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        New Message Board Archives >> 2006 General Board Posts >> CH poem by our daughter
        
(Message started by: minnie on Feb 15^th, 2006, 9:54am)

Title: CH poem by our daughter
Post by minnie on Feb 15^th, 2006, 9:54am

A poem by our Daughter April

When I'm outside or all tied up It creeps over like it wants to creep over my shoulder
You cry sometimes you wish it would die :'(. When I see this happen I wish it would go but we all
no. It slowly creeps away. All we can do is hope it doesn't come another day,for if it does All I can say
is it will slowly creep away.

Dear C.H. I don't get these headaches but I have seen it enough
times with my Dad (BillyJ) I know what it's like. Even for a 9 year old it still makes me sad All I can
say is it's OK ;)

Sincerly
April Billyj's 9 year old

Title: Re: CH poem by our daughter
Post by E-Double on Feb 15^th, 2006, 9:55am

I still say the worst pain is knowing our loved ones feel its effects

Title: Re: CH poem by our daughter
Post by JenniferD on Feb 15^th, 2006, 9:57am

If I could, I'd come there and wrap my arms around you and give you a kiss on your cheek and a great big HUG. :-*

Jen

Title: Re: CH poem by our daughter
Post by Carl_D on Feb 15^th, 2006, 10:05am

Thanks April. You're right - it does slowly creep away. All we can do is hope for the day it has crept away for good. [smiley=hug.gif]

Peace,
Carl D

Title: Re: CH poem by our daughter
Post by Svenn on Feb 15^th, 2006, 10:08am

Have asked myself this question many times over the years.

Who has the worst pain of us?

We the clusterheads or our loved ones?

After all they just stay there and can do shit to help us no matter what they do.

Just watch us and thats about it.

If you ask me that has to be PAIN

Minnie,i also read your daughters poem as a tribute to our supporters who are priceless for us.

Hope you dont mind that

LOVE IT

Svenn

Title: Re: CH poem by our daughter
Post by sandie99 on Feb 15^th, 2006, 11:16am

on 02/15/06 at 09:55:33, E-Double wrote:

I still say the worst pain is knowing our loved ones feel its effects

Amen to that. That's why I've protected mine as much as possible.

April, thank you for that poem. Minnie, thanks for sharing it with us. :)

Sanna

Title: Re: CH poem by our daughter
Post by Bec on Feb 15^th, 2006, 11:31am

April,

I love your poem, thank you for writing it for us. It means alot to us to have someone that we care about understand,what we are going thru. I just hate it that you have to watch Daddy getting hit. I know it hurts you as much as it does him.
:-* [smiley=hug.gif]
B

Title: Re: CH poem by our daughter
Post by nani on Feb 15^th, 2006, 12:14pm

That's beautiful writing, April. I'm so sorry that you and your sisters have to watch Daddy have such a hard time. :'( Naturally, I'd like to publish it. Please let me know if it's OK with you and your parents.
hugs and love to you and Beth, nani

Title: Re: CH poem by our daughter
Post by burnt-toast on Feb 15^th, 2006, 1:05pm

Thanks for the lovely poem April,

CH does have a tendency to be as hard on the ones we love as it is on us.

Unfortunately, all to often we suffers fail to recognize this fact and need to be reminded.

Tom

Title: Re: CH poem by our daughter
Post by aprilbee on Feb 15^th, 2006, 1:41pm

Awesome poem April...you are such a special girl... :-*

Title: Re: CH poem by our daughter
Post by Charlie on Feb 15^th, 2006, 6:43pm

Nicely done!

I have to agree. I'll never get over seeing another have a cluster attack. It's no wonder that we have to just about tackle bellhops and security guards when they see one for the first time. http://www.netsync.net/users/charlies/gifs/scare white.gif

Charlie