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        New Message Board Archives >> 2006 General Board Posts >> Hey Car & Dog Man
        
(Message started by: BlueMeanie on Feb 17th, 2006, 6:17pm)
Title: Hey Car & Dog Man
Post by BlueMeanie on Feb 17th, 2006, 6:17pm
Hi,

O.K., i've read all the stories of your life and your cars & your dogs. (Nice Z you just sold by the way.) Now would you please fill me in on your Cluster Headaches. Inquiring minds want to know. (After all, this is a CH site). How long is this last cycle been ? How many cycles have you had in the past ? What works for you as an abortive ? Have you ever tried 02 ?

Welcome to the nuthouse. BM
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 17th, 2006, 6:55pm
Blue Meanie

This is it. About two months ago I'm siiting in an O.R. Lounge reading the local paper and drinking a cup of coffee. I was waiting for the next surgery to start.

I'm siiting there and all of a sudden out of the clear blue sky my left eye closes half way and it starts tearing. I said to myself what the hell is going on here and I went in to the bathroom and sure enough my eyelid is half closed. I'm think I'm stroking out.

About 20 minutes later I get about a 6-7 with pain radiating in to my ear and pain in the back of my eye and pain over my eyebrow and a burning sensation on the top of my head on the affected side.

After the case I go to an optholmologist I figured I got something going on with my eye. He does the full blown exam and says to me you are having a cluster headache. I say what in the hell is that. I've had headaches all my life. Some bad ones some onesided but you know I never tried to put a name to them. They eventually went away in a day or two.

This thing didn't go away and it just lingered and got a little worse. That's when I found the site. I have never had the head banging suicidal type pain. I thought it was gone and then boom the same time of the day about 2:30 in the afternoon all over again. Would get a little better and then then the next day the same thing. Kept popping advil. Put some ice packs on the head then frozen peas. The the base of neck started to hurt. I went to the new York Headach Center Alexander Mauskop M.D. He gave me some depomedrol injections on my scalp and neck and the pain got better over five days but I felt like dog shit from the depomedrol. He told me I had CH. Told me it might go away and never come back, could come back could be chronic. I started looking in to the site and as I was asking questions I had people telling me I didn't have CH and sall kinds of other shit. I went to Fred Sheftell about 3 weeks ago as the headaches were getting better. He also diagnosed it and told me that you do not necessarily have to have suicidal type pain to have CH. He also told me that I was coming to the end of the cycle. Headaches are gone now. After Mauskop I got an oxygen tank a big freaking tank. Iused it ar 8-10 liters for 15 minutes and I pearled a Non Rebreathing mask from one of the Anesthesis departments in one of the O.R.s. About 95% of the time I sucked that stuff in and the headache went away it was remarkable.

Still have tank and I'm waiting. Hope this shit doesn't happen again. Sheftell told me that if it does he wants to put me on Verapamil.

It took an additional 2 weeks for the burning to go away. Every once and a while now I will get this bizarre quick little stabs on the side of my head lasting a second or two. Oh yeah I also had pain in my nose on the same side as the head.

I hope this doesn't come back and if it does if I have pain like many of you do I may not be able to stand it oxygen or no oxygen

That's the story.

Burt
Title: Re: Hey Car & Dog Man
Post by Charlie on Feb 17th, 2006, 7:12pm

Quote:
It took an additional 2 weeks for the burning to go away.


Lingering burning that takes time to dissipate?

Clusters? I dunno about this.

Charlie
Title: Re: Hey Car & Dog Man
Post by Kevin_M on Feb 17th, 2006, 7:16pm
Here's your experience related from first posts:



on 12/26/05 at 08:28:27, cardogman wrote:
I think if I am not mistaken I have had CH but brief episodes lasting not more then a day or a few days in the past 20 years. Because I thought they were just headaches I didn't pay any attention to them and it just went away.




on 12/26/05 at 23:21:23, cardogman wrote:
Today My wife  and kids and I went to a Knick game. I have had a headaches on one side of my head all day. The scalp is burning the eye is tearing the forehead over my eye feels like some hit me.

As Vince Carter is going off on the Knicks and the game
is getting intense I sat back in my chair and realized that the pain was there but I hadn't felt it for awhile.

In the Am I oxygenated myself and got relief. A few hours later like clockwork bang it hit and it usuallty doesn't go away for the rest of the day.

Burt



You mentioned believing a psychological component and aspects:


Quote:
I truly believe that there is a psychological component to this.



Quote:
The psychological aspect of this may be my concern over what's known as life changes or the empty nest syndrome.



on 12/26/05 at 08:28:27, cardogman wrote:
Most people think that this is anatomical. That there is a pathology to it. You know the gray matter thing the trigeminal nerve thing and I agree it is. But how did this brain structure change and how are these nerves sensitized and why does Biofeedback and Cognitive Therapy help CH. Because I believe it's not just pathological there is a pysychological component to this.

