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        New Message Board Archives >> 2006 General Board Posts >> ..And still no better (Updated 8/9)
        
(Message started by: Lizzie2 on Aug 7^th, 2006, 8:28pm)

Title: ..And still no better (Updated 8/9)
Post by Lizzie2 on Aug 7^th, 2006, 8:28pm

The past two weeks have become a living hell for me with respect to the migraine and CH. I guess I spoke too soon when overjoyed about how well the methotrexate was helping me. I had 2 of the best headache weeks in over 5 years and then 2 weeks ago, slammed. It's been a nightmare ever since...

So I saw the neuro NP this morning at the headache center. She gave me 3 nerve block injections...2 above the right eye and one in the right temple...ow... I'm wondering if they weren't more superficial and didn't hit the nerve because I felt this "numby" feeling for a few hours... I came home and took a nap and after waking up, my head is back to horrendous again.... This is just not good.

I'm supposed to go back in a month, but I may call again tomorrow and just let them know that I didn't get relief...I can't go another whole month like this... It's becoming a major problem. :(

Sorry to whine....this just sucks...

Title: Re: 3 shots to the face/temple and still no better
Post by E-Double on Aug 7^th, 2006, 8:34pm

Hug me....http://im1.shutterfly.com/procserv/47b6d910b3127cce8b28a8c7ad7d00000010103QasWrlwx0
You'll feel better :-*

Title: Re: 3 shots to the face/temple and still no better
Post by Lizzie2 on Aug 7^th, 2006, 8:38pm

Awww...can I come visit on Sunday? or better yet, Saturday night into Sunday? LOL

I forgot to mention that out of the last 5 IVs that I've tried in neonates, I've nailed 4 on the first try. I've made it my goal this month to get good at IVs....working on it. At least that's a positive although I feel strangely on the edge of needing more acute intervention to this headache... :(

Title: Re: 3 shots to the face/temple and still no better
Post by broomhilda on Aug 7^th, 2006, 8:51pm

(((((((((((((((Carrie)))))))))))))))))

Hoping pf times find you soon...

Andrea

Title: Re: 3 shots to the face/temple and still no better
Post by nani on Aug 7^th, 2006, 9:20pm

Sorry, Carrie. I'm sending prayers and good juju.
hugs, nani

Title: Re: 3 shots to the face/temple and still no better
Post by JenniferD on Aug 7^th, 2006, 9:31pm

:( I am so sorry for you Carrie. I hope you find some relief soon. Sending as many pf vibes as I can.

Hugs,

Jen

Title: Re: 3 shots to the face/temple and still no better
Post by lionsound on Aug 7^th, 2006, 9:57pm

[smiley=hug.gif]

Title: Re: 3 shots to the face/temple and still no better
Post by kevinpix on Aug 7^th, 2006, 10:28pm

I had a series of shots like that, too. It didn't do much either. I have tried them all, oxygen probably the best, next to surgery, in my case. Hope you find the relief your needing!!! Be strong!!!

Title: Re: 3 shots to the face/temple and still no better
Post by Jimi on Aug 7^th, 2006, 11:15pm

What kind of surgery did you have Kevinpix?

Title: 3 shots
Post by cootie on Aug 7^th, 2006, 11:44pm

Wishin you sum MAJOR PF relief cuz you sure could use it !!! And you sure do deserve it Pam

OWWWWWWWWEEEE on the shots.........ick ! :P

Title: Re: 3 shots to the face/temple and still no better
Post by unsolved1 on Aug 8^th, 2006, 3:11am

Sorry to hear the block didn't help much Carrie. What kind of block was it ? Have you had an ON block yet ?

IMO ... These kinds of blocks are kind of like real estate : ---> 'location, location, location' ... can mean all the difference.

UNsolved

PS. Yea Pix ... what kind of surgery did you have ? Tell us about it. Details plz !

Title: Re: 3 shots to the face/temple and still no better
Post by sandie99 on Aug 8^th, 2006, 3:51am

Carrie...

lots of vibes are on their way. I hope that things get easier soon... [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Wishing you PF days,
Sanna

Title: Re: 3 shots to the face/temple and still no better
Post by Lizzie2 on Aug 8^th, 2006, 5:20pm

Thanks everybody. It's worse yet again today and I've spent the whole day either sleeping, lying in bed, or battling the beast. I called out of community theater for tonight, where I am supposed to be accompanying. I called the headache center and left a message around 1someting and then called again at 4:10 to leave another message since I knew they were closing at 4:30. 4:30 came and went with no returned calls. What to do?? I feel so awful right now... :(

Title: Re: 3 shots to the face/temple and still no better
Post by LadyLuv on Aug 8^th, 2006, 6:04pm

[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]Sorry Carry :'( :'( Praying that you feel better real soon [smiley=hug.gif] [smiley=hug.gif]

Between our vibes and Hannah's hug... you'll be better in no time Sweetie..

