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        New Message Board Archives >> 2006 General Board Posts >> Never wish your life away....
        
(Message started by: jimmers on Aug 4^th, 2006, 7:34pm)

Title: Never wish your life away....
Post by jimmers on Aug 4^th, 2006, 7:34pm

Whenever I said "I can't wait for this, or I can't wait for that" my Grandmother would always say"Don't wish your life away" I understand her thinking but, if getting older means (Like they say) that these friggen HA'S will go away! I want to be older. PFDAN to ALL!

Done venting now,

Jimmers

Title: Re: Never wish your life away....
Post by tanner on Aug 4^th, 2006, 8:18pm

Jimmers, ironic that you should post this just now. My Linda and I just finished having an argument about this very thought. She feels that I am hiding away, becoming a recluse and spending most of my time wishing that this day would end so that I can make it to the next day and wish that that day will end!

She is not entirely wrong. I just can't stand the constancy off this shit and even when I am shadowing I am always waiting for the next big one. I took a big chance and drove myself to that Patriot Guard mission the other day and almost didn't make it home in one piece. I am paranoid to get too far away from my hiding place (home) and am getting to the point where making it to Doctors appointments is scaring the hell out of me. I feel like I am sinking into a hole where nothing but the beast exsists.

Done whining now. Lin is going to do the driving this weekend so I can at least get away and be with people who have seen me get slammed before and just knowing that is making tonight easier to handle.

Sorry I didn't mean to steal your vent and I wish you PF time with all my heart. Tim

Title: Re: Never wish your life away....
Post by jimmers on Aug 4^th, 2006, 8:46pm

Tim,

You didn't steal my vent. And you do not ever have to apologize to me! We are Family! I got no warnings, just a smack in the eyeball. Don't worry though, I'm gonna smack his ass back harder.

Seeya,

Jimmers

Title: Re: Never wish your life away....
Post by thebbz on Aug 4^th, 2006, 9:07pm

I felt ashamed walking my o2 bottle down the street, trying to alieve the shadow going on. >:(
Trex: dont leave home without it.
"Ya have to strut your stuff", Eddy Murphy [smiley=laugh.gif]
Get out and go for it Tanner
I went to a meet and greet (the first one) draggin an O2 bottle with 7 refills...for the weekend. I figured I could always flop in the car. And dont forget the dope bag. lol
all the best
jb

Title: Re: Never wish your life away....
Post by Cathi04 on Aug 4^th, 2006, 9:40pm

Hey, John! You BET you brought your 02 with you.and Linda had hers, and .HEYYYYY>>>.where's Scott been??? He's sposed to be checking in!.....at any rate, Tanner, I KNOW you know this... live is what ya live when you're NOT getting hit......

For all those who are dancing, or afraid to rest........I send you hugs and vibes and fervent wishes that tonight's NOT the night you dread........
As Tim always says, each night, sweet dreams, and PF wishes to all......... :)
Cathi

Title: Re: Never wish your life away....
Post by DonnaHar on Aug 4^th, 2006, 9:52pm

When I read posts like this, it makes me so sad and really mad that ch'ers have to go through life worring about the "next hit".

Take it from an "older woman" and ex-ch'er, guys.....grandma was right. You must not wish your life away. You have to plan ahead for just about everything that happens in life including that next hit.

I once wished that an event scheduled for July would get here fast because I was tired of waiting. Well, it happened in April and turned out tragically, and I'll never wish ahead again.

You'll get older fast enough, and for now, you must find the "in betweens" to enjoy life. Being a passanger instead of the driver is a good start.

Our familys really don't mind being our supporters, they love us and want to help all they can. When we have our good moments, we should be sure to share those moments with them as well by doing something light hearted together.

I was lucky to have been an episodic sufferer and my hits usually came twice a day.....one almost always being in the middle of the night, so I didn't have many sneak attacks. As a single parent of three tiny kids, I don't know how I would have made it had I been chronic, or had more hits per day when in cycle.

I'm sorry you are going through these feelings and pain. It stinks!

Hugs and prayers,
Donna H.

