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        New Message Board Archives >> 2006 General Board Posts >> Could clusters be a blessing instead of a curse?
        
(Message started by: Dixiedelight on Jul 10^th, 2006, 12:06pm)

Title: Could clusters be a blessing instead of a curse?
Post by Dixiedelight on Jul 10^th, 2006, 12:06pm

If I never had clusters, I would not know what real pain was.
I would not be able to connect so well with people who have other types of pain.
If I never had clusters, I might not enjoy life as much as I do now. I might take my Pain free time for granite.
If I did not have clusters my family would not be as passionate toward people who are in pain.
If I did not have clusters a good night sleep just might not mean as much to me.
If I didn't have clusters a trip to the zoo without having to leave from having a attack might be boring instead of a blessing.
If I had not had clusters, I could not of handled cancer and other illness as well as I have
If I did not had clusters I would not connect to the people here and made the life long friends I now have.
Clusters taught me and my family some real good things.
Some look at clusters as a curse, I look at them as a blessing

Title: Re: Could clusters be a blessing instead of a curs
Post by maffumatt on Jul 10^th, 2006, 12:12pm

I don't know, but meeting some of the people here has sure been a blessing for me.

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 10^th, 2006, 12:13pm

While I can appreciate you "black cloud, silver lining" outlook, I'd still take pain-free any day. We are forced to take your approach lest we blow our brains out, so yours is a good thing in and of itself. But if I had never been saddled with this curse, I think I could still be compassionate and caring. Sorry.

Title: Re: Could clusters be a blessing instead of a curs
Post by sandie99 on Jul 10^th, 2006, 12:14pm

I agree: these days I think of ch as a blessing.

Ch has brought wonderful people into my life.
I have learned a lot about myself and I have turned my life into a better direction thanks to ch. I live healthier life because of ch.

The hits still hurt, the pain still sucks, but I don't care. I would not be the woman I am without ch. :)

Best wishes & PF days to everyone,
Sanna

Title: Re: Could clusters be a blessing instead of a curs
Post by Richr8 on Jul 10^th, 2006, 12:19pm

I like all of you folks, but there is no way that this is any kind of blessing.

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 10^th, 2006, 12:21pm

on 07/10/06 at 12:14:59, sandie99 wrote:

You say the hits still hurt, the pain still sucks, and that you don't care. Yet you wish pain-free days to everyone. Don't you see the inherent contradiction there? If the pain is good for you, is it not good for everyone?

Not trying to be a turd in the punchbowl....

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 10^th, 2006, 12:24pm

on 07/10/06 at 12:19:21, Richr8 wrote:

I like all of you folks, but there is no way that this is any kind of blessing.

I agree completely.

My wife - she's a blessing.

My son - he's a blessing.

The beast - puts me in touch with that which I will be glad to leave behind when I die.

Title: Re: Could clusters be a blessing instead of a curs
Post by Racer1_NC on Jul 10^th, 2006, 12:35pm

CH is hell.......what I think Elaine speaks of is nature balancing it out......ying and yang so to speak.

There are positives........dunno if they balance it out though.... Time will tell.

B

Title: Re: Could clusters be a blessing instead of a curs
Post by Dissident on Jul 10^th, 2006, 12:40pm

I'm a pessimist and tend to look at the glass 1/2 empty. This pain is in no way a blessing. I would give up just about everything in my life for a cure. Sounds harsh but it's true.
It's nice to know other people who suffer from CH can see things this way though. :-/

Title: Re: Could clusters be a blessing instead of a curs
Post by Melissa on Jul 10^th, 2006, 1:06pm

I think some need to try and realize Elaine is just giving some hope and an optimistic view to others of what she's learned about having a life with clusters.

I don't know about you, but I don't feel it's a curse on myself for having them. It sure is better than having progressive cancer or being a severe burn victim.

It's all in how you perceive things and unfortunately there are many on this site who have a negative view of their condition.

I agree with Bill's yin & yang and would like to add that hope is some all have, as we don't have a cure for our condition, so who the fuck cares if we wish each other cluster PF days? It's a gesture of goodwill, don't piss on it.

I don't care WHO you are, you will never be completely void from a PF life. Even if it's just from a paper cut.