Ruthie

Title: Re: 3 shots
Post by cootie on Aug 8^th, 2006, 6:11pm

Sorry 'again'........was hopein ya'd get sum help....what's up with those clinic places anyhow......the more I hear about them the more PARANOID I get my doc will sumday say SEE-YA and pass me onto one......hopein that NEVER EVER happens and been very lucky so far to have a GOOD internalist (even tho two others quit and took hospital jobs) cuz he is better with apt's and call backs. Can get in within a week for a visit. Got a friend goin to a clinic for RA.....they put her on meds that make her sick.....bloated so bad she can't breathe or move......and no pain relief. But....she can only go in every three months and NOT a day early no matter what is wrong. I have heard alot of clinics are that way.....if they are takeing in special pain or health issue patients I'd think they'd be lots better with that ??? OK....hire more docs maybe so they can meet the patient load at least ? She was doin better in pain management by a long shot and movein around and active but now she is in pain and miserable and workin too many hours. She has called them to tell the nurses she can NOT tolerate the meds and can't afford to loose work bein sick from them either and she told them she still has alot of joint pain but they really DON'T want top hear it and get sort of pissy about it ! It really upsets me Pam

sorry....I got carried away with the bitch session......

Title: Re: 3 shots to the face/temple and still no better
Post by Charlie on Aug 9^th, 2006, 1:53am

Rats.

Everyone should have one of these to hit incompetent medical professionals. They either help you or else you show them a little pain:

http://www.netsync.net/users/charlies/gifs/beaterlong.jpg

Charlie

Title: Re: 3 shots to the face/temple and still no better
Post by Lizzie2 on Aug 9^th, 2006, 8:24pm

LOL Charlie is that the bondage gear that I saw as the subject of some other post of yours?

Update from today was that I did go to work even though I thought I was going to have to stay home. I left another message for the nurse practitioner, but as nobody had called me back by 4pm, I walked over to the clinic to try to talk to someone. It took me starting to cry before the one receptionist went and got a nurse...I felt dumb for crying, but the receptionist said, "You can't work like that..."

The nurse and I sat and talked about the meds I've tried and how bad the headaches are right now. She prescribed zyprexa, which E2 swears by and I've taken a lot of times, but not for quite a long time. I can take anywhere from 2.5 to 10mg...depending on what's going on I guess. I have an appt with my neuro on Wednesday morning now. Basically the next and only option after this is another hospital stay. I haven't had one for 1 year and 7 months.

I'm not sure what to do. Ultimately it's my choice since admitting for headache is actually voluntary...I won't die if I'm not admitted, but what do I do about how bad the migraine and clusters have gotten lately? I'm not sure how much longer I can go on with how bad it's been. I don't think that short term disability will cover me since it's a preexisting condition, and I only have 25 hours of sick time. I can't even really use vacation time since I do have some, but also am using 48 hours for my England trip in September, and I already bought the plane ticket - which is nonrefundable.

I know how bad this is... I'm hoping the zyprexa helps, but I'm so stressed now with choices like this in front of me. I dont' think I would lose my job if I take a leave of absence, but that does take a huge chunk of money out...and I don't really have any savings yet except what I'm taking to England.

Thanks for "listening" to me vent...

Title: Re: ..And still no better (Updated 8/9)
Post by cootie on Aug 9^th, 2006, 10:19pm

HOPEIN the new med works for you.......has it before ? You mention'd you'd taken it other times but isn't that a scarey medication......can ya still function and work while takein it ? REALLY hopein there is relief around the corner Pam

Title: Re: ..And still no better (Updated 8/9)
Post by sandie99 on Aug 10^th, 2006, 4:05am

Carrie,

I wish so much that I could take part of your pain right this moment... [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Sending just more ((((((((((vibes)))))))) and prayers seems so little. I wish I could do more to help you.

You know that I'm here if you need to talk, always!

Sanna

Title: Re: ..And still no better (Updated 8/9)
Post by mynm156 on Aug 10^th, 2006, 5:10am

Hey sweetie you know you are my Fav NeoNurse! I am sorry you are getting creamed right now but ya know I am sending you all the love and good vibes!

Feel better soon!

your Brother in Pain

MYNM156

Title: Re: ..And still no better (Updated 8/9)
Post by rickyshot on Aug 10^th, 2006, 8:18am

I am so sorry Lizzie. I too suffer the combo of CH and very complicated migraines. I have been to ER more times than I can count by ambulance never mind the walk ins. I too have been hospitalized. Don't be ashamed. Migraines are not benign especially the kind that land you in hospitals. At least that is what my neuro told me and he was right cause I suffered a TIA four years ago from one of those horrible episodes. When I am in they give me DHE and solumedrol. Have you ever tried that route? Now if I am starting to get into trouble my neuro let's me administer the DHE subcutaneously myself under his instructions.
I don't know if the CH sets off the migraines or the migraines sets off the CH. I don't know whether to shit or go blind at times. I FEEL you GF. Check your PM

Title: Re: ..And still no better (Updated 8/9)
Post by TomM on Aug 10^th, 2006, 9:00am

Hugs to ya, Carrie. Hang in there and vent anytime.
TomM