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        New Message Board Archives >> 2006 General Board Posts >> (updated 8/9) Brewcrew hospitalized 
        
(Message started by: Mosaicwench on Aug 7^th, 2006, 6:49pm)

Title: (updated 8/9) Brewcrew hospitalized
Post by Mosaicwench on Aug 7^th, 2006, 6:49pm

Hi all.

After suffering a SIX HOUR kip 9 attack of the beast this morning I took brew to the hospital and he was admitted for DHE treatment.

Three years ago he had the same treatment and after leaving the hospital he had a week of bad hits and then the cycle stopped for about 9 months.

Unfortunately the hospital admittance was a clusterf**k from the beginning with his neuro not having privileges at the hospital he sent him to, the staff not understanding what a cluster headache is, and the hospital being 18 miles one way from home rather than the one 5 miles down the road . . . etc. etc., (big heavy sigh).

8/9/06 update
See page three for my last update.

Title: Re: Brewcrew hospitalized for DHE treatment
Post by maffumatt on Aug 7^th, 2006, 6:55pm

Keeping you two in my thoughts, don't forget to take care of yourself too.
Matt

Title: Re: Brewcrew hospitalized for DHE treatment
Post by LeLimey on Aug 7^th, 2006, 7:02pm

oh I'm so sorry, you must be at your wits end hon :'(
Give him our love when you go back to see him and kick arse if needs be. If you want anyone to talk to I'll happily call (im your number) no one should have to go through this alone and in clusterville no one does! We won't let you.
Anything you need - just say okay? We'll do all we can
lots of love
Helen xxx

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Jonny on Aug 7^th, 2006, 7:05pm

Four horns up [smiley=headbanger.gif] for beast ass kicking power and vibes going out at a record pace for my brother!!!!!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by vig on Aug 7^th, 2006, 7:10pm

fngresi crdsose 4 Bill

hope relief comes soon!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Paul98 on Aug 7^th, 2006, 7:15pm

Hope Brew and You get relief. Vibes propagating your way.

-P.

ps. hospitals SUCK!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Jackie on Aug 7^th, 2006, 7:17pm

Bless your hearts....
Positive thoughts, tons of vibes and a bunch of prayers for you all..

Love to you,
Jackie

Title: Re: Brewcrew hospitalized for DHE treatment
Post by JeffB on Aug 7^th, 2006, 7:22pm

Best wishes for you guys! Kick the beasts a$$!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by TxBasslady on Aug 7^th, 2006, 7:28pm

Bless his heart :'(

Please tell Bill I'm thinking of him.

Take care of yourself, and let us know if there's anything you need, sweetie

Much love,

Jean

Title: Re: Brewcrew hospitalized for DHE treatment
Post by georgej on Aug 7^th, 2006, 7:42pm

Man, I'm sorry to hear about this. Tell Brewcrew that we're all vibing away like mad here, and hope to see him back soon.

Scream away in the back yard--hell with the neighbors. You've earned screaming rights.

Best wishes for PF times very soon,

George

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Jasmyn on Aug 7^th, 2006, 7:46pm

Hugs to both of you [smiley=hug.gif]

Title: Re: Brewcrew hospitalized for DHE treatment
Post by jimmers on Aug 7^th, 2006, 7:48pm

Bill,

Whip his ass! Get better soon. Thoughts and vibes on the way.

Jimmers

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Jonny on Aug 7^th, 2006, 8:06pm

http://im1.shutterfly.com/procserv/47b3da38b3127cce9fbec65df33700000016108AZM2bNk5bM6

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Linda_Howell on Aug 7^th, 2006, 8:08pm

Sometimes this $hit just makes me cry. :'(

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Linda_Howell on Aug 7^th, 2006, 8:09pm

nice angels Jonny. ;)

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Jonny on Aug 7^th, 2006, 8:13pm

on 08/07/06 at 20:09:50, Linda_Howell wrote:

nice angels Jonny. ;)

I got them from an Angel and feel I have to share them when needed. ;)

Title: Re: Brewcrew hospitalized for DHE treatment
Post by pattik on Aug 7^th, 2006, 8:15pm

Lots of good wishes coming from Madison for a speedy return to his family and his guitar. ;) [smiley=hug.gif]

Patti

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Linda_Howell on Aug 7^th, 2006, 8:16pm

;;D

Mosaicwench....Could you please print all this out and take it to Bill?

