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New Message Board Archives >> 2006 General Board Posts >> I've never heard of this kind of breast cancer
(Message started by: purpleydog on Jun 23rd, 2006, 8:02pm)

Title: I've never heard of this kind of breast cancer
Post by purpleydog on Jun 23rd, 2006, 8:02pm
IBC... watch this. It's important. Guys, tell the women in your lives... I've never heard of this type of breast cancer...

http://ww3.komotv.com/global/video/popup/pop_player.asp?ClipID1=785456


And remember, men get breast cancer too. My uncle died from it.

Title: Re: I've never heard of this kind of breast cancer
Post by Jimi on Jun 23rd, 2006, 11:29pm
Thanks PD. I had never heard of that. Very important information in that video.

Title: Re: I've never heard of this kind of breast cancer
Post by Pinkfloyd on Jun 24th, 2006, 12:32am
I hadn't either until last week. One of the new 'busters wives is recovering from this.
I was quite taken aback wondering the odds of this couple, in their late 20s, battling this and clusters, two rare diseases, at the same time.

She passed along this link:
http://www.ibcresearch.org/

Thanks for posting this,

Bobw

Title: Re: I've never heard of this kind of breast cancer
Post by zwibbs/Scott on Jun 24th, 2006, 1:28am

on 06/23/06 at 20:02:36, purpleydog wrote:
IBC... watch this. It's important. Guys, tell the women in your lives... I've never heard of this type of breast cancer...

http://ww3.komotv.com/global/video/popup/pop_player.asp?ClipID1=785456


And remember, men get breast cancer too. My uncle died from it.
                                                                                                                                                                                                                                                                                                                                                              Thanks for this ! It is sad but true Men do indeed have the threat of breast cancer, it is just unfortunate that the majority of men today don't even know about the possibility of having it.

Title: Re: I've never heard of this kind of breast cancer
Post by purpleydog on Jun 24th, 2006, 2:20pm

on 06/24/06 at 00:32:15, Pinkfloyd wrote:
I hadn't either until last week. One of the new 'busters wives is recovering from this.
I was quite taken aback wondering the odds of this couple, in their late 20s, battling this and clusters, two rare diseases, at the same time.

She passed along this link:
http://www.ibcresearch.org/

Thanks for posting this,

Bobw



Thanks for the link Bob. In this video (link that I posted), they called a few breast cancer treatment centers for info on Inflammatory Breast Cancer (IBC), and they hadn't even heard of it.

I can tell you, I've had 2 symptoms of this, and am going to get it checked out this week. I'm at the age where I should be having mammograms yearly, but I don't. (I know, I know... but you don't know how hard it is for me to get off work during the day, and I'm at work longer than the damn doc's office is open, which brings me to question, why can't hospitals do more testing in the evening? But, I digress.) I do do self exams regularly.

Not stuff for this board, I know, or even this website, but it concerns all of us in one way or another.

Title: Re: I've never heard of this kind of breast cancer
Post by Karla on Jun 25th, 2006, 10:40am
My husband who works for an HMO made me aware of this info and link about a month ago.  It is good to see it getting spread around so people are informed.

Title: Re: I've never heard of this kind of breast cancer
Post by Ree on Jun 25th, 2006, 7:25pm
they have had 16 year old girls die from this type of cancer... thats why when people say "oh if your breast hurts its not cancer"... Im here to tell you this cancer is painful and doesnt act like a lump or what we have been told is cancer....and guys you can get this too...

be well alllllll Ree who refuses to get this.....



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