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        New Message Board Archives >> 2006 General Board Posts >> See what you miss - MilCon Video Clips
        
(Message started by: Gator on Aug 24^th, 2006, 1:55pm)

Title: See what you miss - MilCon Video Clips
Post by Gator on Aug 24^th, 2006, 1:55pm

At Milcon, between Lori Choyce's presentation and Svenn's presentation, we were entertained by ASB's daughter Teresa and the Badger Band. Everyone enjoyed it - some more than others...LOL

Chicken Dance Anyone?

http://www.ouch-us.org/gatherings/milcon06/chickendance1.wmv

Title: Re: See what you miss...
Post by Jonny on Aug 24^th, 2006, 2:09pm

[smiley=laugh.gif]

Title: Re: See what you miss...
Post by Gator on Aug 24^th, 2006, 2:54pm

The band had us all on our feet and drew hotel staff and guests from all around, smiling and clapping and dancing.

But wait, who's the guest conductor?

http://www.ouch-us.org/gatherings/milcon06/badgerblake.wmv

Title: Re: See what you miss...
Post by Jonny on Aug 24^th, 2006, 3:06pm

[smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]

Title: Re: See what you miss...
Post by lionsound on Aug 24^th, 2006, 4:44pm

absolutely tremendous!!! [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]

thanks mike :)

Title: Re: See what you miss...
Post by pattik on Aug 24^th, 2006, 10:49pm

Thanks, Mike. [smiley=crackup.gif]

Title: Re: See what you miss...
Post by Gator on Aug 24^th, 2006, 11:01pm

Of course it wasn't all fun and games. There was a serious side as well. Those who wished to do so participated in the Zomig NS study right there at the convention.

IMPORTANT: Anyone who participated in the Zomig NS Trial at the convention and did not get their journals turned in, please send those to Lori Choyce ASAP.

Lori Choyce (NECH) announced a new clinical trial coming out around the end of the year, studying Civimide as a preventative.:

http://www.ouch-us.org/gatherings/milcon06/choyce-winstoncivimide.wmv

Supporters are probably the most important people in ours lives. Yes we see the doctors once in a while and get this or that med, but our supporters keep us going. They advocate for us with our doctors, console us when we are feeling down and kick us in the ass when we start letting things get to us.

At the beginning of Svenn's presentation, he had us do something we should be doing every day.

http://www.ouch-us.org/gatherings/milcon06/applaudesupporters.wmv

He also challenged us to come up with ways to increase awareness of ch - see CH Contest Thread.

Dr. Sewell drove home the point that we must actively advocate for ourselves in order with this little exercise:

http://www.ouch-us.org/gatherings/milcon06/sewell-prevalenceofch.wmv

He showed us that one or two people CAN make a difference:

http://www.ouch-us.org/gatherings/milcon06/sewell-videohelps.wmv

Dr. Sewell kind of stepped in it a little bit when talking about the age of CH onset:

http://www.ouch-us.org/gatherings/milcon06/sewell-stepsinit.wmv

Dr. Sewell praised the creation of C.H.A.T.S. He stated there was no way he could have gotten a grant to have the software written, but because of the activism by OUCH members, there was a useful tool for collecting data. It has already been approved for use by the Harvard IRB and should be put into use shortly. Dr. Sewell made the following statement:

http://www.ouch-us.org/gatherings/milcon06/sewell-svenn&dan.wmv

Way to go guys!

Finally, Dr. Sewell announced that because of pilot data provided by Clusterbusters and members of the cluster headache community, he would be submitting grant paperwork for a Kudzu trial this October.

Title: Re: See what you miss...
Post by Charlotte on Aug 25^th, 2006, 12:37am

Thank you, Gator.

Charlotte

Title: Re: See what you miss...
Post by georgej on Aug 25^th, 2006, 1:27am

Tremendous work by all involved, Gator. My hat's off to all of you.