If you expect it it will come.



I can see a lot of controversy arising from these, above.




on 02/17/06 at 18:55:33, cardogman wrote:
I started looking in to the site and as I was asking questions I had people telling me I didn't have CH and sall kinds of other shit.


But I've been hard pressed to find any questions you asked, no question marks in posts, just some rhetorical asked and answered questions.


Your present post, as briefly worded, looks possibly like a start of a first mild cycle.


Quote:
This is it. About two months ago I'm siiting in an O.R. Lounge reading the local paper and drinking a cup of coffee. I was waiting for the next surgery to start.

I'm siiting there and all of a sudden out of the clear blue sky my left eye closes half way and it starts tearing. I said to myself what the hell is going on here and I went in to the bathroom and sure enough my eyelid is half closed. I'm think I'm stroking out.

About 20 minutes later I get about a 6-7 with pain radiating in to my ear and pain in the back of my eye and pain over my eyebrow and a burning sensation on the top of my head on the affected side.

I thought it was gone and then boom the same time of the day about 2:30 in the afternoon all over again.
Title: Re: Hey Car & Dog Man
Post by pubgirl on Feb 17th, 2006, 7:16pm
Oh gawd Charlie my darling  :-*. My broadband is already choked with cardogman, do we really want more?

Did you understand that one Burt? Despite your claim not to understand me, I do speak English

Wendy
Title: Re: Hey Car & Dog Man
Post by Jonny on Feb 17th, 2006, 7:19pm
Here we go again  :-X
Title: Re: Hey Car & Dog Man
Post by medic1852 on Feb 17th, 2006, 7:21pm
Anyone bring the popcorn...I got the drinks ::)
Title: Re: Hey Car & Dog Man
Post by nani on Feb 17th, 2006, 7:21pm
ROTFLMAO!!!  [smiley=laugh.gif]

edited to add: Burt...don't get angry with Charlie. We've all got his back.  ;)
Title: Re: Hey Car & Dog Man
Post by Linda_Howell on Feb 17th, 2006, 7:22pm

No Wendy we don't.   But Charlie didn't start it...Blue Meanie did.   ::)



disgusted in Clusteropolis
Title: Re: Hey Car & Dog Man
Post by pubgirl on Feb 17th, 2006, 7:22pm
Excuse me for asking but doesn't he (and everyone else) have better things to do e.g. life or useful CH posts.

Sorry just asking, I know it is sport and a great release for "CH anger" but even in my few years experience of ch.com this one goes down in the annals of turgid waste of time.

Bet that makes Burt happy ::)

W
Title: Re: Hey Car & Dog Man
Post by Kevin_M on Feb 17th, 2006, 7:29pm
Burt, from the wording of your first posts, I'd side with the doubt.  Your subsequent posts of a troll identity isn't tolerated here, that shouldn't have been pursued.

I highly respect the people who's posts you may not have liked, and they have very good intentions here.
Title: Re: Hey Car & Dog Man
Post by BlueMeanie on Feb 17th, 2006, 7:31pm

on 02/17/06 at 19:22:45, pubgirl wrote:
even in my few years experience of ch.com this one goes down in the annals of turgid waste of time.

Bet that makes Burt happy ::)

W


LMAO... just like the other 9 pages huh.
Title: Re: Hey Car & Dog Man
Post by Charlie on Feb 17th, 2006, 7:31pm
Every now and then I read something here that almost makes sense.........  :o

I'll leave my uninformed post but I need a primer on this guy.

Dense old Charlie
Title: Re: Hey Car & Dog Man
Post by nani on Feb 17th, 2006, 7:33pm
You're not dense, pookie. Just smart enough to ignore the BS.  :-*
Title: Re: Hey Car & Dog Man
Post by Sean_C on Feb 17th, 2006, 7:38pm

on 02/17/06 at 19:12:24, Charlie wrote:
Lingering burning that takes time to dissipate?

Clusters? I dunno about this.


Don't say that Charlie, he'll get upset ;;D These were my original thoughts and I stand by them today.


on 12/27/05 at 18:59:06, Sean_C wrote:
What is Hemicrania Continua?
Hemicrania continua is a rare form of chronic headache marked by (4., 6. & 7.)continuous pain on one side of the face that varies in severity. Superimposed on the continuous but fluctuating pain are occasional attacks of more severe pain. Symptoms fall into two main categories: autonomic, including runny nose, (3.)tearing, (2.)eye redness, eye discomfort, sweating, and (1.) swollen and drooping eyelids; and migraine-like, including nausea, vomiting, and sensitivity to light and sound. The disorder has two forms: continuous, with daily headaches, and remitting, where headaches may occur for as long as 6 months and are followed by a pain-free period of weeks to months until they recur. Most patients experience attacks of increased pain three to five times per 24-hour cycle. This disorder is more common in women than in men. Physical exertion and alcohol use may increase the severity of headache pain in some patients. The cause of this disorder is unknown.