Title: Re: Could clusters be a blessing instead of a curs
Post by seasonalboomer on Jul 10^th, 2006, 1:15pm

Elaine, those are beautiful sentiments. I've often felt that the extremes that CH presents often allows me to experience those joyful aspects of my life with such greater appreciation. There are some mornings after a cycle ends where my senses are so attuned to the beauty that is around me that I'm overwhelmed by it. Thanks for reminding me.

Scott

Title: Re: Could clusters be a blessing instead of a curs
Post by JeffB on Jul 10^th, 2006, 2:15pm

It is nice to know that if I were mugged and was hit in the head with a baseball bat that I would barley feel it! When people ask me how much it hurts, I use the analogy of being hit in the head for 30-60 minutes by Barry Bonds 3-4 times a day. As for a blessing....I wouldn't wish these on my worst enemy, except for that dude in N.Korea.

Title: Re: Could clusters be a blessing instead of a curs
Post by tanner on Jul 10^th, 2006, 2:39pm

Elaine, I really admire your positive attitude. I have met some amazing people ( internet only :'( ), as a result of having this affliction but as I tell my doctors " I have 1 condition that is going to kill me ( hep c, now new and improved with hemocrohomotsis :), I have one condition that constantly causes me great pain ( disc disease ), But I have 1 condition that often makes me wish I was dead and makes the others pale in comparison, ( THE BEAST )".

Clusters are the worst thing that have ever happened to me and if there is a blessing there it must be coming in my next life!

.................Tim

Title: Re: Could clusters be a blessing instead of a curs
Post by imnotbub on Jul 10^th, 2006, 2:41pm

Could clusters be a blessing instead of a curse?

No.

Steve

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 10^th, 2006, 2:46pm

on 07/10/06 at 13:06:04, Melissa wrote:

It's all in how you perceive things and unfortunately there are many on this site who have a negative view of their condition.

I'm happy some can take a positive view of this. It is through my own inadequacy that I cannot.

Quote:

...who the fuck cares if we wish each other cluster PF days? It's a gesture of goodwill, don't piss on it.

I'm not pissing on anything. I'm just pointing out the contradiction. Why wish PF days to everyone else when it holds no meaning for one's self?

Quote:

I don't care WHO you are, you will never be completely void from a PF life. Even if it's just from a paper cut.

Part of the human condition, Melly.

Here's my deal. Anytime anyone is dealt as much pain as this mother fucker deals out, I cannot view it as a good thing. I will assume full responsibility for my own shortcoming of character in my inability to do so. It is my fault that I cannot see the good. It's not that the good doesn't exist - it's that I can't see it.

That you and Sanna see the good in this, my hat is off to you. I have yet to attain that level.

Please believe me when I say that I wasn't trying to rain on anyone's parade. I'm sorry if you took it that way.

Bill

Title: Re: Could clusters be a blessing instead of a curs
Post by BlueMeanie on Jul 10^th, 2006, 2:47pm

on 07/10/06 at 12:06:05, Dixiedelight wrote:

If I never had clusters, I would not know what real pain was. I would not be able to connect so well with people who have other types of pain.

I don't know about being a blessing, but I do have to agree with the quote. Without Clusters, I don't think I would think of someone else's pain as serious.

It's the same as when you tell someone about OUR pain; you know that they have no idea what you're really going through. Like the responses of "oh yea, I get those too". ::)

ps: PFDAN

Title: Re: Could clusters be a blessing instead of a curs
Post by Melissa on Jul 10^th, 2006, 2:54pm

brewcrew...Bill, it brings tears to my eyes to read that. It just absolutely kills my heart that clusters have the upper hand on so many wonderful things in life. :'(

I really, truely wish you could experience the upside in my shoes, see it from my eyes. The severeness of the pain does not compare to the joy of each day for me. No matter if it's a good day, or a "bad" one. I guess I'm just happy to be alive.

many hugs,
mel

Title: Re: Could clusters be a blessing instead of a curs
Post by ShadowLord on Jul 10^th, 2006, 2:58pm

Pain is a purifier... CH is a test... A trial by fire if you will. And like all good tests... Anyone, anywhere, anyhow would rather avoid it at all cost, and be rid of it as soon as possible once it has started, but once you face it down and make it through, you are a better person for it. Do I like CH... No. Would I want anyone to have CH... No. Do I see it as a blessing... Actually no... But do I see the good in it, the order in the chaos so to speak... Yes. Good post E... Thanks!