George

Title: Re: See what you miss...
Post by Gator on Aug 25^th, 2006, 2:22am

continued...

Dr Halpern spoke mainly of the issues involved in getting the psilocybin study going. He also spoke to some of the legal issues, such as seeds:

http://www.ouch-us.org/gatherings/milcon06/halpern-seedsillegal.wmv

Dr. Halpern explains that this type of research could be dangerous to a research career.

http://www.ouch-us.org/gatherings/milcon06/halpern-waryoflsd.wmv

Glad you all are enjoying a short peek into a convention. For those who have never attended, you really have to go to Richmond next year. There's more from this convention, but I'm tired and it's almost time for my nightly visit from you know who. I can feel him creeping about already. Will try to finish up tomorrow.

Title: Re: See what you miss...
Post by Jasmyn on Aug 25^th, 2006, 6:06am

Thanks Mike and a Thumbs Up! to all of you for a JOB WELL DONE! :)

Title: Re: See what you miss...
Post by nani on Aug 25^th, 2006, 10:29am

Watch Dr Sewell's face during the chicken dance... LMAO... a penny for his thoughts. [smiley=laugh.gif]

Title: Re: See what you miss...
Post by LeeS on Aug 25^th, 2006, 10:46am

Thanks for the insight Mike :)

on 08/25/06 at 10:29:30, nani wrote:

Watch Dr Sewell's face during the chicken dance... LMAO... a penny for his thoughts. [smiley=laugh.gif]

"I'm bloody glad that Limey's not here!"

You owe me a penny nani ;) ;;D

-Lee

Title: Re: See what you miss...
Post by nani on Aug 25^th, 2006, 10:48am

Oh...yous in twubble now, Lee.... :P
LMAO

Title: Re: See what you miss...
Post by Gator on Aug 25^th, 2006, 2:52pm

Dr Halpern describes the cost of getting this study through drug development

http://www.ouch-us.org/gatherings/milcon06/halpern-cost.wmv

Dr Halpern explains that the study will likely get no federal money

http://www.ouch-us.org/gatherings/milcon06/halpern-nofedmoney.wmv

Feeling at first meeting with CB.

http://www.ouch-us.org/gatherings/milcon06/halpern-can'tdothat.wmv

Why continue?

http://www.ouch-us.org/gatherings/milcon06/halpern-2chsuicides.wmv

We have a friend? in the DEA & FDA..

http://www.ouch-us.org/gatherings/milcon06/halpern-friendlydeafda.wmv

Basically, Dr. Halpern says there are many legal, political and financial hurdles in the way and it will take more time than we think it should, but there is a possibility that this study could take place and lead to an effective treatment for CH. While we are waiting, advocacy groups need to keep it in the public eye and keep the focus on the medical aspects of psilocybin/lsd.

Dr. Sewell re-interjects a note of hope

http://www.ouch-us.org/gatherings/milcon06/sewell-halpern-hope.wmv

So what should OUCH's position be on psilocybin/lsd?

http://www.ouch-us.org/gatherings/milcon06/sewell-halpern-ouchposition.wmv

The underlying theme of all speakers during the convention was advocacy. We need to educate the public and those doctors who are unfamiliar with CH. We need to be more active in getting CH in the public eye (so to speak) and in raising money for research.

Title: Re: See what you miss - MilCon Video Clips
Post by Sandy_C on Aug 25^th, 2006, 5:23pm

Thank you, Mike. Great videos.

Please note, on your second video of the badger band, the tuba player was facing Dr. Sewell, and telling him to take his necktie off. Dr. Sewell said thanks, but no. ;;D

And, you do realize that those of us, who shall remain nameless, who were shown doing the chicken dance, will do very nasty things (castration comes to mind) for showing us them doing something so stupid. ;;D

Sandy

Title: Re: See what you miss - MilCon Video Clips
Post by Gator on Aug 25^th, 2006, 6:15pm

Saturday, after the last of the presentations, there was our banquet, awards ceremony, entertainment and auction.