Is there any treatment?

Indomethacin, a non-steroidal anti-inflammatory drug (NSAID), usually provides rapid relief from symptoms.
Other NSAIDs, including ibuprofen, celecoxib, and naproxen, can provide some relief from symptoms. Amitriptyline and other tricyclic antidepressants are effective in some patients.

What is the prognosis?

Patients may obtain complete to near-complete relief of symptoms with proper medical attention and daily medication. Some patients may not be able to tolerate long-term use of indomethacin and may have to rely on less effective NSAIDs.

Burt, I'm just trying to help you the best I can. I thought you would of opened the link but I guess you didn't so I high lighted areas that pertain to your headache as you described them. It is not uncommon to be misdiagnosed with clusters if you have Hemicrania Continua, I went 10 years chronic before I was diagnosed by a competant nuerologist.

Please print a copy of the actual link I gave you and bring it with you to your Nuerologist and give it a go with the Indo. It may actually stop your headaches dead in there tracks ;) Remember all birds have feathers, however not all are the same species.....................................tweet tweet

I honestly do not believe you suffer from CH, and I hope I'm right and you'll find relief soon.

Cheers  [smiley=me&mb.gif]

Sean....................................
Title: Re: Hey Car & Dog Man
Post by floridian on Feb 17th, 2006, 8:18pm

on 02/17/06 at 19:21:12, medic1852 wrote:
Anyone bring the popcorn...I got the drinks ::)


Gotta a Malta?  Man, I love that stuff.


http://www.angelfire.com/wi/beercans/images11/goya.gif


Quote:
  Commonly called "Malta" or "Malt Tonic" in Latin America and in some African nations, this beverage is essentially unfermented dark wort sometimes brewed from all malt though more commonly with malt and grain or sugar adjuncts. It is very sweet and full bodied with mild hop bitterness. It typically has a “worty” (unfermented beer) flavor. Additional flavoring such as chocolate, caramel and vanilla are often added. The overall character is distinctively sweet. This beverage does not go through any type of fermentation.
http://www.beertown.org/events/wbc/competition/reg_info/style_descr.html
Title: Re: Hey Car & Dog Man
Post by burnt-toast on Feb 17th, 2006, 8:23pm
Each beginning chasing each end.

Who knew things would begin, end and then begin again so?

Circle round and round on our eternal carousel ride.  


Tom  
Title: Re: Hey Car & Dog Man
Post by Jonny on Feb 17th, 2006, 8:38pm

on 02/17/06 at 20:23:23, burnt-toast wrote:
Each beginning chasing each end.

Who knew things would begin, end and then begin again so?

Circle round and round on our eternal carousel ride.  


Tom  


I hear ya, Tom....im turning my back on this one, literally!

http://im1.shutterfly.com/procserv/47b4ce22b3127cce9fbec16d287c00000016108AZM2bNk5bM6
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 17th, 2006, 9:41pm
In the end it probably doesn't matter what type of headache someone has. Pain is Pain and I think anybody can get some help here.

All I can tell you is what the Docs told me.

Atypical case for sure and never anyworse then maybe 7. But both Docs told me they have seem many people with CH that do not exhibit the terrible headbangers like the Video someone sent me from one of the conventions in the hotel room.

And I'll tell you I hope it doesn't come back.

I do still think that when I was under a lot of stress during the cycle it got worse. I don't know why but maybe somebody can chime in. If that's the case then there may be a small psychological component. Maybe it was a stress headache on top of it all that made it worse.

Right now I'm left with what could be described as short quick lightning bolts that last about a second or two. Very random and very infrequent.

Any of you have those.

Cardogman
Title: Re: Hey Car & Dog Man
Post by Sean_C on Feb 17th, 2006, 9:48pm

on 02/17/06 at 21:41:37, cardogman wrote:
Right now I'm left with what could be described as short quick lightning bolts that last about a second or two. Very random and very infrequent.

Any of you have those.

Cardogman


http://www.achenet.org/articles/6.php

Read the article Burt  ;) Entirely please

Hemicrania continua is suspected if …

· Pain is continuous but only on one side of the head

· Pain is moderate with occasional episodes of severe pain

· During the more severe pain episodes, many patients will have additional symptoms, such as:

- Red or tearing eyes or drooping eyelid

- Nasal congestion or runny nose

- Nausea

- Light or sound sensitivity

· Brief stabbing pains may occur in addition to the daily continuous headache

If you have continuous daily headaches that are always one-sided, ask your doctor whether you might have hemicrania continua and should try indomethacin.

