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        New Message Board Archives >> 2006 General Board Posts >> Anyone here get SSD for CH>?
        
(Message started by: taraann on May 29^th, 2006, 11:06am)

Title: Anyone here get SSD for CH>?
Post by taraann on May 29^th, 2006, 11:06am

I have a phone appt with Social Security tomorrow. I'm doing it for the insurance cause Sam's mostly a subcontractor and we can't afford private insurance for all of us. The ss guy I talked to said I qualify for SSI and SSD. Just wondering if anyone here has gone this route? I don't know why but I"m totally stressed out about applying for SS.

Title: Re: Anyone here get SSD for CH>?
Post by fubar on May 29^th, 2006, 11:11am

I curious how it turns out. Please keep us informed.

-Shawn

Title: Re: Anyone here get SSD for CH>?
Post by gore2424 on May 29^th, 2006, 11:19am

I turned chronic in Nov 1999 before that spring and fall for 17 years in Jan 2003 I was layed off due to staff reduction (yeah right) and filled for SSD that month then after 5 months they said no then I appealed and in 3 months was approved. Most important is to give them all the records of Drs, neuros, ERs, and hospitals visits. current meds and side effects plus a personal letter of how clusters have effected your life at home and work. Plus print out what ever will help you from this web site. Terry

Title: Re: Anyone here get SSD for CH>?
Post by taraann on May 29^th, 2006, 11:20am

Will do.

Title: Re: Anyone here get SSD for CH>?
Post by taraann on May 29^th, 2006, 11:22am

Thank you Terry. The nurse at the ER told me to make sure I request one of their RN"s to review my file. She said that most of the time the person that reviews the medical history isn't a medical proffesional.

Title: Re: Anyone here get SSD for CH>?
Post by unsolved1 on May 29^th, 2006, 11:40am

The people at the SS office aren't the ones that make the decision, they just ask questions and gather files. Your medical records will be reviewed by doctors not nurses.

Ch does qualify as a disabling condition. If you really need it, don't let them turn you down. (They really can't)

Goodluck
UNsolved

PS. You don't need to hire lawyers either. (Don't waste your money) Just make sure you follow the directions that they give you and get all forms properly filled out and returned by the deadlines.

Title: Re: Anyone here get SSD for CH>?
Post by Karla on May 29^th, 2006, 1:51pm

I had been chronic for 4 years getting hit 8x/day. I avg. 8 ER trips a month. I applied for SSDI for ch, migraines, and depression. I won the first time I tried it based on depression. Go figure.

Title: Re: Anyone here get SSD for CH>?
Post by taraann on May 29^th, 2006, 2:25pm

Yeah that's what I'm wondering .... CH isn't my only "issue" I got fibromyalgia (since 15 or16) .... a half assed sorta kinda lupus dx (that's WV docs for ya), PTSD, and migraines........my ch is chronic though...that's what holds me up and messes with my life...the other stuff is just annoyances....the ptsd is rarely a prob anymore (used to be a huge prob) But Im gonna sign releases for everything.

Title: Re: Anyone here get SSD for CH>?
Post by taraann on May 29^th, 2006, 2:26pm

OMG I sound like a basket case! ::)

Title: Re: Anyone here get SSD for CH>?
Post by Charlie on May 29^th, 2006, 8:28pm

I've applied twice for both because of epilepsy. I'm sitll waiting. My cousin who works with similar government stuff, says that it usually takes more than one try for SSD. Just about everybody gets at least one turndown.

I'm on my second try. It can take many months or longer to get accepted. My last application was through legal aid that was suggested during my Medicaid acceptance.