Title: Re: Never wish your life away....
Post by stevegeebe on Aug 4^th, 2006, 10:04pm

Listen to your Grandma.

As hard as it is, try to live in the in the in-betweens. The relentlessness can be overwhelming.

Pick up you feet and raise your head.

Don't let it steal your time.

Steve G

Title: Re: Never wish your life away....
Post by TxBasslady on Aug 5^th, 2006, 2:22am

Jimmers,

Bless your heart.

This pain is tough, sweetie. When one of our brothers & sisters are in pain, it breaks our heart.

This family has super powers..... But you already knew that, didn't you?

I hope you can feel the vibes...thoughts...prayers and love headed your way.

Keep these thoughts close....and never forget what your Grandma said.

We're here.....call on us anytime you need, sweetie.

Much love to you.... :-*

Jean

Title: Re: Never wish your life away....
Post by Yorky on Aug 5^th, 2006, 2:42am

on 08/04/06 at 19:34:49, jimmers wrote:

my nan used to say,look after your teeth
(but her's wre in a glass of water,at the side of her bed?

Title: Re: Never wish your life away....
Post by burnt-toast on Aug 5^th, 2006, 5:23am

on 08/04/06 at 20:46:47, jimmers wrote:

Tim,

I got no warnings, just a smack in the eyeball. Don't worry though, I'm gonna smack his ass back harder.

Seeya,

Jimmers

Jimmers,

I hope this isn't what happens to everyone after they give me some help. As you've reminded me - remember to keep kicking its ass.

Take care of yourself and thanks again for helping me. You're right, this is a family that cares and understands.

Let's wish for an oddball hit and that things settle right back down for you.

Best wishes,

Tom

Title: Re: Never wish your life away....
Post by sandie99 on Aug 6^th, 2006, 9:52am

Great thread. :)

While I was picking berries at my uncles' farm, I had the time to think about my life with ch.

I've decided that I've allowed it to get to me bit too much lately. So, I've made a promise to myself that this time next year I have not only finished my dissertation but also found myself a job in my field. Come cycle, come hits, I have my goals to reach.

Lots of vibes & prayers to everyone who is in cycle or otherwise getting hit. [smiley=hug.gif]

Best wishes,
Sanna

Title: Re: Never wish your life away....
Post by ClusterChuck on Aug 6^th, 2006, 10:42pm

As most of you know, I get get a lot, 8 to 12 times a day, 19 in one 24 hour period is my record. I am also chronic. If I hadn't found this site, I would be pushing up daiseys now.

Probably the BEST advice that I was ever given, here, and that I follow, is not to focus on the hits, but dwell on the "in-between" times! Live your life to the fullest, in the PF times. deal with the hits, but once it is done, move on to enjoying life to the fullest while PF.

I work hard, I get hit hard, but most of all, I PLAY HARD while PF.

Laugh, play, ENJOY, and be thankful for that PF time, regardless as to how short or long that time may be!

YOU rule your life!!! DON'T let the beast get the upper hand in your life!! You CAN do it! If this pansey wuss can do it, so can you!

(Getting off soap-box, now)

Chuck

(Just wishing I could get hit MORE, if that meant the rest of you wouldn't ever get any more...)

Title: Re: Never wish your life away....
Post by Ree on Aug 6^th, 2006, 11:52pm

You are all the most courageous people I have ever had the pleasure to know in all my life. I am so proud to have this group among my close friends. You just keep on keepin on and I think its wonderful. NO MATTER HOW! I'm sure you get discouraged, I know Dave does. It is very important to find the inbetween time as Chuck says. Just live... and don't let the beast take that away. love to you Ree

Title: Re: Never wish your life away....
Post by Sandy_C on Aug 7^th, 2006, 1:42pm

on 08/06/06 at 22:42:26, ClusterChuck wrote:

Laugh, play, ENJOY, and be thankful for that PF time, regardless as to how short or long that time may be!

Chuck

Chuck just gave all of us the key to the city - the key to living with CH. Learn it, memorize it, and LIVE it every day of your life. Plan for the hits, but do what you want to to do. Every day - life it short enough as it is. Make the most of it. Just LIVE!

Sandy