From Headache, The Newsletter of ACHE. Spring 2002, vol. 13, no. 1.
Title: Re: Hey Car & Dog Man
Post by pubgirl on Feb 17th, 2006, 9:53pm

on 02/17/06 at 21:41:37, cardogman wrote:
Right now I'm left with what could be described as short quick lightning bolts that last about a second or two. Very random and very infrequent.

Any of you have those.

Cardogman


The people who are likely to have these Burt aren't CH sufferers. They are more likely to be PH/CPH or SUNCT or Idiopathic Stabbing Headache or as Sean has told you ad nauseam HC (Hemicrania Continua) sufferers.

They are all from the same group of headaches called TACs but even experienced neurologists get them confused.

Wendy

modified to add- this doesn't mean you DON'T have CH, just that you seem to have symptoms of other TAC's as well which can pretty easily be treated with Indomethacin alongside the CH treatments. The exception is SUNCT which is a bit of an arse to treat.
Just because your neuro, however good says you have CH, this doesn't mean you ONLY have CH- multiple TAC's aren't that uncommon, or TAC's which modify into other TAC's at times.
Title: Re: Hey Car & Dog Man
Post by cootie on Feb 18th, 2006, 1:17am
Human nature to be curious.....but didn't yer docs want MRI's and stuff......when Brad fineally got diagnosed he had to have all that done and am sure now days even more so docs don't miss sumthin and let it go and get sued. Esp when a patient complains of head pain that effects the eye or vision kinda stuff. And seems I've heard it mentiond alot stayin stressed keeps em under control in a round about way......or away......I don't mean it's a cure or preventative.....oh hell you know what I mean. His doc had him do biofeedback but I am not sure what the connection is other then to learn to control your panic of anouther attack ? Where'd you learn the pea trick.......dam we never had peas jus layin around. All we have is frozen blocks of brocolli and califlower Pam

Just wonderin.......I get nosey when in a FUNK........and now I am craveing peas with butter !  :-/

man if I could post pics of my back you'd all have a suprise........me LOVES tatts !!!
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 8:05am
Folks,

Even though I thought I was being slammed when I first came to this site I was listening. Eric and I spoke and he referred me to Dr. Sheftell in Connecticut. I thought I muight have something else then CH.

BTW I had all the usual stuff MRI Sedimentation Rate when I went to the first Neurologist 3 or 4 days in to it. He was no help.

Anyway I actually went in to Sheftell with my own agenda. That was to see if I had Hemicrania Continua or some other thing going on. You see it didn't really matter to me what you called it I just wanted it to go away.

In the end and after four hours he said definitively that what was going on with me was CH. and that I was reasonably lucky that the cycle wasn't the worst but could not guarantee that I wouldn't have another go round and he couldn't guarantee the severity if it happened. He did say that if I began to have symptoms that he wants to jump on it quickly with no waiting.

So what can I tell you it is what it is. The little lightning bolts only occur about once or twice a week at the most for a second or two now. It may be the aftermath. I just hope it's not the calm before the storm.

Like I said does it really matter. Based upon all the different topics on this site it would seem to me that any headache sufferer no matter what the brand can get something from this place.

Are you sure this site isn't a cult of some sort?

Cardog
Title: Re: Hey Car & Dog Man
Post by BarbaraD on Feb 18th, 2006, 8:40am
Burt,

This site is dedicated to CH. Over the years some of us Chers have developed other types of headaches along with CH, so we discuss them occasionally and have gotten to be headache "experts". But we're still "predominately" CH.

We try to steer people to the right sites if we feel they have some other type of headache so they'll get the right info and not waste their time on treatments that just aren't right.

When you have this many people (in pain) from this wide an area and all typing on a computer - someone is going to type something that someone else is going to take wrong and the war is going to start. I've been here since 98 and have seen it happen over and over and over. It's silly and accomplishes nothing except to get blood pressurers up (well maybe that's something - mine usually runs low so....).

Now, me, I'm the sweetest, most lovable person you'd ever want to meet, but I have a bad habit of saying what I think (most of the time before I think about it) and there are several people who have taken this amiss (even a few times when I was making a joke) and have come back slamming me big time. I've learned over the years just not to take things personal. They were probably hurting and I know I was, so just let the hostilities go and enjoy our little corner of the world. It's the best place to be for Clusterheads.

This site is a godsend for most of us. It has saved a lot of lives (mine included). Sometimes we just get a little defensive about it. No one on here would intentionally hurt another CH sufferer.

Now, it sounds to me like you're having your first CH and you're scared (I'm a mother - I pick up on these things) and you're lashing out. We're here to help - take the help. And the rest of you - Behave!