Good luck

Charlie

Title: Re: Anyone here get SSD for CH>?
Post by Dave_Emond on May 29^th, 2006, 10:42pm

on 05/29/06 at 11:06:10, taraann wrote:

OH TARAAN ... !!!
Please, if it's not to late before you read this and your phone call to SSA, check out my post in the Supporters Forum under "disability." If you still have time, when you call SSA, try to set up a personal appointment with the agent they assign you. CH and disability over the phone will either lose you your chance or carry it out far longer than need be.
Hmmm ... I don't know what shape I'll be in from hour to hour, but I'll PM you my hope phone number and pray we can talk ... I have very much experience on how to deal with SSA and I really feel like we need to talk quick.
If my phone line is busy, PM me, so if I'm online I'll get off right away. Seriously ... if you want results quickly, stay away from the lawyers and try to talk to your agent IN PERSON ... I can't stress that enough! SSA and the word "Headaches" don't fit well without personal contact to make them understand CH are NOT headaches! I've had to backlog or start over with others who were turned down by SSA for CH, only because they didn't understand how to deal with them.
More than willing to help you get through the first time and see results in the shortest period.
Please check out my other posts in the Supporters Forum, just a few bits of advice there now, then feel free to either PM, E-mail or call me ... hopefully before you call them.
I'll send a PM with my phone# and pray I'm capable of answering and coherent at the time. Otherwise, PM me and we can try over and over to get in touch before you call them.
Hope this is in time,
My best to you,
Dave

Title: Re: Anyone here get SSD for CH>?
Post by taraann on May 30^th, 2006, 7:57am

Hey Dave, I got the date wrong. My appt is tomorrow (the 31st....I thought today was the 31st lol) Thanks so much for your willingness to help me out. I'm just a bit overwhelmed. I will check out the supporters forum. I'll email you in a bit so you can answer me when you are comfortable. I have till 1:30 tomorrow till my appt.

Title: Re: Anyone here get SSD for CH>?updated
Post by taraann on Jun 1^st, 2006, 4:01am

Alright I had my appt yesterday with SS. I was on the phone with the rep for a very very long time (over an hour, I think maybe closer to 2) She ended up being pretty easy to talk to, the longer we talked the more relaxed I became. She has to call me back today because her pc froze, lol I said I understand that problem! So we still have to get to my medical references (doctors, tests, hospitals, etc) But if I do get it I won't get insurance for 24 months! Isn't that insane?! I'll continue to keep you all updated.

Title: Re: Anyone here get SSD for CH>?
Post by Dave_Emond on Jun 1^st, 2006, 5:19pm

Hi Tara,
In another thread, I guessed the Medicare would take 9 months to kick it, but also mentioned I needed to double check that first. I know I already explained it to you Tara, but thought I should mention it here also for others going through the process.
It does take 2 years of disability before your are put on Medicare.
The 9 months I mentioned is actually the "trial work basis" you go through, where you will get forms that you need to report all income. Each individual and also by State will have a $ amount figure you can earn up to/ or below that will determine you're eligibilty to stay on or get off SSDI. These 9 months do not run consecutive. In other words, if you go over the figure you're given, say 9 months over 16 months, you can get off SSDI. While I was "only" Chronic with CH (before the Lou Gerhig's and other problems), I tried 3 times to get off SSDI. They would not take me off due to the fact I hadn't proved I could meet their income figures to prove I was self sufficient. I even refused the Medicare and did not return the forms. God must have been looking out for me because they put me on Medicare anyway. Without knowing this, a couple weeks later I was in the hospital half paralyzed and in seizures. The Medicare kicked in the day after, so I had to pay the first day of the 2 trips to the ER and docs, tests, etc ... But Medicare helped with the next day and from there on out.
SSA does check and follow up on you outside the forms you fill out. I got a letter from them about 8 months ago telling me no more forms will be needed as the doctors had already told them I would not be able to return to work and most likely not survive. As you know, the docs only told me I have very limited time to live in just the last week.
Gee ... thanks! [smiley=huh.gif]
Anyway, thought I should clear that up and glad I did say I was not sure and needed to check my papers on Medicare. Hope this helps someone who may have wondered how these 2 areas work.
Tara, got your first e-mail, excited to hear the rest. Remember ... follow up is just as important as getting started. If we work this right, I think we can get you active in 3 months.
Stay in touch,
Dave