PFDAN......................................................................... ShadowLord

Title: Re: Could clusters be a blessing instead of a curs
Post by tanner on Jul 10^th, 2006, 3:07pm

Melly, your The Bomb ;;D

http://dingo.care2.com/pictures/c2c/galleries/albums/871761456/graphics/blubirds2Dhugs5FLRC.gif

....Tim

Title: Re: Could clusters be a blessing instead of a curs
Post by sandie99 on Jul 10^th, 2006, 3:25pm

Bill,

I have had plenty of difficult, hard, even suicidal days before and after getting ch.

Back in 2001 I decided to choose to look at life in optimistic manner. That same year brought ch into my head and my life. I took it as a challence and as a test.

These days I see the best sides in life. I'm not saying that it would be always easy... I have chosen to see everything in a good way. Maybe I am silly and naive, but it has made my life better. I have been caring, kind and well-wishing person all my life.

I wrote that " I don't care", refering to the hard sides. I can take a hell of a lot of pain before breaking, physically and emotionally. I understand others even better and relate to them better. Yet it does not mean that I would want to feel pain. I've just learned a lot about myself from it.

Is it really wrong to wish other pain-free days? I wish that to myself, so I wish that to others. Doesn't every CHer want to PF? I have said a lot of prayers about it.

Sanna

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 10^th, 2006, 3:26pm

on 07/10/06 at 14:54:11, Melissa wrote:

Goodness. I went back and read my response, and I really didn't mean to come across as so pathetic. I am, on the average, on the whole, for the most part a very upbeat, positive person. This (CH) is the one thing that throws a wrench in that, so I don't have a very positive view of it. But I, like you, find absolute joy every day I wake up. There is so much to live for, I'm afraid I'm gonna run out of days before I'm done.

And Shadowlord - Has the fucking earth opened up and swallowed me? Those are honest-to-God answers you have provided. See? I knew you had it in you.

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 10^th, 2006, 3:30pm

on 07/10/06 at 15:25:40, sandie99 wrote:

Is it really wrong to wish other pain-free days? I wish that to myself, so I wish that to others.

Absolutely not. It seemed as though you weren't wishing it for yourself. We had a communication breakdown.

Title: Re: Could clusters be a blessing instead of a curs
Post by Margi on Jul 10^th, 2006, 3:59pm

one more thing to add to your list, Miss DixieDelight.

If you didn't have clusters, you would never have golfed in Vancouver either.

Nor would you ever have been called a Twisted Sister.

(well, maybe you would have....you are a little strange, after all....it may just have naturally evolved to that, clusters or not! LOL ;))

TS (who is selfishly glad that you did have cluster because I never would have been blessed to have hugged your scrawny neck otherwise!)

Title: Re: Could clusters be a blessing instead of a curs
Post by Sandy_C on Jul 10^th, 2006, 4:16pm

The ONLY blessing that I have found since beginning this lovely life with CH seven years ago, are the people I have found on these boards. They have become my extended family. Should I wake up tomorrow with my CH completely and forever gone, I will still be here with my family.

I will say that because of CH, I am stronger mentally in order to get through the pain. Is that a blessing? Dunno? Outside of that, there is absolutely nothing remotely like a blessing connected with this curse.

Sandy

Title: Re: Could clusters be a blessing instead of a curs
Post by Dixiedelight on Jul 10^th, 2006, 4:38pm

ok OK maybe Blessing wasn't the right word.

CH suck thats for sure. I went though many years calling them a curse. I was cronic for 20 years. Some how I have been able to find good in all my downfalls, pain, disapointments. I look at things different than I use to and by doing that it helps me get through the bad stuff. ::)

Margi my twisted sister, we will see each other again I just know it. Bonnie and Waren and Mike ! Its going to happen.

Title: Re: Could clusters be a blessing instead of a curs
Post by TxBasslady on Jul 10^th, 2006, 4:43pm

on 07/10/06 at 14:54:11, Melissa wrote:

Oh Mel,

My sentiments exactly.

No matter how bad this awful pain, I will never, ever let it get the upper hand on my life.