You may have another type of headache along with the CH. Listen to some of the advice and get it checked out. No need to suffer if you don't have to.

Hugs BD
Title: Re: Hey Car & Dog Man
Post by chewy on Feb 18th, 2006, 8:59am
Oh yeah. We want this guy around.


Quote:
Just let me know when you would like me to begin spewing my venom again and I will be more then happy to oblige.

I am slowly beggining to get bored.

I invite anyone on this site to give me as much shit as you want. C'mon now I'm sure you have it in you. You know who you are heap it on. hahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahaha hahahahahahahahahahahahahahahahahahahahahahahahahahahahahahahah




CARDOGMAN  MASTER OF THE TROLLS!!!!!!!!!!!!!!!!!!!!!!


Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 10:23am
Hey Chewy man you have got to get a sense of humor. What in the world is wrong with you. You may be one of the angriest characters I have ever seen on the computer brother other then me LOLOLOL

Do you know the difference between a joke and no joke.

Listen I got nothing against you but obviously you have it out for me.

So you know what try to give me a break and try to get the joke.

I have never once attacked you unless you did first so give me a chance and stop trying to turn people off to me. It's just not fair and your showing a real bad side.

If you want to continue this shit fine. I was asked to stop and I have. If you do I am not going to be baited by you any more. I hope we can get through this nonsense.

If you didn't think I was joking you obviously didn't get it.


Peace already man.

I do not want to monopolize this site anymore.

Just want to be a participant. If folks like you don't want me here I'll just pick up and leave but that's not what I came here for.

Balls in your court I've opened the dialogue.

Burt

Title: Re: Hey Car & Dog Man
Post by chewy on Feb 18th, 2006, 10:42am

Quote:
Hey Chewy man you have got to get a sense of humor.


LMAO! Anybody?

Your garbage in my book.
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 11:00am
Chewy,

Love you brother. I'm here anytime you need my help.

You're a great guy and I appreciate all the positive reinforcement.

Keep being who you are.

Have a great weekend and just let me know if you need me I'll be there for you.

Burt cardoggy
Title: Re: Hey Car & Dog Man
Post by chewy on Feb 18th, 2006, 11:05am
Your nothing more than a manipulating liar. You've conned some but not all.


Quote:
I do not want to monopolize this site anymore.


Then shut the fuckup.
Title: Re: Hey Car & Dog Man
Post by john_d on Feb 18th, 2006, 11:40am

on 02/18/06 at 10:23:07, cardogman wrote:
Hey Chewy man you have got to get a sense of humor. What in the world is wrong with you. You may be one of the angriest characters I have ever seen on the computer brother other then me LOLOLOL

Do you know the difference between a joke and no joke.

Listen I got nothing against you but obviously you have it out for me.

So you know what try to give me a break and try to get the joke.

I have never once attacked you unless you did first so give me a chance and stop trying to turn people off to me. It's just not fair and your showing a real bad side.

If you want to continue this shit fine. I was asked to stop and I have. If you do I am not going to be baited by you any more. I hope we can get through this nonsense.

If you didn't think I was joking you obviously didn't get it.


Peace already man.

I do not want to monopolize this site anymore.

Just want to be a participant. If folks like you don't want me here I'll just pick up and leave but that's not what I came here for.

Balls in your court I've opened the dialogue.

Burt


I saw that post in the other thread too- I thought you might be joking but it did not really matter.  It wasn't funny, period.  Not even smile worthy.  It just sounded like you wanted to be a pain in everyones ass just so you could be the center of attention.    Either you are really just being a jerk, you are bipolar, or you just don't get that saying that you want to be a pain in everyone's ass is not enjoyable to read and NOT FUNNY.   Get it??????

Geez.  
   
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 1:33pm
Chewy,

Relax life isn't that complicated. Get it all out. C'mon I will be your sounding board an if you need me I will be there for you.

All the best,

Burt
Title: Re: Hey Car & Dog Man
Post by pubgirl on Feb 18th, 2006, 1:45pm

on 02/18/06 at 08:05:41, cardogman wrote:


Like I said does it really matter.
Are you sure this site isn't a cult of some sort?

Cardog


Burt Are you actually listening? When are you going to realise that Yes it DOES really matter. It is fuck all to do with being a "cult". CH is probably the hardest of the TAC's to treat and some of the drugs are pretty heavy duty and may worsen the condition in the longer term. In one case there is a headache type which if wrongly diagnosed and treated with triptans the person could die.
It MATTERS therefore to try and help identify what type of headache condition a person has so they don't take useless or possibly even dangerous drugs.

Wendy

edited for spelling
Title: Re: Hey Car & Dog Man
Post by Jonny on Feb 18th, 2006, 2:11pm

on 02/18/06 at 08:05:41, cardogman wrote:
Like I said does it really matter. Based upon all the different topics on this site it would seem to me that any headache sufferer no matter what the brand can get something from this place.