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Grandma_Sweet_Boy on Aug 7^th, 2006, 8:36pm

I'm so sorry to hear this - but let's hope that the treatment will give him a break and you too.

Please take care of yourself - the medical folks will take care of him.

Hugs to you both
Carol

Title: Re: Brewcrew hospitalized for DHE treatment
Post by chewy on Aug 7^th, 2006, 8:40pm

DHE IV has been my savior in the past and it will be Brew's this time.

Hang in there!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by broomhilda on Aug 7^th, 2006, 8:43pm

:'( I am so sorry to hear this but got my fingers crossed this will give him the break he deserves...

Hugs and more on over

Andrea

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Lizzie2 on Aug 7^th, 2006, 8:45pm

PF wishes and vibes to him - hope he's feeling better soon! DHE does work wonders...

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Tom K on Aug 7^th, 2006, 8:57pm

Hang in there, Bro. Things will break and get better in no time at all. Vibes sent!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by E-Double on Aug 7^th, 2006, 9:08pm

Kick ass!!!!!!!!!!!!

Let it have a longgggggggggggg vacation

Title: Re: Brewcrew hospitalized for DHE treatment
Post by nani on Aug 7^th, 2006, 9:18pm

Aw, sweetie... hopefully he'll get a quick and long break. Let him know how much we're thinking of him, and you, and the kids. Sending major vibage and lots of prayers.
hugs, nani

Title: Re: Brewcrew hospitalized for DHE treatment
Post by alchemy on Aug 7^th, 2006, 9:21pm

Hoping all of you get relief soon. Sending pf vibes

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Charlotte on Aug 7^th, 2006, 9:30pm

wow. murphys' law. I hope he gets his iv soon and some food soon. Hang in there. I wish there were some instruction cards you could just give medical staff or that medical staff had a site they could get to on the internet.

I know what I'd really like to say is harsh, so instead I'll say that it seems like medical personnel would have resources that would provide a clue instead letting him continue to suffer.

Charlotte

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Mosaicwench on Aug 7^th, 2006, 9:45pm

Aw guys . . .you made me cry. Been feeling like it all day and just cut loose when I read your well wishes.

I will indeed print these out and take them to him daily - he will be strengthened by them as I am.

Looks like he'll be in until Thursday night and Friday. Sorry Helen, but he REALLLLLLY wants to get out before Friday's lunch special of Shepherd's pie . . . .

He's now got the IV in but is waiting for the DHE to come up from the pharmacy. They finally fed him and I got him a good strong cup of non-hospital coffee on the trip back(at least there are no dietary restrictions so we can bring him whatever he craves).

He's doing as well as he can but has been hit a few more times since he was admitted - just smallish ones, but still hits.

Thank you ALL for the support - it means the world to us. You are indeed an amazing group of folks and we're honored to be a part of you.

Will post when I know more.

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Kevin_M on Aug 7^th, 2006, 9:48pm

Hoping the best very soon for you Bill.

Title: Re: Brewcrew hospitalized for DHE treatment
Post by lionsound on Aug 7^th, 2006, 9:53pm

Bill,

We are all cheering for YOU!!!!!! (not the beast)

PF's on the way!

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Charlie on Aug 7^th, 2006, 9:53pm

Rats.

