Sep 4th, 2006, 8:04pm Well...I think alot of you know my situation. I am an intractable chronic cluster headache sufferer (6 yrs straight) with multiple, devestating, daily hits ... unless I stay heavily medicated & do frequent (long term) inpatient hospital stays just to keep the beast at bay. Sometimes I think I've already died and went to hell. I feel for anyone who goes through what I do. Goodluck ppl UNsolved 8) |
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Title: Re: Headache Thinking... Post by Jonny on Sep 4th, 2006, 8:05pm on 09/04/06 at 19:55:49, vig wrote:
Vig is right......think positive, Bro!! |
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Title: Re: Headache Thinking... Post by brewcrew on Sep 4th, 2006, 8:13pm I have been on and off since the late 80's. Most recently I was getting hit multiple times daily since mid-January of this year. 11 days ago I received my Rx of Sansert from Canada. I have been pain free for the last nine days, and have slept through the night (except to P) for the last nine days as well. Life can be grand sometimes. Bill P.S. - Thanks for this forum at which we can have some headache thinking. |
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Title: Re: Headache Thinking... Post by E-Double on Sep 4th, 2006, 8:14pm " I had a cluster headache once" ;) |
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Title: Re: Headache Thinking... Post by alchemy on Sep 4th, 2006, 8:20pm Thanks guys for the kind words. I do try to keep a positive attitude and use my offbeat sense of humor here to help battle. I'm just worn out. I know it will get better. |
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Title: Re: Headache Thinking... Post by thebbz on Sep 4th, 2006, 8:40pm PF here for the last 3 months. Episodic sucks, Chronic sucks, each in its own way. >:(f^(*&^*&)^^demon b^))&*^*&^)@*&^bastard. all the best. [smiley=bash.gif] Presently loading for the next offensive. [smiley=bigguns.gif] jb |
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Title: Re: Headache Thinking... Post by Jonny on Sep 4th, 2006, 8:48pm on 09/04/06 at 20:13:19, brewcrew wrote:
Thats what im here for, Bro ;) |
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Title: Re: Headache Thinking... Post by brewcrew on Sep 4th, 2006, 8:55pm on 09/04/06 at 20:48:21, Jonny wrote:
Oh, you - You always know just what to say. [smiley=blush.gif] |
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Title: Re: Headache Thinking... Post by alchemy on Sep 4th, 2006, 9:03pm on 09/04/06 at 20:55:34, brewcrew wrote:
Watch it fella he's mine, Chewy rented him to me ;;D |
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Title: Re: Headache Thinking... Post by brewcrew on Sep 4th, 2006, 9:08pm on 09/04/06 at 21:03:53, alchemy wrote:
Which brings us to the obvious line: Beat him like a rented mule! :o |
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Title: Re: Headache Thinking... Post by chewy on Sep 4th, 2006, 9:13pm Quote:
CHEWY BE: http://img.photobucket.com/albums/v388/bgull2/GmvFHH5gJfsopNQ9jqY4wG4tANuC.jpg |
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Title: Re: Headache Thinking... Post by alchemy on Sep 4th, 2006, 9:14pm [smiley=crackup.gif] |
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Title: Re: Headache Thinking... Post by brewcrew on Sep 4th, 2006, 9:23pm We better watch it - people will start thinking that we've hijacked the thread. :o |
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Title: Re: Headache Thinking... Post by Grandma_Sweet_Boy on Sep 4th, 2006, 9:46pm on 09/04/06 at 21:23:34, brewcrew wrote:
Ya think? ;;D |
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Title: Re: Headache Thinking... Post by chewy on Sep 4th, 2006, 10:05pm http://rds.yahoo.com/_ylt=A9gnMiIQ2_xEb4ABx3qjzbkF;_ylu=X3oDMTA4NDgyNWN0BHNlYwNwcm9m/SIG=12ben8tp6/EXP=1157508240/**http%3a//hulk.osd.wednet.edu/%7ecarit/avatar/hijacked.jpg |
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Title: Re: Headache Thinking... Post by brewcrew on Sep 4th, 2006, 11:08pm on 09/04/06 at 21:46:54, Grandma_Sweet_Boy wrote:
Nope. I gave up thinking long ago. Better to just keep my head down and keep moving. When I think it only hurts the team. ;;D |
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Title: Re: Headache Thinking... Post by alienspacebabe on Sep 4th, 2006, 11:13pm Shadows every day. Breakthroughs 3 or 4 times a week, harsh but short ones. |
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Title: Re: Headache Thinking... Post by georgej on Sep 4th, 2006, 11:55pm My, it certainly is pleasant here. Amazing what a little ventilation can do. ;) PF since late June. Next cycle ain't due for a long time, but who knows, eh? One day at a time. Best to all, George |
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Title: Re: Headache Thinking... Post by Tiannia on Sep 5th, 2006, 11:47am Not PF here but at least the beast is reighned in some. Found a preventative that has stopped me from getting hit multiple times a day. After 4+ years of chronic hits 4+ times a day, I was in a very very bad place. This board brought me the sanity that I did not think I could have had before finding you. Now I get hit daily with a Phantom HA, I get the sweatsm the redness, and my eye will start to swell. But there is no pain. The doc said that we could up my dose and see if it stopped these as well, but then we will be taking the chance that they upped dose of the preventative could end up stop workig and I'd be riht back to where I started. I deal witht he phantom HA. :P What CH's I do get come about 2-3 times a month now. So I can deal with that and fight thru those. Love you... |
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Title: Re: Headache Thinking... Post by JenniferD on Sep 5th, 2006, 12:05pm I think I had a headache once. No, wait......I think I thought I had a headache. Um, thats not right...I had a headache once and it made me think that I couldn't think. But then I was thinking, I must have a headache cuz I can't think. What a lovely thread :) |
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Title: Re: Headache Thinking... Post by maffumatt on Sep 5th, 2006, 12:54pm The stuff I am taking is working, no complaints from me. Life is good. Matt |