Tell that to DJ....He built this place.

Take a look...these are his words:
http://clusterheadaches.com/
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 2:48pm
Jonny,

As I can tell there are people who have never had CH posting on this site.  Someone just the other day if I'm not mistaken said they never had CH. Maybe a spuse of a sufferer.

But you know there is alot going on and alot of it has nothing to do with headaches. For instance the screw balls messing with your property.

What can I tell ya. You were one of the folks that actually influenced me to go to the guy in Connecticut to get a diagnosis. I did and I got. You gave me rough time but I heard you and I read between the lines.

But you know in the end It wasn't that important for me to have a name on it. Just a treatment plan. This site helped with that.

Learned about the O2 which worked, learned about some of the other meds. Hopefully I will never need them.

BTW regarding the Imitrex. Sheftell wanted me to go try some in front of a Cardiologist. He was concerned that with my father having a heart attack and my chronic smoking I could have an event if I ever needed it. So he had me get a stress test and try the stuff in front of the Cardiologist. The Doc did not want me to do that in his office.

Do you or anyone else smoke a lot and use Imitrex and have you ever had any problems.

Anybody else?

Burt
Title: Re: Hey Car & Dog Man
Post by Jonny on Feb 18th, 2006, 3:06pm

on 02/18/06 at 14:48:00, cardogman wrote:
As I can tell there are people who have never had CH posting on this site.  Someone just the other day if I'm not mistaken said they never had CH. Maybe a spuse of a sufferer.


DJ's words:
This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches!


on 02/18/06 at 14:48:00, cardogman wrote:
But you know there is alot going on and alot of it has nothing to do with headaches. For instance the screw balls messing with your property.  


Thats because this is not just a website, its a family....I have met most of the folks here 4-5 times in person. We talk about things going on in our lives, if it was all medical talk it would be one boring fucking board.

That should tell you why you have such a hard time.....when someone goes off on one of us they take the whole family on!

Hope that answers your questions.

BTW:.....Ditch the Imitrex, it causes rebounds....try the Zomig NS.
Title: Re: Hey Car & Dog Man
Post by cootie on Feb 18th, 2006, 3:34pm
I am a supporter so you can say I DON'T HAVE CH but I have watched it happen for close to 20 years if not more (lost track of time).....and have had to deal with it from the outside looking in. I do all Brad's reasearch for him otherwise he'd be lost on alot of new ideas cuz he isn't a computer guy and doesn't have the time. I am his eyes and ears......but one thing I learned early on is REPECT.....I had to take my slams and flames and earn my respect spot and everyone learned that they could TRUST me. I don't gossip back and forth but 'yeah' I ask a few quesitons and wonder about a few people but I do know I am NOT at my best either when I am in pain and stressed or I reread posts before BLOWING UP cuz it is so easy to take sumthin wrong or read it wrong. Or sumone new take YOU wrong......I've told a few to STFU......hey.......shit happens and ya gotta sumtimes FIGHT for your position. People get on sites like this just to TROLL for insults and then get everyone stirr'd up and turnin agaist each other. So ya got to earn yer spot here by stickin around and provein your for real and can be trusted and if ya have a bad day and go after sumone pickin on ya that will be evaluated by yer ELDERS on how and why that went down. Sumtimes people need knocked down a few levels and then the peace can be kept and friends still remain freinds. But I have noticed you are relentless at stirring things up and dwelling on those that offend you repeating there posts to use against them. Explainin yourself is understandable too......but it's best to move on somtimes and take some time to get a bit serious and let everyone get to know you. Don't try to get even.....cuz your up against the ones that have been in this house alot longer and earn'd the rite to say what they want. Prove yourself worthy so it's mostly all good Pam

I guess I have grown intolerant to conflict cuz in my world these days I try to 'walk away' and save myself the stress and hassle. Holiday stress and bullshit did a real number on me and I scared myself how upset I got. I turned off and tuned out.....I had to rethink how I handle things. I even had chest pains I got so upset about bullshit goin on. Not cool !! I'm not perfect and I DO tend to whine.......but I know when to quit now......self taught you could say.   >:(
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 4:20pm
Jonny,  Going to Sheftell this week I'll mention the Zomig.

Thanks


Cootie
Title: Re: Hey Car & Dog Man
Post by Sean_C on Feb 18th, 2006, 4:21pm

on 02/18/06 at 10:23:07, cardogman wrote:
Hey Chewy man you have got to get a sense of humor. What in the world is wrong with you. You may be one of the angriest characters I have ever seen on the computer brother other then me LOLOLOL


He's watching the front door doc, he bounces the clowns around when they get out of hand.