When I think of all the compassion and love I've found since CH, it makes me cry. It's made me a better person. I appreciate so many more things in my life.

I have received so many gifts....each one of you. I think of Jackie, my cluster angel. Today I cannot imagine how I went all of my life without her love and friendship. Without CH, I would have never known her, you, or Elaine.

For me, the good things certainly outweigh the pain of CH.

Much love to you Mel,

Jean

Title: Re: Could clusters be a blessing instead of a curs
Post by seasoned_vet. on Jul 10^th, 2006, 5:12pm

elaine, what you have written is very lovely, and truly comes from your heart. when I am not in a cycle and PF, I would agree with you ENTIRELY!!! unfortunately , my will is weak! When the pain comes, I am afraid that my heart and my mind are not so open and loving! Tuck

Title: Re: Could clusters be a blessing instead of a curs
Post by Charlie on Jul 10^th, 2006, 5:21pm

Can't say that I ever thought of this horror as a blessing until it went away and I logged on to you brain-damaged people :o

Blessing? Sounds like some Eastern philosophy from here.

Charlie

Title: Re: Could clusters be a blessing instead of a curs
Post by ShadowLord on Jul 10^th, 2006, 5:43pm

on 07/10/06 at 15:26:35, brewcrew wrote:

And Shadowlord - Has the fucking earth opened up and swallowed me? Those are honest-to-God answers you have provided. See? I knew you had it in you.

Ya know ya love me... Ya just don't want everyone to know... Now why don't ya stop tryin' to be so bloody mean to everyone? All ya doin' is making an arse of yourself.

PFDAN............................................................ ShadowLord

Title: Re: Could clusters be a blessing instead of a curs
Post by BMoneeTheMoneeMan on Jul 10^th, 2006, 6:57pm

I think about this sometimes, and yes, I think dealing with this torture does make me a stronger person.
But, with that being said, i wish i was a weak, PF person.

When I got diagnosed with CH, it was a relief that I didnt have a brain tumor, but I didnt know much about clusters. Now that I know about clusters, the brain tumor sounds pretty good.
It would be nice if there was something that could be done to remove the problem and become 'cured'. A brain tumor can be removed and after recovery, it should never hurt again.

This is a real mother fucker of a condition. I cant say that I feel blessed either.
Thats just my 2cents
B$

Title: Re: Could clusters be a blessing instead of a curs
Post by georgej on Jul 10^th, 2006, 7:29pm

Blessing? Curse?

Like many other things, I think that it's neither. It just is. It's the hand I was dealt. What I do with it can be a blessing or a curse, I suppose.

I'm happy to be alive, though. I'm glad that I haven't let this thing dominate my life. Probably the best thing it's done is to put the small aches, disappointments, and humiliations of daily life in stark perspective. If I can live through CH, the other prickles and ouchies that occur are dinky in comparison.

The worst thing it has done is to cause some amazingly miserable hours--I calculated the other day that I have brought forth around 75 episodic cluster cycles for a rough lifetime total of 2250 headaches--around 5000 hours in the company of the Beast. That's a lot of time wasted crawling around on the nasty bathroom floor of hell. A lot of time when I wasn't available to people who needed me.

If the CH could be magicked away, would I do it? Hell, yes.

Best,

George

Title: Re: Could clusters be a blessing instead of a curs
Post by Jonny on Jul 10^th, 2006, 7:36pm

CH has been a blessing for me, otherwise I would have never met Chewy. If I had not met him I would have never got to see the expression on a humans face just after the gerbil in his ass explodes.

PRICELESS!!!!

Title: Re: Could clusters be a blessing instead of a curs
Post by JeffB on Jul 10^th, 2006, 7:41pm

on 07/10/06 at 19:36:33, Jonny wrote:

Oh god, the picture in my head...........rotflmmao :o

Title: Re: Could clusters be a blessing instead of a curs
Post by alchemy on Jul 10^th, 2006, 8:24pm

I'm calling P.E.T.A

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 11^th, 2006, 12:38am

on 07/10/06 at 17:43:17, ShadowLord wrote:

Huh?

