Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2006 General Board Posts >> how do you balance your lives?
        
(Message started by: Yorky on Jul 19th, 2006, 6:09pm)
Title: how do you balance your lives?
Post by Yorky on Jul 19th, 2006, 6:09pm
i.e WORK,FAMILY,SLEEP(OR LACK OF,DISRUPTION,BILLS,EVERY DAY PROBLEMS,STRESS(will the beast come),mortgage.....etc
personally im a builder (not good falling asleep on scaffolding,but need to work(not done much of late)
stress or panic (will the chemist have my medic),
seems to turn my shadow into ammediate attack
     

      JUST GOT ME WONDERING HOW YOU FANTASTIC LOT MANAGE YOUR LIFESTYLES ;)
  PS. PLEASE LET ME KNOW /AND GOOD LUCK
Title: Re: how do you balance your lives?
Post by Jonny on Jul 19th, 2006, 6:10pm
One day at a time.
Title: Re: how do you balance your lives?
Post by JeffB on Jul 19th, 2006, 6:17pm
Take it as it comes, deal with whatever pops up and move on.
Oh yeah, I've been known to drink alot, when that happens I have absolutely no balance and usually fall over. ;;D
Title: Re: how do you balance your lives?
Post by NONI on Jul 19th, 2006, 6:22pm
Drink

If only I could forgetting what that is haha!!!

Thia is only my second cycle and its my first diagnosed cycle,,i have missed a week and a half of work,,seems to be coming out of cycle though hits are not as hard at night now and last about 30-45 min..better than the 2-3 hrs from  a week or so ago...but hopefully now can catch up on sleep lol  ;;D       ;;D ;;D


Noni

We never know what tomorrow will bring........
Title: Re: how do you balance your lives?
Post by Jonny on Jul 19th, 2006, 6:24pm

on 07/19/06 at 18:22:07, NONI wrote:
We never know what tomorrow will bring........


Excelent quote!
Title: Re: how do you balance your lives?
Post by NONI on Jul 19th, 2006, 6:27pm
Hey Johnny How about


What a pain in the .................................EYE!!!!!!
Title: Re: how do you balance your lives?
Post by Richr8 on Jul 19th, 2006, 6:32pm
Easy.  Six months to the beast, and six not worrying about it much. Actually, only three to four to the beast, however, I'm working real hard on a faster recovery period and figuring out a way to function normally in cycle.  Many here have demonstraed that ability, so I'm gonna have a go at it.  Of course, that's easy to say out of cycle..   :)
Title: Re: how do you balance your lives?
Post by Yorky on Jul 19th, 2006, 6:33pm

on 07/19/06 at 18:17:38, JeffB wrote:
Take it as it comes, deal with whatever pops up and move on.
Oh yeah, I've been known to drink alot, when that happens I have absolutely no balance and usually fall over. ;;D


SOMETIMES GO FOR GOLD WITH BEAR TO TRY TO SLEEP(NOT MUCH OF A DRINKER)BUT BY 3 AM JUST FEEL SOBER ALSO ON NITRAZIPAM 5MG 4 ANITE JUST FEEL MORE AWAKE ....THEN WORK....IN ABAD 5 WEEK CYCLE
YORKY....... GOOD LUCK
Title: Re: how do you balance your lives?
Post by Jonny on Jul 19th, 2006, 6:55pm

on 07/19/06 at 18:22:07, NONI wrote:
We never know what tomorrow will bring........


Noni,

The reason I say it was an excelent quote is because I was chronic for 30 years, and 13 months ago they just stopped cold. I have had only one HA in 13 months.

Can I use your quote under my flag?
Title: Re: how do you balance your lives?
Post by Richr8 on Jul 19th, 2006, 6:58pm

on 07/19/06 at 18:55:42, Jonny wrote:
Can I use your quote under my flag?