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Title: Re: Headache Thinking... Post by echo on Sep 5th, 2006, 1:07pm Still get em. Drugs work some of the time. Compared to the "dirt nap" alternative -- life is good. |
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Title: Re: Headache Thinking... Post by georgej on Sep 5th, 2006, 1:18pm on 09/04/06 at 22:05:01, chewy wrote:
When in doubt, empty the magazine. Words to live by. George |
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Title: Re: Headache Thinking... Post by Sandy_C on Sep 5th, 2006, 5:49pm I was PF, for awhile, but, mine are coming back. Oh well? Life will go on. Sandy |
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Title: Re: Headache Thinking... Post by alchemy on Sep 5th, 2006, 6:21pm This has been one of the best threads I've seen here in awhile. Mind you I hate reading that others are in pain, but the support and companionship that is here because we all deal with the same beast. Noone else knows how we feel but us who deal with it. This thread has reminded me of how wonderful this place is. Thankyou Jonny for starting this thread and thankyou all for being who you are, and thats priceless. jim |
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Title: Re: Headache Thinking... Post by Jonny on Sep 5th, 2006, 6:42pm No prob, Jim.....the other thread that had this title was a bit boring ;;D Check this out! NEVER mess with Chewys money....LOL [smiley=laugh.gif] http://www.totalnation.com/videos/familyguy-brianmoney2.wmv |
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Title: Re: Headache Thinking... Post by kcopelin on Sep 5th, 2006, 6:43pm I remember when-long before CH came to stay-when I would watch the TV commercials for headache pain relief (always wimmin cringing and whining) and I'd roll my eyes and yell (I also used to watch enough TV to talk to it) GET A F%%% LIFE! Then I had a couple of friends who had migraines-God forgive me but I thought they were complaining whining wimps. Then the Beast moved into my head. I spend a few minutes now and then wondering who else I denigrated, dissed, and generally discounted. Still chronic-still geting daily visits-still kicking-still crazy after all these years 8) thanks for the thread Jonny kathy |
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Title: Re: Headache Thinking... Post by sailpappy on Sep 5th, 2006, 7:50pm ::) ::) Quote:
36 years and counting.........I'd settle for a full night of sleep!! Pappy |
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Title: Re: Headache Thinking... Post by alchemy on Sep 5th, 2006, 8:45pm on 09/05/06 at 19:50:30, sailpappy wrote:
you're amazing.makes me fel small for whining |
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Title: Re: Headache Thinking... Post by Charlotte on Sep 5th, 2006, 9:14pm I had a good day today. I could actually think. Jonny, when I saw this thread, I came in before anyone posted, I almost asked if it was bait, but I see that it is not. Charlotte |
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Title: Re: Headache Thinking... Post by Lizzie2 on Sep 6th, 2006, 10:14pm I like this thread - reminds us of why we came to this site in the first place....first and foremost because so many of us were searching in the dark for someone else who understands.... Back in mid-July, I had the best week or two of my entire life (since getting the chronic migraine first in January 2001) as far as pain was concerned.....my pain was barely there - maybe a 2, and the clusters were taking a hiatus with maybe a random hit here or there, but nothing I couldn't deal with... Then a few weeks ago, things got really bad. I even tried 3 days of a migranal burst (DHE nasal spray - used twice a day for 3 days), but it did nothing. We increased another med I'm on, but it hasn't really touched it... I'm left wondering what happened - I think the very hot, stormy weather came through, messed with my head, and now I'm stuck in a much worse pain state... Baseline for the migraine alone is pretty bad - then with maybe 3-5 CH hits per day/night...mostly at night. The lack of sleep is making it all pretty hard to deal with, so my patience is wearing very thin these days. But we do what we can - and I like what was said above that it's better than the "dirt nap" alternative. I've considered that many times in the past....but still found the strength inside to just keep going. Finding this place made a HUGE difference for me - I'm not sure I would have made it to the present without you guys.... PFDAN 2 ALL :-* Carrie :) |
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Title: Re: Headache Thinking... Post by Tiannia on Sep 7th, 2006, 12:20am on 09/06/06 at 22:14:30, Lizzie2 wrote:
Carrie - I think you speak for everyone here, sufferer, supporter, friend, family.... We are all in this together and no matter what else we talk about we know that we have that support of people who DO REALLY understand. Tia |
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Title: Re: Headache Thinking... Post by Katherinecm on Sep 7th, 2006, 1:47am on 09/06/06 at 22:14:30, Lizzie2 wrote:
The heat wave thing is interesting... I started having a really hard time when the heat waves started passing through the midwest... what was that, 6 weeks ago? I thought it was the drugs I was trying at the time, because I got a little better for a few days when I quit them. But since then I seem to be getting steadily worse, intractible migraine, many hits, suicidal thoughts even when I'm not getting hit. That's never happened to me before. It's terrifying to not be in control of your thoughts. I got a lot of support from people here. I got some stronger painkillers, and an antidepressant, and had a family meeting and hashed it out with those who were being hostile rather than supportive. My headaches aren't better but it seems much easier to deal. For me, the quote about fear of pain being worse than pain itself is true... It's fear and loss of hope that put me in despair, not the stupid headaches. I don't know where I would be without this board. Thank you all so much. |
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