Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
New Message Board Archives >> 2006 General Board Posts >> Waht to do,What to do??
(Message started by: sailpappy on May 25th, 2006, 9:01am)

Title: Waht to do,What to do??
Post by sailpappy on May 25th, 2006, 9:01am
;;D  Well Now, :o
              I'm facing a real Delihma in my life for the first time in a very long time.  I'm trying to figure out what to do and I would welcome any thoughts from the Family here.  Most or all of you have been through this or are still going through it!
      Saturday the 13th of May I received a very startling Letter from the Veterans Administration. Seems that they think I intentionally neglicted to reply to 2 correspondenses from them, the first and Employment Questionairre in September of 2005 and the second, a notice that they were reviewing my Disability case and had determined that my condition(Cluster Headaches) had improved and they would be taking away my Disability Pay.
     Its really odd that I have received all my medical appointments,medications and other notices from them, yet these 2 documents never made it to me.
     Affective May 1st 2006, No more disability Check.  My sole source of income for over 19 years.
      I am trying to put a resume together and figure out a diplomatic and poinient way to fill in the 25 years its been since I worked for anyone??
       Terri and I have been planning on this next year to reattempt the Chemo for the Hep C.  She has to be at home to care for the Grandkids and me, the Treatments completely incapacitate me and last attempt I only made 5 month, ending in the hospital with a severe concusion.
      I got so weak that while standing in the shower running the cold water over my head for the Cluster attack I was having I managed to pass out and slammed my head into the tile floor in the shower stall?
     Natureally I have appealed the decision, but by default for not returning the forms I never even saw, I have no means of supporting the home or Grandkids??
     So, aside form the obvious, I know I have some pretty good computer skills that I didn't have when I last worked, Still having between 3 to 15 attacks a day I'm thinking its going to be a little tough to find a nitch to fill?  Not even considering the weakened state I live in from the High Viral Load of Hepatitis C.
     Any and all suggestions would be Greatly appreciated! This is a very serious situation so no humorous replys Please!    thanks   Pappy


You might want to reply to my E-Mail instead of taking up room here??
     

Title: Re: Waht to do,What to do??
Post by sailpappy on May 25th, 2006, 11:01pm
;;D ;;DWOW?  I just dont know what to do with all this advise?  Oh well, I guess some men are an Island onto themselves?? :o  
I guess I should have gotten the message when I ask Terri the same question??  EHHHH!   Pappy

http://tk.files.storage.msn.com/x1pdroxzQ2qwWz-LTqWrJmoscnTy9PTMA9edZRI6_AoxOJxe-puWGrnuDcvGgJVO0iQznmneTO4FKcfDFlVT1YfENZXW6H3FV42lum5nXUtw55Q9DqGDCjUE65MrTmEP4pPFwp3YZ0KmKFXQjBHshQajQ

Title: Re: Waht to do,What to do??
Post by Linda_Howell on May 25th, 2006, 11:14pm


John,  I think you're not getting any advice here because most people don't have knowledge in this area.

   I DO know that once Kirk sees this or maybe even Terry Gore....they will answer you if they can help.

Linda

Title: Re: Waht to do,What to do??
Post by Ree on May 25th, 2006, 11:21pm
Havin a job and money crisis here too... and its midnight I woulda answered ya in the mornin Pappy... but I'll devote my evening prayer to you... Gods love to you.  Rememeber when a door closes one usually opens... or something philosophical like that... Be well   love ree

Title: Re: Waht to do,What to do??
Post by kcopelin on May 25th, 2006, 11:21pm
Pappy,
Fight like hell.  See your local Veterans Service Officer.  Write your Congressman.  I'm am totally not kidding.  And while your at it, give 'em hell cause your data was probably some of that that was "randomly burglarized".  You got more skills in your pinkie than most have in their entire body, but that is not the point.  Your clusters haven't been miraculously cured, correct?  Then screw them and their "letters you failed to respond to".  I am so not kidding, one veteran to another, this is a fight worth fighting.  Need to talk, strategize, whatever...pm me.
Kathy (USAF Ret)

Title: Re: Waht to do,What to do??
Post by sailpappy on May 25th, 2006, 11:27pm
;;D ;;D Linda, Sweet Linda!   ::) ::)
    Sure have missed your mail, I was trying to be humorous, I didn't really expect any advise, I have seen indirect post that touch on the subject without actually commiting to answering directly.
     I am back here finally because it took me this long to get my head straightened out.
     Depression is a very uncontrolable animal, I never thought it would get a hold om me, certainly never did because of Clusters.
     I guess quiting all the meds I was on kind of fried my brain Chemistry and its just getting normal again.  Still missing my Daughter and her Baby John Michael, just not crying any longer.  Things will  work out, and maybe I can get back to feeling like I have a voice that needs to be heard again soon!   Love ya Sis!  John

http://music.download.com/aleksandrshalamov/3600-8277_32-100699388.html?tag=MDL_chart_topdls_artist

Title: Re: Waht to do,What to do??
Post by Linda_Howell on May 25th, 2006, 11:35pm

Quote:
Depression is a very uncontrolable animal,


  Yeah, I know all too well  sweetheart.

  I am sorry I forgot my good friend Kathy in my advice to you.   She really is AF-retired and maybe can help you.  Talk amonst yourselves about this subject.  I'll call Kirk too for you and tell him to get his butt over to this thread.   O.K.?

  Sleep with the angels overhead John...