It's been under mine from day one. Don't mind sharing though.   ;)
Title: Re: how do you balance your lives?
Post by Jonny on Jul 19th, 2006, 7:00pm

on 07/19/06 at 18:58:43, Richr8 wrote:
It's been under mine from day one. Don't mind sharing though.   ;)


LMMFAO, Dude!! ;;D
Title: Re: how do you balance your lives?
Post by JeffB on Jul 19th, 2006, 7:01pm
I don't even think about beer or anything like that during a cycle. As a matter of fact history says I should in one right now and since I'm not and the kids with the ex, I'm at the Elephant Bar most nights. It's not easy being single. ;;D
Title: Re: how do you balance your lives?
Post by Yorky on Jul 19th, 2006, 7:03pm

on 07/19/06 at 18:55:42, Jonny wrote:
Noni,

The reason I say it was an excelent quote is because I was chronic for 30 years, and 13 months ago they just stopped cold. I have had only one HA in 13 months.

Can I use your quote under my flag?

OF COARSE YOU CAN DEAR   YORKY
   GOOD LUCK  
Title: Re: how do you balance your lives?
Post by Charlie on Jul 19th, 2006, 9:28pm
Well:

When I was getting hit, I didn't balance it but then I didn't have a traditional family. I was doing lots of antique and collectible shows at the time such as Brimfield, MA even. The thing is that my partner was a retired teacher of nursing at a NYS hospital and knew a lot about clusters. It made things a lot easier.  

I miss Dave. What an incredible slob he was too. http://smiles.ru/coll/pain/pain24.gif?SSImageQuality=Full

Charlie
Title: Re: how do you balance your lives?
Post by Yorky on Jul 22nd, 2006, 5:39pm

on 07/19/06 at 21:28:46, Charlie wrote:
Well:

When I was getting hit, I didn't balance it but then I didn't have a traditional family. I was doing lots of antique and collectible shows at the time such as Brimfield, MA even. The thing is that my partner was a retired teacher of nursing at a NYS hospital and knew a lot about clusters. It made things a lot easier.  

I miss Dave. What an incredible slob he was too. http://smiles.ru/coll/pain/pain24.gif?SSImageQuality=Full

Charlie




wat do you mean a slob(lazy,....or just a contented man stuck in his ways
Title: Re: how do you balance your lives?
Post by Charlie on Jul 22nd, 2006, 11:15pm
He was Oscar Madison.

Here is a guy who taught mostly psychiatric nursing before he retired (What an idiot. If he hung on back then, he could have had a tier 1 NYS pension....)

Anyway, hygiene wasn't the problem but he was a clutterer and never cleaned up after himself. The first thing he said to me as I entered his 7 room apartment, not far from Utica Club Brewery, was: "Don't step on the paintings." He had art, glass, paper, guns, china, and you-name-it piled all over the place..... He did have black water in the kitchen sink until I moved in. http://subscribe.smileygenerator.us/new/albums//multitasking.gif?SSImageQuality=Full

Seeing this was a revelation to a kid that grew up in a Swedish household. It was fun. I wouldn't have missed that experience for the world. I met some weird and frankly dangerous types thanks to whatever criminal activity Dave was engaged in. Too bad he died at 62. What a loss. He was a walking encyclopedia.

Charlie
Title: Re: how do you balance your lives?
Post by TxBasslady on Jul 22nd, 2006, 11:19pm

on 07/19/06 at 18:10:51, Jonny wrote:
One day at a time.


This is how it is for me.   My CH is random, no kind of cycle.  I stay prepared.

I really try to never worry about the next.  If I think about it, it'll drive me nuts.

Jean
Title: Re: how do you balance your lives?
Post by georgej on Jul 23rd, 2006, 12:39am
My cycle has always been as predictable as sunrise and sunset.  I plan for when it's coming, withdraw from my responsibilities as much as I can until it's over, then extend my psychological pseudopods out into the world again.  

Life's for living--CH is only a part of it, and I control it.  I don't allow it to control me.

Bit by bit, as others have said, a day at a time....

Best,

George
Title: Re: how do you balance your lives?
Post by Yorky on Jul 23rd, 2006, 2:56am

on 07/23/06 at 00:39:48, georgej wrote:
My cycle has always been as predictable as sunrise and sunset.  I plan for when it's coming, withdraw from my responsibilities as much as I can until it's over, then extend my psychological pseudopods out into the world again.  

Life's for living--CH is only a part of it, and I control it.  I don't allow it to control me.

Bit by bit, as others have said, a day at a time....