The first award: The Bob Kipple Award for Service to the Cluster Headache Community:

Dialuppers, I apologize for the size of this (2.45MB). I cut out a lot of applause and extra stuff to get down this far.

http://www.ouch-us.org/gatherings/milcon06/kipaward.wmv

Title: Re: See what you miss - MilCon Video Clips
Post by Gator on Aug 25^th, 2006, 6:16pm

on 08/25/06 at 17:23:57, Sandy_C wrote:

And, you do realize that those of us, who shall remain nameless, who were shown doing the chicken dance, will do very nasty things (castration comes to mind) for showing us them doing something so stupid. ;;D

Sandy

Nothing wrong with having a little fun, Sandy. Lord knows we all deserve it.

Title: Re: See what you miss - MilCon Video Clips
Post by LeLimey on Aug 25^th, 2006, 6:25pm

Who can watch this without feeling a deep loss that we're all (physically) apart again?
Who's watching it and not planning to be there next year?

Thanks Gator, having these clips to watch and remember is making me a very happy blue limey right now [smiley=hug.gif]
love you big guy
Helen xxx

Title: Re: See what you miss - MilCon Video Clips
Post by Gator on Aug 26^th, 2006, 10:04am

Next we thanked this year's convention committee: Rori Lockman, Elizabeth Goodman, and Tina Brown (accepted by her husband, Ramon)

http://www.ouch-us.org/gatherings/milcon06/convcomthanks.wmv

The remainder of the awards were awarded as follows:

Lifetime Membership - Michelle Adamson & Linda Howell

http://www.ouch-us.org/gatherings/milcon06/lifetime-mast.wmv

http://www.ouch-us.org/gatherings/milcon06/lifetime-linda.wmv

Supporters of the Year - Elizabeth Goodman & Pam King

http://www.ouch-us.org/gatherings/milcon06/supporter-asb.wmv

http://www.ouch-us.org/gatherings/milcon06/supporter-pam.wmv

Youngest Clusterhead - Jasper Kemp

http://www.ouch-us.org/gatherings/milcon06/youngest-jasper.wmv

Dedication is Service - Melissa Filtz

http://www.ouch-us.org/gatherings/milcon06/dedication-mel.wmv

Golden Regulator - Ben "Clustermasx" Khan

http://www.ouch-us.org/gatherings/milcon06/goldenreg-khan.wmv

Comedic Relief - Helen Kemp

http://www.ouch-us.org/gatherings/milcon06/comedic-helen.wmv

Lois Lane - Anita Wiseman

http://www.ouch-us.org/gatherings/milcon06/loislane-nani.wmv

The Odd Couple - Charlie Strand & Matt Matlock

http://www.ouch-us.org/gatherings/milcon06/oddcouple-charlie-matt.wmv

Pay it Forward - Linda Howell

http://www.ouch-us.org/gatherings/milcon06/payitforward-linda.wmv

Volunteer of the Year - Rori Lockman

http://www.ouch-us.org/gatherings/milcon06/volunteerofyear-rori.wmv

And that was supposed to be it, but they snuck this one in on me:

Excellence in Service - Mike Day

http://www.ouch-us.org/gatherings/milcon06/excellenceinservice-mike.wmv

And that was it - or was it? Another award got snuck into the program presented by Michelle Adamson:

Fearless Leader - Donna Delacerda

http://www.ouch-us.org/gatherings/milcon06/fearlessleader-donna.wmv

Title: Re: See what you miss - MilCon Video Clips
Post by Gator on Aug 26^th, 2006, 10:38am

Next came the entertainment and it definitely was entertaining. In the "game show," contestants Donna, Blake and Helen were blindfolded and had to ask yes or no questions to guess the name, occupation and whether the subjects - Jasmyn & Bob (BlueMeanie) - were episodic or chronic.

