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Title: I Hope Like Hell This Is A Fluke.... Post by Carl_D on Apr 27th, 2006, 2:47pm After 3? months remission... Stayed up late doing puter work and slept in for my day off. Woke up with a level 5 on the left side (not my normal side) and lasted about a half hour. Popped a Frova as soon as I got out of bed. The whole time my head is swimming with the thoughts, "Am I going back into cycle? Another 8 years chronic? Will I be episodic this time? Will this ever fucking end?" Now I am back to clear thought and have my mind on override chanting "It's a fucking fluke" and if not... I see my Doc on Tuesday, and he did say we have room to go up on the Verapamil so the beast better not fuck with me again. Nervous, Carl D |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by echo on Apr 27th, 2006, 2:54pm Here's hoping it was a fluke. If not, send ole fuck stick my way! My cycle hasn't broken in years, a couple more a week or night won't alter reality too much for me. Hang tough!! |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by rickyshot on Apr 27th, 2006, 2:54pm I never heard of anyone with CH who was cured. I have heard of long remissions but sooner or later.........Fucko. I am only 52. Lived 22 years with this shit. Everytime I go in cycle I sound like you. I feel your pain bro :-* |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by LeLimey on Apr 27th, 2006, 2:55pm It was a fluke Carl.. trust me I'm a bitch! ::) You've beat this before, you'll do it again, you've got us for a start. Up the verap if you need to but not if its a fluke okay? Good luck! |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by Carl_D on Apr 27th, 2006, 3:01pm on 04/27/06 at 14:55:22, LeLimey wrote:
My doc told me last visit that I could still go higher on the Verap, and I told him, "Since it seems to be working where I'm at with it, I don't want to go any higher unless absolutely necessary." I figured at least that way I have an option if the beast returns. If I go all the way to the highest dose allowed, and THEN go into cycle - well, there's no room for upping the arsenal. So, I'm glad I waited. It was a fluke. I just keep telling myself that, especially since it was on the left. If not... we're getting a punching bag hung up at work. ;;D Peace, Carl D |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by tanner on Apr 27th, 2006, 3:06pm Carl, I am sending you a picture of a fluke. they come in all colors imaginable and are gaining in popularity. Which color was yours? cuz it just can't be the beast >:(. We need you in remission to give us all hope!!! http://www.fleamarketmusic.com/store/ProdImages/FLame%20Fluke-SML.jpg sending big vibes your way......tim |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by Jimi on Apr 27th, 2006, 3:30pm It was a fluke. You stayed up too late and slept in. Thats what it was, got it? You know us clusterheads have to go to bed at the same time, eat at the same time and get up at the same time. Just a fluke, thats all it was. :) |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by Charlotte on Apr 27th, 2006, 3:35pm I hope it was a fluke. Charlotte |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by Sandy_C on Apr 27th, 2006, 4:56pm Last cycle I had lasted from February through end of May. June was 100% pain free, and then first of July, hits on my left side (I'm a rightie). Those lasted for almost a month, but weren't as severe as a "normal" cycle. Never went more than a 4 or 5 level. And, hits were fewer than normal. Since the end of July, I've been pain free (knock wood ). I think the beast was just testing me to see if I would panic with his little "fluke". I didn't and neither will you. Oh, and by the way, this is a fluke too http://www.mass.gov/dfwele/dmf/images/fluke.jpg Hang in there bro. Sandy |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by tanner on Apr 27th, 2006, 5:13pm Sandy, Everyone knows that that is a flounder...... It's only a fluke if it's facing left to right ;;D btw, it's illegal to bring the cabana boys home with you 8) .....................tim |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by JenniferD on Apr 27th, 2006, 5:49pm ok, everybody, all together now, say it with me.......... floooooooooooooook, faaa-luuuuuuuuuuuuuk, fa fa fa fa luuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuk. Repeat. floooooooooooooook, faaa-luuuuuuuuuuuuuk, fa fa fa fa luuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuk. now deeeeep cleansing breath. ahhhhhhhhhhh its just a fluke :D Hugs, Jen |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by Jasmyn on Apr 27th, 2006, 6:57pm I'm with Jimi on this one. Hang tough! ;) |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by TAHwife on Apr 27th, 2006, 7:22pm Hi...I pray it's a fluke. My husband was CH free for a yr and half until two months ago....all the doc did today was up his BP meds...what the hell??? No one has mentioned some of the drugs I have read about on this site...wonder why not??? God Bless Karen H |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by cootie on Apr 27th, 2006, 9:17pm Ah ha......you got too relaxed......smack yerself around a bit and stay stressed (while yer kickin back)......fluke vibe Pam Hope yer ok now..........and hope things are goin well for ya and stay that way !!!! |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by Carl_D on Apr 27th, 2006, 11:59pm on 04/27/06 at 21:17:11, cootie wrote:
I hadn't put it together, but that could be Cootie. My sis in law pointed out something I hadn't thought of. I started a workout routine 2 weeks ago, and am in the process of trying to undo the damage done by meds for years, and getting into bodybuilding (I'm training to be a cage fighter - LMAO). Tuesday I did a brutal workout, especially after seeing that psycho on Hannity and Colmes. I did 3 sets yesterday, but today was my 'take it easy' day. I think Jimi might be right also. Instead of getting up at a set time I slept in. I haven't been doing that (when I do sleep). Still battling insomnia a bit, but not nearly as bad as a few months back. Though last week sucked, as I didn't sleep for two nights in a row and was pretty much a basket case the 2nd day. It has to be a fluke. No shadows or nothing since. Peace, Carl D |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by zwibbs/Scott on Apr 28th, 2006, 1:34am This is a flukehttp://i53.photobucket.com/albums/g50/zwibbs11/images.jpg |
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Title: Re: I Hope Like Hell This Is A Fluke.... Post by sandie99 on Apr 28th, 2006, 2:53am Carl, It is just a fluke... [smiley=hug.gif] Wishing you PF time, Sanna |
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