Title: Re: Could clusters be a blessing instead of a curs
Post by rickyshot on Jul 11^th, 2006, 9:02am

I am with Brew. When in the throes of an episode, I am pathetic. Curse Curse Curse. If I was not a believer in Jesus Christ I would sell my soul to the devil to get rid of this and the complicated migraines too. sometimes both at the same time. Oh Joy........ >:(

Title: Re: Could clusters be a blessing instead of a curs
Post by nani on Jul 11^th, 2006, 9:52am

I'm with you, Elaine. It's been a blessing for me.
I would not be half the person I am now, if I hadn't ever experienced this kind of pain.
Besides, it's how I found all of you. :)

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 11^th, 2006, 10:54am

I try as hard as I can to make the best of any and all situations, but I am also a human being. This means that no matter how strong, solid and focused I can be, I am also at times weak, fragile, and vulnerable. I find that I am all of the latter when the beast has come for a visit.

Has experiencing all of these feeble human qualities at their pinnacle when the beast arrives helped to strengthen my positive qualities, the ones that help us transcend our humanness? I don't know. I really, truly don't know.

What I do know is this: When the beast arrives it hurts like a mother fucker, like no other pain I've ever known. And I know that I would trade just about anything (anything that would not have a negative effect on another being's life, that is) to make it go away.

Considering all this, I can't consider it a blessing. A "neutral" perhaps, in that we all have our crosses to bear. But not a positive. Having said that, I TRY AS HARD AS I CAN NOT TO LET IT HAVE A NEGATIVE EFFECT ON MY LIFE OR THE LIVES OF THOSE AROUND ME! I do not control the events around me, only my reaction to them. And when it comes to trying to be positive in torrent of negative events, you won't find a more positive guy than me.

Here's a side blessing, if you will: I have come to know you, if only virtually. I will come to know some of you personally this weekend, and that's got me excited. You are my brothers and sisters in misery. We wouldn't know each other if we didn't all know the beast.

Now have a nice day! We have a convention to get ready for.

Bill

Title: Re: Could clusters be a blessing instead of a curs
Post by LeLimey on Jul 11^th, 2006, 11:01am

Bill my sweet - one question - have you been to a convention before? :) This isn't a trick question I promise!

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 11^th, 2006, 11:03am

on 07/11/06 at 11:01:08, LeLimey wrote:

Bill my sweet - one question - have you been to a convention before? :) This isn't a trick question I promise!

Helen,

No. Why do you ask?

Title: Re: Could clusters be a blessing instead of a curs
Post by Racer1_NC on Jul 11^th, 2006, 11:10am

Oh boy......NEWBIES!!!!!!!!!!!!! [smiley=biggrin.gif] [smiley=sgrin.gif]

Title: Re: Could clusters be a blessing instead of a curs
Post by thomas on Jul 11^th, 2006, 11:16am

I'll vote for curse, thanks.

Title: Re: Could clusters be a blessing instead of a curs
Post by Gena on Jul 11^th, 2006, 11:28am

on 07/11/06 at 11:16:16, thomas wrote:

I'll vote for curse, thanks.

But with out Clusters we would have never found each other :-*

editied to add: if having clusters is what it took to meet and have you in my life, I am glad I have clusters!!! Because the rest of my life would mean nothing with out you!!!!

Title: Re: Could clusters be a blessing instead of a curs
Post by thomas on Jul 11^th, 2006, 12:04pm

Ok, so there are some positive aspects to it. ::) But God damn, why does it have to fucking hurt so much?

Title: Re: Could clusters be a blessing instead of a curs
Post by maffumatt on Jul 11^th, 2006, 1:07pm

Love hurts but its not suppose to hurt as much as you two face. I admire and feel for you guys at the same time. I don't think I could do it but I'm glad you guys can. Hope I didn't intrude or stick my nose where it doesn't belong.
MM

Title: Re: Could clusters be a blessing instead of a curs
Post by TxBasslady on Jul 11^th, 2006, 1:38pm

on 07/11/06 at 13:07:34, maffumatt wrote:

Love hurts but its not suppose to hurt as much as you two face. I admire and feel for you guys at the same time. I don't think I could do it but I'm glad you guys can.

CH brings with it the ability to admit our weaknesses. There's nothing wrong with that.

Thomas & Gena met....thru CH. In their home, there's two that suffer. Is it tough..? you bet! But they have each other....and they don't have to explain anything to anyone. They both suffer, therefore they understand.