Helen asked Jas if she was shorter than her. Donna replied, "No one's shorter than you." Helen replied...well, watch her reply

http://www.ouch-us.org/gatherings/milcon06/game-helen-bird.wmv

Helen revels in asking a good question...

http://www.ouch-us.org/gatherings/milcon06/helen-ahah.wmv

Donna congratulates Helen on her correct guess resulting in the famous "High Five"

http://www.ouch-us.org/gatherings/milcon06/1sthighfive.wmv

Blake couldn't wait to ask a question..

http://www.ouch-us.org/gatherings/milcon06/blake-gotagoodone.wmv

The crowd gets involved...

http://www.ouch-us.org/gatherings/milcon06/highfive.wmv

Blake doesn't like being told no...

http://www.ouch-us.org/gatherings/milcon06/blake-tiredofhim.wmv

Donna asks, "Is this my water?" uh, Donna...he's blindfolded...

http://www.ouch-us.org/gatherings/milcon06/isthismywater.wmv

The game ended with everyone giving a high five

http://www.ouch-us.org/gatherings/milcon06/allhighfive.wmv

Just gotta do this. Sorry Donna...

http://www.ouch-us.org/gatherings/milcon06/highfive-youdawoman.wmv

Title: Re: See what you miss - MilCon Video Clips
Post by maffumatt on Aug 26^th, 2006, 10:51am

Thanks for putting that up Mike.
Matt

Title: Re: See what you miss - MilCon Video Clips
Post by Redd715 on Aug 26^th, 2006, 12:01pm

Some of these clips would make great fodder for AFV. Who knows...if it won, the money goes straight to OUCH! ;;D

Wouldn't that just be the cat's pajamas? I loved the one where Blake said he was tired of Blue....I'm still laughing.

Miss you guys....

Pegg

Title: Re: See what you miss - MilCon Video Clips
Post by Gator on Aug 26^th, 2006, 11:18pm

Well, this has been a fun trip down memory lane. I'm going to wrap up with a short montage from the auction (this does not cover all the items auctioned)...

http://www.ouch-us.org/gatherings/milcon06/auction1.wmv

and the Battle for the Shiney...

http://www.ouch-us.org/gatherings/milcon06/shineywar.wmv

As has been said many times, if you've never met another clusterhead, you just HAVE to and the OUCH Convention is the perfect place to do so. Please make plans to be in Richmond for the 2007 OUCH Convention. I look forward to seeing you all there.

Oh, yeah... Hey Donna! High Five!!!

http://www.ouch-us.org/gatherings/milcon06/highfive-youdawoman.wmv

Title: Re: See what you miss - MilCon Video Clips
Post by Mastifflvr28 on Aug 27^th, 2006, 12:36am

Thanks so much Gator,
And thank for reducing the videos as much as possilbe so even our crappy diaulp's can see them.

I miss you all so much,

Sigh,
Mast

Title: Re: See what you miss - MilCon Video Clips
Post by cootie on Aug 27^th, 2006, 1:19am

WOW guys..........just fineally got to see ME gets an award and I think I just did the chicken dance in my pants !!! THANK YOU SO MUCH.......I can't tell you enuff again how much that ment to me. Bird butty Pam ;;D

Title: Re: See what you miss - MilCon Video Clips
Post by Gator on Aug 28^th, 2006, 12:23am

Mast, I had to reduce the pics so I could upload the damned things. As it was, it still took me, what, three days? I'm cursed with that crappy dialup, too.

Cootie, I was really hoping to see you and Brad and all the others who didn't make it this year.

Thank you all for the kind words here, in PM's and in e-mail. I've laughed, cried and learned while editing the videos and creating the posts in this thread. You have all given me so much support in my times of trouble. This is my gift to all of you who mean so much to me. I hope we can all meet in Richmond next year.

Title: Re: See what you miss - MilCon Video Clips
Post by The mad viking on Aug 28^th, 2006, 10:06am

As always an exellent job Mike.

Svenn