Sorry about this but here's some vibes hoping that he gets around this thing like soon. http://www.clusterheadaches.com/public_html/yabbimages/smileys/hug.gif

Charlie

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Sean_C on Aug 7^th, 2006, 10:01pm

The beast can win battles but never wars ;;D Kick his punk asss bud ;;D

Hang tough ;)

Sean.......................................

Title: Re: Brewcrew hospitalized for DHE treatment
Post by unsolved1 on Aug 7^th, 2006, 10:45pm

Ahhh ... finally something I know ~~a little~~ ALOT about ! I do DHE every couple of weeks ! It always helps (for awhile). Kinna wondering what kind of dosage they are giving him. [smiley=huh.gif] I always do ¹/₂mg (diluted) every 6 hours until I get a total of 6mg. I always do Phenegren with it. (12.5mg).

[[Goodluck Brew ! ]]

PF Wishes (Kick the beast to the curb!)

UNsolved

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Jimi on Aug 7^th, 2006, 11:17pm

I sure hope it works for you bro. :-/

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Gator on Aug 8^th, 2006, 1:36am

Beast killing vibes from the CajOkie contingency. ;;D

Title: Re: Brewcrew hospitalized for DHE treatment
Post by The mad viking on Aug 8^th, 2006, 1:38am

I sure hope it works for you bro

Title: Re: Brewcrew hospitalized for DHE treatment
Post by fubar on Aug 8^th, 2006, 2:00am

I don't know how many of you have had this treatment, but I just got out of the hospital in San Luis Obispo where they gave me the treatment for 4 days. Didn't help much for me, I had many breakthrough headaches at the hospital. The DHE is like battery acid in the veins... it literally blew up my vein in both arms. I had huge bruises for 2 weeks afterward. I know it helps some people, so I hope this works for brewmeister. I totally skipped the anti-nausea dose. The DHE didn't make me sick, and waiting for both drugs was stupid when it didn't make any difference for me. The less drugs, the better.

-Fu

Title: Re: Brewcrew hospitalized for DHE treatment
Post by Carl1958 on Aug 8^th, 2006, 2:07am

Hello Fubar, I've had this kicking around for some time.
I thought you might find it interesting.

Take care.
CArl. 8)

The following is the abstract taken from: Oliver RL. DHE: An old drug made new. Amer J Pain Mgmt 1999; 9:35-38.

Dihydroergotamine (DHE) has been available for over 50 years for the abortion of migraine and prior to that, there was ergotamine tartrate, a similar medicine but one with more adverse effects. In recent years, additional methods of administration have made DHE more usable. Each form (intravenous, intramuscular, subcutaneous, and intranasal) has advantages and disadvantages. Intravenous administration is considered to be the best way to treat chronic daily headache and status post migranosus, inpatient or outpatient. Intramuscular and subcutaneous administration of DHE are the best ways to get quick headache relief without requiring the patient to be hospitalized, in most cases.

Intranasal (nasal spray) is the most patient-friendly route of administration and is often as efficacious as the other forms of DHE, while still being as effective and safe for abortion of migraine as new medications currently being marketed. Whatever the administration form, dihydroergotamine has proven to still be an effective agent for the abortion of migraine.

Title: Re: Brewcrew hospitalized for DHE treatment
Post by sandie99 on Aug 8^th, 2006, 2:53am

Vibes & prayers are on their way for the both of you! I hope that the treatment is soon on its way and that it works.

Best wishes & [smiley=hug.gif]s,
Sanna

Title: Re: Brewcrew hospitalized for DHE treatment
Post by unsolved1 on Aug 8^th, 2006, 3:06am

on 08/08/06 at 02:00:17, fubar wrote:

The DHE is like battery acid in the veins... it literally blew up my vein in both arms. I had huge bruises for 2 weeks afterward.