Burt you can tell us you have CH till your blue in the face, but your posts of your symptoms and your time frames are all over the place. Your a pathological liar, and being so you forget what you said and fuck up lies of the past. You played Eric and probably others but you won't play the rest of us. This place isn't for you. You have no interests here and you'll only upset the family and you know it, its your nature, and its impossible for you to think of anyone but yourself.

Tell me I'm wrong, I'm sure you will anyway.

Sean................................
Title: Re: Hey Car & Dog Man
Post by cardogman on Feb 18th, 2006, 4:32pm
Sean,

What can I tell you. As I said to someone on a private message.

There should be a disclaimer on this site when you first check in. This is what it should say.  Ready.

" Welcome to Clusterville. Please be aware that this is a family and before we allow you in we are going to bash you, verbally abuse you, disagree with you, try to get you to think that you don't have Cluster Headaches even though two experts say you do. When you are asked for a timeline if you don't get it absolutely perfect everytime we re going to accuse you of being a liar. So don't defend yourself when all this starts just get the hell out of our faces and don't come back / by the way we are a sensitive and supportive group of people here to help you"  " Please sign here that you know and understand this discalimer and mail it to Sean C or Chewy"

Is that good bro or do you want me to modify it a little.

You know this is bullshit and I'm not going take this crap from you fuckers anymore. You win. I'll check in from time to time and look at the posts but as far as I'm concerned you can cram it up your ass with a high hard one.

This is isn't a supportive group this freaking torture.



Burt
Title: Re: Hey Car & Dog Man
Post by Sean_C on Feb 18th, 2006, 4:33pm

on 02/18/06 at 16:20:21, cardogman wrote:
Jonny,  Going to Sheftell this week I'll mention the Zomig.


First off Shefftell would have put him on indomethacin if he described his symptoms as he did here in the first place. Am I wrong?? Any educated person such as Sheftell would have done this just to rule it out. My guess is either he didn't go to see him in the first place, or he read this board thoroughly prior to his visit and made it seem as if he did have clusters. Why would he do this, I have no idea. But his OWN statements contradict his OWN condition. Just so that I'm clear with everybody, I could walk into Sheftells office, proclaim cardoggy's symptoms as he describes them and I would bet 1 Billion dollars that he would give me a script for indomethacin and the appointment would be over in 10 minutes.

I'm actually really sick of all these threads about the dog, there has to be a better online experience than this.

I can't open this guys threads anymore, he's beginning to trigger me :-/

Sean....................................
Title: Re: Hey Car & Dog Man
Post by chewy on Feb 18th, 2006, 4:36pm

Quote:
You know this is bullshit and I'm not going take this crap from you fuckers anymore. You win. I'll check in from time to time and look at the posts but as far as I'm concerned you can cram it up your ass with a high hard one.


See ya later you pathetic putz.
Title: Re: Hey Car & Dog Man
Post by Sean_C on Feb 18th, 2006, 4:37pm

on 02/18/06 at 16:32:04, cardogman wrote:
You know this is bullshit and I'm not going take this crap from you fuckers anymore. You win. I'll check in from time to time and look at the posts but as far as I'm concerned you can cram it up your ass with a high hard one.


See ya Burt, thanks for the bullshit, and we'll clean up all the trash you left behind, I'll see ya on C block pal.

Sean...............................
Title: Re: Hey Car & Dog Man
Post by Sean_C on Feb 18th, 2006, 4:38pm
Keen minds think alike [smiley=laugh.gif]
Title: Re: Hey Car & Dog Man
Post by vietvet2tours on Feb 18th, 2006, 8:46pm

on 02/18/06 at 16:37:23, Sean_C wrote:
See ya Burt, thanks for the bullshit, and we'll clean up all the trash you left behind, I'll see ya on C block pal.

Sean...............................
                                                                                                  Thanks Sean.                                                                                                 POtter
Title: Re: Hey Car & Dog Man
Post by Opus on Feb 18th, 2006, 9:22pm

on 02/18/06 at 14:48:00, cardogman wrote:
BTW regarding the Imitrex. Sheftell wanted me to go try some in front of a Cardiologist. He was concerned that with my father having a heart attack and my chronic smoking I could have an event if I ever needed it. So he had me get a stress test and try the stuff in front of the Cardiologist. The Doc did not want me to do that in his office.

Do you or anyone else smoke a lot and use Imitrex and have you ever had any problems.


Since 85% of Cluster headache sufferers smoke, I am sure there would be many warnings if this was a problem. This would be a good question for the med board, the anything but CH board won't get you as many answers.