Linda

Title: Re: Waht to do,What to do??
Post by Edna on May 25th, 2006, 11:49pm
awwwwwww pappy, wish there were something I could offer to help.

Thank you Linda, seems as though you can help steer pappy along to a friend who may indeed be helpful

Pappy, you're in my thoughts and well wishes, praying for you

EDNA

Title: Re: Waht to do,What to do??
Post by ShariRae on May 26th, 2006, 10:56am
Hey Pappy!!
I dunno hun.. I would think it may  be easier to fight their decision than to try & start over in the workforce.Get documentation from your docs..see if that helps..appeal the decision until they r sick of hearing from you & cave in just to make you stop!
Much Love
Shari

Title: Re: Waht to do,What to do??
Post by Redd715 on May 26th, 2006, 11:39am
I'd also check with a reputable Disability Claims attorney in your area.  Ask for an innitial free consultation.  See what would need to be done.  


Title: Re: Waht to do,What to do??
Post by sailpappy on May 26th, 2006, 2:58pm
;;D Thanks All, I have an appeal in but it could take months to even years, took 2 1/2 years last time, by then we'll loose everything, well not that I have much, Lost My Mind, Lost My Comfort Zone! Lost my ...... well you get the picture, still have My Love and the Grandkids so I am Blessed already, just looking for some fodder to fill a big hole in time, Probably wasting my time anyway!!  Nice to be Home again!  Pappy

Title: Re: Waht to do,What to do??
Post by Redd715 on May 26th, 2006, 4:14pm

on 05/26/06 at 14:58:21, sailpappy wrote:
;;D Thanks All, I have an appeal in but it could take months to even years, took 2 1/2 years last time, by then we'll loose everything, well not that I have much, Lost My Mind, Lost My Comfort Zone! Lost my ...... well you get the picture, still have My Love and the Grandkids so I am Blessed already, just looking for some fodder to fill a big hole in time, Probably wasting my time anyway!!  Nice to be Home again!  Pappy


Exactly why you should get a free hour consultation with a disability attoney.  There possibly may be a way that they can find for you to get checks pending the outcome of the appeal and an investigation into their records that these supposed letters were even sent.  





Title: Re: Waht to do,What to do??
Post by KingOfPain on May 27th, 2006, 8:37am

Hi Pappy.

With what I have seen on the news with many, many Veterans personal information getting stolen, you would think that securing those records would be their [Veterans Admin] highest priority.   ::)

I don't have much to add to help in this situation but I did want to say I'm glad to see you back posting again.

It's so good to see you in Clusterville again.   :)

Hang in & hang on.


Title: Re: Waht to do,What to do??
Post by Cathi04 on May 27th, 2006, 9:03am
NIh- uhh, Pappy! No rolling over.....you deserve these benefits, and you are struggling thru not one, but 2 nasty afflictions!!!
Please talk to Nancy about help with the HepC. She and Red are doing well, and I KNOW she would want to help out!
As for your benefits.well, you have proof that the CH did not "go away", nor are you "miraculously cured".....you are still a Clusterhead with Hep C..and a Veteran-right??
Well, fight for what you earned........get some good people on your team and I'll betcha win!!!
KIRK?????????????????????????????????????????? Can ya help???

Pappy, it's not instantaneous, but there IS help!
Sending you a big hug to help you cope for now..........

Cathi  

Title: Re: Waht to do,What to do??
Post by Langa on May 27th, 2006, 11:27am

on 05/26/06 at 16:14:25, Redd715 wrote:
Exactly why you should get a free hour consultation with a disability attoney.  There possibly may be a way that they can find for you to get checks pending the outcome of the appeal and an investigation into their records that these supposed letters were even sent.  


Pegg is right.  I know about this all too well.  You need a disability attorney that can get you those checks reinstated - retroactive - during this appeal.  It's happened before. Stay on top of it and don't give up.  By the way, insurance companies hate disability attorneys and will usually play nice just to avoid them.  Some attorneys will make a payment plan with you as well.

I tell you, there are books written by ex-Insurance companies employees that decided to speak out on their unethical behavior.

Sorry you have to deal with this crap.  At least your family is there for you.

Good luck!
Langa

Title: Re: Waht to do,What to do??
Post by deltadarlin on May 27th, 2006, 11:37am
Contact your representatives!  Bombard them with letters and phonecalls.  I know people who've had some major problems with the VA here and their representatives have worked miracles.  Contact the press, do everything in your power to bring light to this situation!  Hell, call Shawn Hannity and Bill O'Riley!

darlin

Title: Re: Waht to do,What to do??
Post by sailpappy on May 27th, 2006, 8:28pm
:o ::) Thanks Guys, Following through as fast as I can! I feel Like Emeril Lately "BAM!!!"  then "Bam! :o                                                      Pappy

Title: Re: Waht to do,What to do??
Post by Dave_Emond on May 28th, 2006, 12:53am
Hey Pappy,
Wrote a long post concerning your situation, sorry it took so long for me to even see it.
Not enough energy in me to try to repost again to this ... said "page expired." Guess I write to slow these days!
But, I think we can get this resolved in a few weeks to a month and skip paying the lawyers and dragging it out over years.
We've been best of friends for years now and I think I can help. If you can send me a copy of your appeal letter, my bet is we can redo it and get action quick. I do have experience with this sort of thing.
Talk with ya through e-mail bud,
Hang in!
Dave

Title: Re: Waht to do,What to do??
Post by Kirk on May 28th, 2006, 4:16am
Check yer PMs John.
[smiley=smokin.gif]



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.