Sorry to hear that it hurt rather than helped you Fubar. But I just wanted to say that I have never had DHE burn or hurt my veins at all. Never had bruises from the drug either. (and like I said before ... I've done ALOT of DHE. I'd even go as far as to say I'd 'bet the farm' that I've had more DHE than anyone else on the boards) It will make me sick though ... so I have to have Phenegren with it and I prefer my DHE doses diluted with normal saline.
DHE is probably the most powerful vasoconstrictor that we can use. It should help for most cases of clusters (at least temporarly).

PF Wishes

UNsolved

Title: Re: Brewcrew hospitalized for DHE treatment
Post by BarbaraD on Aug 8^th, 2006, 5:36am

on 08/08/06 at 03:06:12, unsolved1 wrote:

I'll take the bet on who's had the MOST DHE. ;)

It usually works to break a cycle (or get releif if you're chronic). But I've always taken it with phenergan (IM or IV).

Once I had it burn my viens (My doc, bless his heart, gave it to me too fast -- this stuff has to be given SLOWLY). But it does feel like battery acid (especially if you give it IM).

Just tell Brew to ASK what they're giving him BEFORE they give it to him. One nurse didn't know what she was doing on me and MIXED DHE and Reglin (sp) -- a lethal dose. She got very upset when I knocked her across the room before she could put that in my IV. I was a little upset and told her to check with the pharmacy about HOW to give it. After I got thru screaming at her, I called my neuro and screamed at him - he was about as upset as I was. Think she knows how to give DHE now.

The correct way to give it is to give the anti-nauseau med first, then saline and then the DHE and more saline. But it needs to be given slowly.

Give Brew a hug for me and tell him he's going to be all better real soon.

Hugs BD

Title: Re: Brewcrew hospitalized for DHE treatment
Post by chewy on Aug 8^th, 2006, 5:45am

Dont want to give false hope but.

My last inpatient DHE was 4 years ago and I have been cycle free ever since. It broke a 9 month cycle of 6-10 hits per day.

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by kimmiedawn81 on Aug 8^th, 2006, 9:23am

Please get better Brewcrew.....better times are ahead!

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by Tim_w on Aug 8^th, 2006, 9:26am

Brew
My thoughts and prayers are with you and yours
praying you get some much needed PF time!!!
TimW Happy pappy

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by rickyshot on Aug 8^th, 2006, 9:41am

Awww Brew. Send him my love. He picked me up and drove me back to the airport. Tell him Ricky said Hey.

I have been in ER countless of times, and hospitalized two times in the last two years and DHE was a godsend to me. So much so that my neuro lets me inject myself when I start getting into chronic trouble. I have had it with solumedrol also when in hospital.

The self administered injections do burn like hell but that is nothing next to a kip 9. I do not get nauseauted like some others but phenergan is available for those who do. I have had a couple of breakthrough headaches after dosing is finished but then months of PF times which are like gold to me. But I do hear it is a powerful drug so I do a liver cleanse after a course. I recommend that. I know some folk do not believe in natural stuff here but I do.

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by LadyLuv on Aug 8^th, 2006, 2:29pm

[smiley=hug.gif] [smiley=hug.gif]

Send Prayers up for both you and Brew...

LL

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by BobG on Aug 8^th, 2006, 2:38pm

Thoughts and prayers are being sent from our home to yours.

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by wildhaus on Aug 8^th, 2006, 2:53pm

Hope Brew and You get some relief,
Keeping you two in our thoughts

Marta & Michael
(Wildhaus & wildhaus_wife)

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by Ghost on Aug 8^th, 2006, 3:34pm

Sorry so Late HOPE the Vibes Help.

Mike

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by unsolved1 on Aug 8^th, 2006, 5:39pm

Barb brings up some good points. All of us should ask the nurse to tell us exactly what they are about to give us before they give it to us. Nurses DO make mistakes to. I just recently almost had a nurse give me 3mg of Imitrex via IV :o I stopped her quickly and said "NO...NO...NEVER...NEVER....EVER !!" (she was a foriegner that barely spoke English). She got the point and corrected it quickly.