Best,

George


phew///george(my middle name)
but wat the frk is a pseudopod?
my iq is equivallent to a goldfish
Title: Re: how do you balance your lives?
Post by ClusterChuck on Jul 23rd, 2006, 3:44am
Ok, maybe because I am chronic, but I REFUSE to let the beast control my life!!!  I DON'T back away from things, just because I know I am going to get hit!  I REFUSE to give him that sort of power over me!

I try to ignore the hits, but BETWEEN them!!  WooHoo!!!  I try to live life to the fullest!!!  I work hard, I play hard, I party hard!!!  SCREW the beast!!!  He WILL NOT control my life!

Yes, I get hit a lot, and get hit hard, but DAMNIT, I control my life!

Chuck
Title: Re: how do you balance your lives?
Post by wildhaus on Jul 23rd, 2006, 4:14am

how do you balance your lives - I dont.  it is balanced.....

ClusterChuck Posted  
I try to live life to the fullest!!!  
I control my life!

can not put it better........

Michael
Title: Re: how do you balance your lives?
Post by georgej on Jul 23rd, 2006, 8:36am

on 07/23/06 at 02:56:57, Yorky wrote:
phew///george(my middle name)
but wat the frk is a pseudopod?


Great choice your parents made in choosing your middle name!

;)

Pseudopod="False Foot".  An amoeba moves around or extends into other territory by blorping part of itself one way or another.  

Just playing around with metaphors.....my kid says I do that too much.    
:P

George
Title: Re: how do you balance your lives?
Post by Yorky on Jul 23rd, 2006, 12:00pm

on 07/23/06 at 08:36:19, georgej wrote:
Great choice your parents made in choosing your middle name!

;)

Pseudopod="False Foot".  An amoeba moves around or extends into other territory by blorping part of itself one way or another.  

Just playing around with metaphors.....my kid says I do that too much.    
:P

George


now i am lost?????hope your kid understands you(amoeba,blorping,metaphors)
uneducated over the pond person?

hope everything works out for you(and your cleva kid)
Title: Re: how do you balance your lives?
Post by starlight on Jul 23rd, 2006, 12:23pm
Yorky,

I hope these headaches leave you soon.  Frankly, I was not much good at "balancing" my life during these cycles.  I had a lot of untreated bad cycles...as they became worse I did lose some jobs, etc.  But I have also accomplished a lot in my life...graduated cum laude from college even with yearly cycles (during the school year)--I had to write my papers and read my books and go to class on no sleep and I mean no sleep--I consider that an accomplishment.  Look at what you have and can and do accomplish (rather than what you haven't) even if it is "just" finding some enjoyment the next day (I remember being in the middle of those hard freaking hits--it sucks) that is an accomplishment when these things are full-blast.  Basically in these cycles sometimes you win some and come out on top and sometimes you don't--I hate to simplify it like that but I have had these for 18 years--this is the first year I have had helpful treatment (melatonin)--and that is how it has been for me.  Keep trying to find efficient treatment--I had given up hope long ago--now suddenly I found something that so far is helping me to reduce hits and intensity.  You have to be tough to get through these--these headaches give you no choice.  And please tell me that you have a good neurologist Yorky.  I hope you get relief soon.  Take care Yorky.

Starlight
Title: Re: how do you balance your lives?
Post by Yorky on Jul 23rd, 2006, 12:37pm

on 07/23/06 at 12:23:02, starlight wrote:
Yorky,

I hope these headaches leave you soon.  Frankly, I was not much good at "balancing" my life during these cycles.  I had a lot of untreated bad cycles...as they became worse I did lose some jobs, etc.  But I have also accomplished a lot in my life...graduated cum laude from college even with yearly cycles (during the school year)--I had to write my papers and read my books and go to class on no sleep and I mean no sleep--I consider that an accomplishment.  Look at what you have and can and do accomplish (rather than what you haven't) even if it is "just" finding some enjoyment the next day (I remember being in the middle of those hard freaking hits--it sucks) that is an accomplishment when these things are full-blast.  Basically in these cycles sometimes you win some and come out on top and sometimes you don't--I hate to simplify it like that but I have had these for 18 years--this is the first year I have had helpful treatment (melatonin)--and that is how it has been for me.  Keep trying to find efficient treatment--I had given up hope long ago--now suddenly I found something that so far is helping me to reduce hits and intensity.  You have to be tough to get through these--these headaches give you no choice.  And please tell me that you have a good neurologist Yorky.  I hope you get relief soon.  Take care Yorky.