I admire them too, Matt. They're a special couple. And...they're another example of the good things that come from such horrid pain.

Much love,

Jean

Title: Re: Could clusters be a blessing instead of a curs
Post by Charlotte on Jul 11^th, 2006, 1:42pm

No, it is not a blessing.

I love you guys, but I have no idea who I would be or what I would be doing if all my energy was not directed through getting through each day.

I know God loves us, and all things work for good for those who love the Lord. In that respect, this can work for good. But I do not consider it a blessing. A blessing is go forth and multiply, beauty & peace. God can restore our lost or wasted days, and that is a comfort. Maybe that's why we can't sleep - so we get extra days.

I would not give up who I am, if that were the trade for being pain free. But not a blessing.

Charlotte

Title: Re: Could clusters be a blessing instead of a curs
Post by TxBasslady on Jul 11^th, 2006, 2:23pm

on 07/11/06 at 10:54:48, brewcrew wrote:

Here's a side blessing, if you will: I have come to know you, if only virtually. I will come to know some of you personally this weekend, and that's got me excited. You are my brothers and sisters in misery. We wouldn't know each other if we didn't all know the beast.

I'll never forget the first time I met other clusterheads. December 13, 2003, in New Orleans. This special day in my life is the reason for my personal feelings. I felt the way you do, before I had the honor of being in the presence of another sufferer.

There is no way...no words to express what I felt in my heart.

That heartfelt feeling is still alive today....not just because of New Orleans, 2003, but because of many, many other sufferer's I've had the privilege of being with since then.

We suffer differently....we treat with different meds....it's understandable that we feel differently about some things.

I personally appreciate how you feel. I think you're honest, and I believe that your words come from your heart. I look forward to meeting you.

In the next few days I hope you experience what I did in New Orleans. I wish that for anyone who has never met another sufferer.

Jean

Title: Re: Could clusters be a blessing instead of a curs
Post by Margi on Jul 11^th, 2006, 2:33pm

Damnit Jean- now I have to go redo my makeup. :'(

DJ was the first clusterhead we met, he came to our house. Then, came Vancouver. Then, Ontario. Then, Kelowna, Then Canmore. All amazing meetings, full of tears at leavings.

The feeling is indescribable (is that a word?) Like meeting people from your home planet, sufferers and supporters alike.

Title: Re: Could clusters be a blessing instead of a curs
Post by LeLimey on Jul 11^th, 2006, 3:08pm

on 07/11/06 at 11:03:32, brewcrew wrote:

Helen,

No. Why do you ask?

Because I think you'll find all of us who can see a bright side to CH HAVE been to a convention.

Once you've been and met others and seen them through hits and had them help you through them.. you're never alone for a hit again. Ever.

It changes the whole way you cope, the whole way you think. When you're at the end of your rope you can hear the others willing you on, not just read their words, you can hear them and you can feel those hugs across the world too.

I can't explain it.

But you'll see [smiley=hug.gif]

Title: Re: Could clusters be a blessing instead of a curs
Post by brewcrew on Jul 11^th, 2006, 3:22pm

on 07/11/06 at 15:08:24, LeLimey wrote:

Helen,

Please go back and read my post again. I don't see myself as an emotional cripple. Maybe you have focused on one small portion of my posts on this thread, I don't know. I'm really looking forward to meeting all of you, and I'm looking forward to a life-altering event. But I have never even been near the end of my rope. I'm too strong for that. I have people who love me, who depend on me, who want me to feel better. Not that I couldn't use more, but it is enough to keep me going.

See you soon - I can't wait!

Bill

Title: Re: Could clusters be a blessing instead of a curs
Post by Summerbabe on Jul 11^th, 2006, 10:47pm

Hello first off I understand to a degree where this comes from, however a blessing I find it to be not . BUT I find it a blessing that we all can connect in our world together , be there for one another, support each other through this awful hand we are dealt. Life is a constant battle of tests , pain happens to be one of our constant battles. Compassion is a gift , sympathetic hearts are genuine. We here have that for one another and that is our gift of blessing to each other. We understand. We cope . yes, I appreciate more in life due to this disease. I am and always will be a compassionate soul. God bless you all pf wishes..Summer