Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006 General Board Posts >> First Experience @ 13 Years old in School.
        
(Message started by: JohnMcCloy on Aug 28^th, 2006, 12:22pm)

Title: First Experience @ 13 Years old in School.
Post by JohnMcCloy on Aug 28^th, 2006, 12:22pm

I had forgotten all about this until last night.
I was in Social Studies class and there was a little quiz coming up & i started getting this monstrous pain and tried to keep putting my head down but kept fidgeting.This is probably the worst attack i have ever experienced & The first one in pubic and at school.

So after wanting to split my head in half after 20 mins I get up and walk upto the teachers desk tearing but half from the CH half from the eye symptoms.I tell her i have a terrible headache i need to go home I need to call my family.So she gives me this disgusted look and tells me its only a headache & to sit down,She must have thought i was trying to get out of the quiz or something.
After another 5 mins i was rocking in my seat and started to cty out of frustration because I could not explain to her what it felt like.
So i got up and tried crying in front of everyone in the classroom and begged her to let me go.She finally did but gave me a "what a cry baby look"

After thinking back about it last night I never realized just how angry I am towards her.HOW CAN SHE NOT HAVE SEEN MY EYE AND FACE MY EYE WAS SEALED SHUT.

Anyone have a similar story?

Title: Re: First Experience @ 13 Years old in School.
Post by brewcrew on Aug 28^th, 2006, 1:45pm

Now, not only do you have to go see a neurologist, you'll probably want to see a psychiatrist as well. That bitch was trying to ruin you!

I think it's all the fault of public school. A nun would have knocked you unconscious, thus temporarily ending your misery.

Not to make light of your predicament - just pointing out that the vast majority of folks know NOTHING about our condition.

Title: Re: First Experience @ 13 Years old in School.
Post by andrewjb on Aug 28^th, 2006, 2:10pm

:).ignorance is bliss.just part of what makes you,you.seariously though, sorry to hear it.andrew

Title: Re: First Experience @ 13 Years old in School.
Post by georgej on Aug 28^th, 2006, 2:11pm

on 08/28/06 at 13:45:11, brewcrew wrote:

Boy, can I relate to the "nun" thing...LOL.

I started at thirteen as well. Luckily, the first time I got nailed I was at home, and my mother took it seriously.

I was lucky to be diagnosed just a couple of years later. I'd occasionally get hit at school, and I used to get permission to go to the nurse's office until they went away, then went back to class.

The cycles quickly settled into 6 week runs where I got hit almost exclusively at night, so few people saw them by the time I was in my late teens.

The saving grace (if there is one) of these things, though, is that people can SEE that something is happening--something bad. It's pretty hard to ignore a red-eyed, leaking, stumbling student who is clearly in pain. Sorry to hear that you got a teacher who thought it was okay to ignore the obvious. She ought to have been drawn and quartered.

George

Title: Re: First Experience @ 13 Years old in School.
Post by maffumatt on Aug 28^th, 2006, 2:22pm

http://www.ouch-us.org/chgeneral/colleagueletter.htm

Print this page out and give it to all your teachers and the school nurse, it should solve most of your problems at school.
Matt

Title: Re: First Experience @ 13 Years old in School.
Post by fubar on Aug 28^th, 2006, 2:31pm

I have a little deep-rooted anger too...

When I was taking a security certification test that was supposed to be a 6 hour test, I got hit really hard. I had my Oxygen tank there, just in case, and I ended up needing it. After doing pretty good for about 45 minutes, I relented and started to use the O2, but that was just barely making me able to keep quiet, let alone concentrate on this test. So, afer about 1.5 hours, I got up to leave. Here's the good part... the proctor for the test asked me what the problem was, and when I simply said "I'm finished" (not wanting to waste any time explaining this thing when all I wanted to do was hide in a corner and die...) he said "Well, let me see if you passed" and proceeded to look glancingly at his watch before he proclaimed "Nope!" without so much as a look at my test. He said it wasn't possible to read the whole thing, let alone pass it in the time I had used. 3 weeks later, I found out I passed. What a jerk.

Title: Re: First Experience @ 13 Years old in School.
Post by Charlie on Aug 28^th, 2006, 7:12pm

God I hate how people relate to CH pain. It's indescribable, of course.

You definitley need to print out some copies of Simon's letter. I can't imagine a better way to deal with your situation.

Charlie

Title: Re: First Experience @ 13 Years old in School.
Post by fubar on Aug 28^th, 2006, 7:24pm

on 08/28/06 at 19:12:26, Charlie wrote:

God I hate how people relate to CH pain. It's indescribable, of course.

People have such a wide variety of ways to 'relate' to such pain. They:

- scoff (it can't possibly be that bad)
- run away
- declare thet they know exactly how to fix you
- declare that they know exactly what you're going through because they had a headache once 4 years ago that they can't forget

etc.

Who can blame them? Pain scares people. Either that or it makes them want to be all motherly. I'd rather just not talk about it with them unless I know they'll have to see me that way a lot. That's where Simon's letter is some help.

Title: Re: First Experience @ 13 Years old in School.
Post by Sean_C on Aug 28^th, 2006, 9:52pm

Mine started at 13 too, docs didn't know shit. I eventually dropped out because I thought something in the school air caused it.....................go figure :(

Never looked back though, life has its ups and downs, can't change the past, just keep movin forward.

Sean........................................