Starlight




saw neuro 2/3 years ago but were lucking in the lines of blood clots /facail nerve/retana etc .....now waiting for letter from neuro (new patient ha ha)6 weeks still no letter......but doc asked me to educate him/hed neva had a clusty.
took the letter(the one to employees...(cheers roy21302)
now gives me wat i ask for this weeks drug is going to be ??i would like to try ...frovatriptan
Title: Re: how do you balance your lives?
Post by starlight on Jul 23rd, 2006, 12:52pm
Yorky,

Good luck to you with the doc--just as well some of the neuros don't know what they are talking about...what are you on now???  
That kudzo thing sounds interesting to me.  Maybe you could try that?  Or melatonin?  And get oxygen???  just suggestions.  We are all here for you.
Let us know how you are, Starlight
Title: Re: how do you balance your lives?
Post by Yorky on Jul 23rd, 2006, 2:36pm

on 07/23/06 at 12:52:09, starlight wrote:
Yorky,

Good luck to you with the doc--just as well some of the neuros don't know what they are talking about...what are you on now???  
That kudzo thing sounds interesting to me.  Maybe you could try that?  Or melatonin?  And get oxygen???  just suggestions.  We are all here for you.
Let us know how you are, Starlight

 my medication is ass follows/...6mg injector of sumatryptan (2 a day)240mg of securon(think its vrpmil)waiting for lidacane nasal spray,also as many nitrazapam (5mg)as i can eat a day?
Title: Yorky
Post by starlight on Jul 23rd, 2006, 3:55pm
Yorky,

I am definitely no doctor, but I would recommend getting oxygen (I don't know if you guys over there need a prescription but if you do just ask your regular doc for one).  Oxygen will most likely help you--it will greatly improve your quality of life.  
Also make sure you are on the right amount of Verapamil.  Also maybe you can ask your doctor if you can try kudzo (although you don't need a prescription for it).  Also people are talking about CoQ10.  Yorky I know how frustrating it is.  I am sure others might know other ideas.  Melatonin has helped me so much but damn I just remembered I don't know if you guys can buy that over there...that is so strange.  Maybe Try Kudzo, or CoQ10???  Thinking of you and wishing you PFDAN,
Starlight
Title: Re: Yorky
Post by Yorky on Jul 23rd, 2006, 4:47pm

on 07/23/06 at 15:55:01, starlight wrote:
Yorky,

I am definitely no doctor, but I would recommend getting oxygen (I don't know if you guys over there need a prescription but if you do just ask your regular doc for one).  Oxygen will most likely help you--it will greatly improve your quality of life.  
Also make sure you are on the right amount of Verapamil.  Also maybe you can ask your doctor if you can try kudzo (although you don't need a prescription for it).  Also people are talking about CoQ10.  Yorky I know how frustrating it is.  I am sure others might know other ideas.  Melatonin has helped me so much but damn I just remembered I don't know if you guys can buy that over there...that is so strange.  Maybe Try Kudzo, or CoQ10???  Thinking of you and wishing you PFDAN,
Starlight


sorry i forgot to mention my oxygen/plenty of supply
Title: Re: how do you balance your lives?
Post by Carl_D on Jul 23rd, 2006, 8:07pm
SSDD
Title: Re: how do you balance your lives?
Post by Yorky on Jul 23rd, 2006, 8:16pm

on 07/23/06 at 20:07:21, Carl_D wrote:
SSDD



carl wat is....ssdd,cheers?
Title: Re: how do you balance your lives?
Post by Carl_D on Jul 23rd, 2006, 8:28pm
Same Shit, Different Day  ;;D
Title: Re: how do you balance your lives?
Post by starlight on Jul 23rd, 2006, 10:54pm
Carl,

I loved your response--but is was so "GUYISH".  Like I can actually hear a motorcycle in the background :)  just kidding,
Starlight


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.