I also agree that DHE should always be given slowly ( it should take at least 2 minutes to administer ). Problem with that is : It is hard to give a 1mg dose of DHE so slowly since there is barely any medicine in the needle. That's why I always get mine diluted in normal saline. Makes for any easier, slow 'push' and is easier on the stomach.

The DHE has never 'burnt' me .... it's the Phenegren that's the vein killer! Phenegren will sometimes leave streaks on my arm and usually always burns like a MOFO!

Tell em' to dilute that DHE brewsky ! Tell em' " GO SLOW" too! Goodluck & WE hope it's helping (alot)

PF Wishes

UNsolved

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by Linda_Howell on Aug 8^th, 2006, 5:43pm

Please tell Bill I tried to send him some frozen custard, but it melted before I could get it in the pkg.

He'll know what I'm talking about. ;)

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by superhawk2300 on Aug 9^th, 2006, 9:01am

<<<<<<<<<<- Sending PF thoughts ->>>>>>>>>>>>

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by cootie on Aug 9^th, 2006, 12:36pm

Seriously hopein this treatment WORKES and he is PF for a LONG ASS TIME........and I do mean LONG TIME relief Pam

I hate hospitals...............

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by tanner on Aug 9^th, 2006, 1:22pm

Brew I know how bad you must hace been to go inpatient and try this! I am hoping and praying that you mimic Chewy's results and get a great long break from the beast.

...Kick his Ass.....Tim

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by Carl_D on Aug 9^th, 2006, 2:25pm

Damn bro, SIX HOURS? The longest attack I ever had was 4 hours, and I was convinced I would die before it ended.

I don't have much luck with the DHE, and the last time I spent a week in the hospital with the IV, and two days after I got out of the hospital was getting hit again, and was sick for two weeks, had the bruised vessesls, etc.

I hope this knock it out for you bro, and that you NEVER have another attack last that long again. I'm sending all the PF vibes I can muster, so keep hanging tough and stay hard!

Peace,
Carl D

Title: Re: (updated 8/8) Brewcrew hospitalized
Post by Mosaicwench on Aug 9^th, 2006, 11:01pm

Brew should be able to come home tomorrow late afternoon . . YEAH!

He's had a few shadows but nothing a toot of oxygen didn't abort.

He's cranky cuz he's bored, and hasn't smoked since Monday, and because he says the food sucks (we've snuck him snacks and a lunch and a dinner).

I'm thrilled he can come home and that he's tolerated this so well. I pray with all my might that it gives him some long term relief . . .

Thanks for all your support - the next update will come from him.

Title: Re: (updated 8/9) Brewcrew hospitalized
Post by Melissa on Aug 9^th, 2006, 11:08pm

Wonderful news! I hope that the treatment sticks!

:)mel

Title: Re: (updated 8/9) Brewcrew hospitalized
Post by TxBasslady on Aug 9^th, 2006, 11:15pm

YEEHAW!! Vibes to the Brewcrewster !!

Much love,

Jean

Title: Re: (updated 8/9) Brewcrew hospitalized
Post by georgej on Aug 10^th, 2006, 12:15am

Great News!

Hope to see Brew back soon. PF, brand-spankin' new, and rarin' to go.

Best wishes,

George

Title: Re: (updated 8/9) Brewcrew hospitalized
Post by kcopelin on Aug 10^th, 2006, 2:14am

Here's wishing and praying that this does the trick Brew! Let us know okay?
PFDAN
kathy

Title: Re: (updated 8/9) Brewcrew hospitalized
Post by chewy on Aug 10^th, 2006, 8:27am

What meds will he be on post DHE?

Title: Re: (updated 8/9) Brewcrew hospitalized
Post by imnotbub on Aug 10^th, 2006, 9:33am

If he hasn't smoked since Monday, tell him he's got it licked and to quit.

Good thoughts to you Brew man.

Steve