Most of us have an EKG before getting a Trex script, but the FDA guidelines of taking Trex while having an EKG aren't followed as far as I know. If you do possibly have a heart condition, you should have a medical alert warning against Nitroglycerin usage on your person. I can't imagine having a massive CH during a heart attach would be too good. Chances are it would be deadly

Opus/Paul
Title: Re: Hey Car & Dog Man
Post by alienspacebabe on Feb 18th, 2006, 10:25pm

on 02/18/06 at 16:32:04, cardogman wrote:
... you can cram it up your ass with a high hard one.


Burt


Are you trying to turn us wimmins on?  It takes more than a promise of a hard one, trust me.


on 02/18/06 at 16:32:04, cardogman wrote:
... this freaking torture.


Burt


Oops. I think you're on the wrong site.  Try www.torturemenow.com or www.alienspacebabesnastydungeon.com/index
Title: Re: Hey Car & Dog Man
Post by purpleydog on Feb 18th, 2006, 11:14pm

on 02/18/06 at 21:22:39, Opus wrote:
Since 85% of Cluster headache sufferers smoke, I am sure there would be many warnings if this was a problem. This would be a good question for the med board, the anything but CH board won't get you as many answers.

Most of us have an EKG before getting a Trex script, but the FDA guidelines of taking Trex while having an EKG aren't followed as far as I know. If you do possibly have a heart condition, you should have a medical alert warning against Nitroglycerin usage on your person. I can't imagine having a massive CH during a heart attach would be too good. Chances are it would be deadly

Opus/Paul



This thread was started by Blue Meanie here, I assume to get an answer from Burt. Yes, it should have been started on anoher board, but it's here now.

I never had an EKG before being prescribed trex, and was never asked about any heart problems. I smoke now, but I don't let that interfere with my trex usage. Doesn't bother me a bit.

A friend of mine, who is chronic, had a massive heart attack. They gave him nitro, which then triggered a huge hit, which was then suppressed with trex. How's that for ya?

So much for Imitrex and heart conditions.

I love how we have all of this medical experience, due to our own experiences, and what we read.  I'm no doc. I do have a question. Are there any physicians that are members of this board? Actual MD's?

We need to be careful how we dispense the medical advice, and drug advice. Always talk to your doc, and the two of you can determine what is the best course of action for you.

Sean, you got 1 billion $? I'll take that bet.
Title: Re: Hey Car & Dog Man
Post by purpleydog on Feb 18th, 2006, 11:32pm

on 02/18/06 at 16:32:04, cardogman wrote:
There should be a disclaimer on this site when you first check in. This is what it should say.  Ready.

" Welcome to Clusterville. Please be aware that this is a family and before we allow you in we are going to bash you, verbally abuse you, disagree with you, try to get you to think that you don't have Cluster Headaches even though two experts say you do. When you are asked for a timeline if you don't get it absolutely perfect everytime we re going to accuse you of being a liar. So don't defend yourself when all this starts just get the hell out of our faces and don't come back / by the way we are a sensitive and supportive group of people here to help you"  " Please sign here that you know and understand this discalimer and mail it to Sean C or Chewy"

Is that good bro or do you want me to modify it a little.

You know this is bullshit and I'm not going take this crap from you fuckers anymore. You win. I'll check in from time to time and look at the posts but as far as I'm concerned you can cram it up your ass with a high hard one.

This is isn't a supportive group this freaking torture.



Burt



This place has changed a lot since when I first started coming here. A lot of people who've been here a long time aren't here anymore. Maybe they are out of cycle. Seems most would stick around though. I don't understand why it's become such a shark pit. Hell, if I happened upon this site today, I'd think twice before joining it. Why do you think DJ moved the general board down the page, instead of being the first thing you see when you get here?

Burt, I sincerely hope you decide to stick around.

The rest of you... lighten up. Burt wouldn't be the first one who rubbed you the wrong way when he first got here. Why is he different? Because he came back to tell us he actually does have CH? And he was a little pissed off that he was told by us he didn't? And you still don't believe him?

Must be the time of the year. It's winter, and there's nothing to do. So we need a scapegoat, or someone to take our frustrations out on? Be a good time for Ali to show up. Now there's a REAL troll. But not Burt.

Be kind.
Title: Re: Hey Car & Dog Man
Post by pattik on Feb 19th, 2006, 9:55am

Quote:
I don't understand why it's become such a shark pit.

I think that "shark pit" is a bit of an overstatement.  But maybe the reason is because this site has become a lot better known, and as more people become familiar with using message boards, we will attract more and more people who have at least no real reason to be here, or at worst bad intentions.

Quote:
Why is he different?

Different than whom?  You mean those of us that may have started out asking stupid questions, but had enough respect for the collective knowledge of the people here to pause and listen, rather than flaunting our narcissism and wasting DJ's bandwidth with chronic diarrhea of the mouth.

Quote:
Be kind


Great advice...I wholeheartedly agree.  But what do we do when kind responses are quickly acknowledged, but the behavior keeps repeating?  


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