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        New Message Board Archives >> 2006 General Board Posts >> My son is just steps away from being whole :))
        
(Message started by: Sean_C on Apr 4^th, 2006, 9:37pm)

Title: My son is just steps away from being whole :))
Post by Sean_C on Apr 4^th, 2006, 9:37pm

As some of you know my son Colin age 4, was born with a condition called extrophy, where his internal parts were on the outside of his body. Most were distroyed during the intense growth of the human body in the process and the docs did what they could to make him whole again.

However, 2 years ago we met whith Dr. Anthony Atala, the Chief Tissue Engineer at Boston Childrens Hospital, and we discussed this procedure, at the time it was still experimental but now where on our way to it becoming reality, hopefully someday this will happen for us, hopefully sooner than later. ;;D

Someday we might have a cluster cure too, science is everything ;;D ;;D

http://www.abcnews.go.com/Health/wireStory?id=1802883

Cheers

Sean.........................................................

Title: Re: My son is just steps away from being whole :))
Post by BlueMeanie on Apr 4^th, 2006, 9:44pm

on 04/04/06 at 21:37:53, Sean_C wrote:

hopefully someday this will happen for us

I sure hope so for your little guy. By the way Happy Birthday Sean.

Title: Re: My son is just steps away from being whole :))
Post by Sean_C on Apr 4^th, 2006, 9:48pm

on 04/04/06 at 21:44:27, BlueMeanie wrote:

I sure hope so for your little guy. By the way Happy Birthday Sean.

Thanks Blue, I've been hoping for 4 years that something like this would come true ;;D I'll still pray that it does :D

Sean............................................

Title: Re: My son is just steps away from being whole :))
Post by TxBasslady on Apr 4^th, 2006, 9:53pm

You know it'll happen!!!! ;;D

Lots of hugs to you and Colin :-*

J

Title: Re: My son is just steps away from being whole :))
Post by broomhilda on Apr 4^th, 2006, 9:54pm

Hey Sean, this is wonderful news, still have all of you in my prayers and hopefully this is around the corner for Colin! All of you seem to be under the care of a fantastic doctor and team at Childrens!

Got my fingers crossed and prayers always on over to you all...

Hugs

ps- I am calling some parents tomorrow about this as well who have children with Spina Bifida, they will be thrilled with the research!TY!

Title: Re: My son is just steps away from being whole :))
Post by minnie on Apr 4^th, 2006, 10:25pm

Science certainly can be amazing.I hope Colin will have a successful attempt at this surgery.I will keep Colin and all the future benificiaries of this medical breakthrough in my thoughts and prayers.makes the small things I go through in my life so pitiful compared to what so many kids have to go through.
Minnie

Title: Re: My son is just steps away from being whole :))
Post by nani on Apr 4^th, 2006, 10:36pm

Wow... that is just amazing, isn't it? I'm so happy to hear this news, Sean. :) hugs, nani

Title: Re: My son is just steps away from being whole :))
Post by BMoneeTheMoneeMan on Apr 4^th, 2006, 11:07pm

Bro, I hope for you and yours that this can one day become a reality.
Peace
BMonee

Title: Re: My son is just steps away from being whole :))
Post by LeLimey on Apr 5^th, 2006, 2:45am

Sean I smiled before I even opened this post, wonderful things happen to wonderful people and I don't know many as wonderful as you.
News like this just makes everything else worthwhile, I really am so happy for you all :-* As you say, it's only a few steps away!
lots of love
Helen

Title: Re: My son is just steps away from being whole :))
Post by zwibbs/Scott on Apr 5^th, 2006, 5:21am

I love Great News in the Morning !!! Keep the Faith--Everything is going to work out JUST FINE.

Title: Re: My son is just steps away from being whole :))
Post by Grandma_Sweet_Boy on Apr 5^th, 2006, 5:37am

Sean - that's great news. Hope it happens asap for Colin and for the rest of his family. It's been a rough ride for you all.

Hugs
Carol

Title: Re: My son is just steps away from being whole :))
Post by Jackie on Apr 5^th, 2006, 7:20am

on 04/04/06 at 21:53:39, TxBasslady wrote:

You know it'll happen!!!! ;;D

Ditto to what my friend said.... :)

Keep the faith, Sean.....this looks very promising.

Oh.....Happy (belated) Birthday, Sweetie....hope it was a good one.... :-*

Jacks 8)

Title: Re: My son is just steps away from being whole :))
Post by Melissa on Apr 5^th, 2006, 7:31am

Sean, I hope that it can become a reality very soon. Glad to see things progressing!

:-*mel

Title: Re: My son is just steps away from being whole :))
Post by Karla on Apr 5^th, 2006, 7:56am

Ditto what Mel said. I pray this becomes a reality real soon for your child.

Title: Re: My son is just steps away from being whole :))
Post by Jonny on Apr 5^th, 2006, 2:25pm

on 04/05/06 at 07:56:07, Karla wrote:

Ditto what Mel said. I pray this becomes a reality real soon for your child.

Double ditto to what Mel said!!!!!...and Karla.

Thats great news, Bro!

Title: Re: My son is just steps away from being whole :))
Post by Dragnlance on Apr 5^th, 2006, 2:52pm

Fantastic news!!!

Keeping my fingers crossed!

Lance

Title: Re: My son is just steps away from being whole :))
Post by Charlie on Apr 6^th, 2006, 1:31am

Happy that things are looking so much better for you.

The others here have put it very nicely.

I love to read good news too. http://kolobok.wrg.ru/smiles/standart/i-m_so_happy.gif?SSImageQuality=Full

Charlie

Title: Re: My son is just steps away from being whole :))
Post by Jasmyn on Apr 6^th, 2006, 1:42am

Wonderful news of hope Sean [smiley=sayyes.gif]

Title: Re: My son is just steps away from being whole :))
Post by lionsound on Apr 6^th, 2006, 5:23am

wow! Very good and interesting news.

Hugs for your little guy :)