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        New Message Board Archives >> 2006 General Board Posts >> Venting yes again!
        
(Message started by: Mattrf on Aug 2^nd, 2006, 10:23am)

Title: Venting yes again!
Post by Mattrf on Aug 2^nd, 2006, 10:23am

OK not a CH sufferer most of you know I have SUNCT, I am just pissed my quality of life is just dumping fast, my doctor every time I see him is harping on me to get off the pain meds but they are the only thing that keeps me sane right now. When I started seeing him I was up to 12 Tylenol #4 a day and I have dropped to about 6 a day but I am suffering most of that time. I know if I don’t do what he says he is going to cut me off then I will have to deal with this with no help or relief and that scares the hell out of me.
I went home from work yesterday, climbed into bed and did not get out until this morning, there’s some quality of life. I am pretty sure my neurologist told him I was drug seeking, he has been on me since I started seeing him to get off the pain meds, this just sucks, I just can’t cope with this without help and at the level I am at now with the meds it is just not enough to help much, my family is afraid I could hurt myself, I have promised that I would never do that to them but ion the back of my mind I am not to sure it is a promise I would be able to keep if I was cut of from the only thing that helps me.
The new medicine he put me on seemed to be helping but then stopped so he upped the amount and it seemed to help again but now is dropping off again, and he is still trying to get me to go to the Mayo Clinic in Scottsdale to talk to a guy about possible surgery to fix this, but that is not an option I am ready to talk about yet but I also know that it may be something I might have to consider if this goes chronic, I can’t live like this, it is everything I can do to just get through another day, my wife is scared my older daughter is petrified of what I am going through, my wife is so stressed out that she has taken to drinking every night to help her deal with the stress and the fear, this is taking a huge toll on my family, I have stopped talking to my dad and my sister over there lack of concern and treatment of me, this daemon sure knows how to hit you where it hurts and to maximize the damage.
Sorry for the long rant but you guys are the only ones who understand.

Matt

Scott pointed out that it seemed like I was pushing away my family, so I want to clarify that it is just my sister and my dad that don’t seem to get it, my mom, step-sister and sister –in-law and my in-laws have been very supportive and do get it and understand.
Scott thanks for the PM and the concern I appreciate it bud.