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Title: here we go again Post by psycofemale0403 on Feb 11th, 2006, 6:04pm Hello again everyone... anyone remember me?????? I'm only in season for three months, every three years. Surprise! This is my year of misery. Right now I'm just shadowing, HARD. So, I know they're comming.. I'm so scared... now I have a 3 and 4 year old, a full time job, and 2 part time jobs. I need to go to the docotor, and get on a preventitive med, NOW.. I have no idea what i was on before, all I know is it didn't work.... I used an imitrex spray last night, and it just made it worse. What do some of you reccomend I tell the Dr. to start me on? I get hit at least 8 times a day when I'm in full season.. I think by the strength of my shadows, I only have a little less than a month before there here to stay for a while. HELP ME PLEASE! Thank you.. Lisa |
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Title: Re: here we go again Post by Linda_Howell on Feb 11th, 2006, 6:09pm Quote:
Linda |
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Title: Re: here we go again Post by Linda_Howell on Feb 11th, 2006, 6:12pm Sorry. I meant to give you a clickable link. ::) http://www.clusterheadaches.com/about.html#TREATMENT Linda |
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Title: Re: here we go again Post by E-Double on Feb 11th, 2006, 6:17pm Hey there, I remember you and I'm not even here 2 yrs. Sorry you are in pain again and starting to let the dread come back. Gotta take a deep breathe and know that they come and go my dear! you will be fine as you have been before. It's just horrid pain ;) Despite not being a "newbie" I'm gonna give ya my newbie spiel..........yada yada yada bla blah blah ;;D This is a great resource to know like the back of your hand...print it out and give it to the doc http://www.brightok.net/~mnjday/chtherapy.pdf It will present the appropriate treatments that you should seek and your doctor should know!!! If you want an abortive with the least amount of side-effects O2 should not only be requested but demanded from your doctor!!! http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm I have used Zyprexa as an abortive and have found it to work (for me) as fast as Imitrex and without the "hangover" http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1120904753 If you do have the "typical" wake you up in the middle of the night horrors then.... Melatonin might be very helpful Many of us (myself included) have found that taking 6-9mg (some take more) about a 1/2 hour to 45minutes prior to bed have Knocked out the night visits and can finally get sleep. With the exception of 10-12 times.....I have slept through the night since August '04 (went chronic in March 05).....Still get hit during the day but my overall quality of life is better because I am not as exhausted all the time. Some people report that it seems to make them worse....The fact is that we are all different and respond differently to everything therefore it may or may not... The one thing I will tell you as far as my experience was that I had to stick with it...The first night I took melatonin, I was awoken with a doozy only I was too groggy to find my O2 .....It got a lot better for me....I then slept through the night but would get slammed about 1/2 hour after waking up....kinda like knocking the beast off schedule.....then again I was peaking and this cycle has been all over the place with no real pattern. I stayed with melatonin and have had decent sleep overall. (Maybe I should start folowing my own advice again hahahaha!) It may help and it is natural with not too many sideeffects....also ask your doctor b/c if there are any side effects or contraindications...I think they have to do with mild depression..... Like I said we are all different. KEEP A JOURNAL!!!!!!!!!! Don't be a psycho female!!!!!! Best wishes, good luck & stay as positive as you can!!!! Eric |
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Title: Re: here we go again Post by Jonny on Feb 11th, 2006, 7:39pm on 02/11/06 at 18:04:05, psycofemale0403 wrote:
So tell me....where the hell are you when somone needs help? Its good to know that you dont care about anyone when your pain free!.....you could be helping, but I guess thats to much to ask! |
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Title: Re: here we go again Post by psycofemale0403 on Feb 11th, 2006, 9:41pm Listen here Johnny butt head.. I do care.. . even when I'm not in pain..... can't tell you how many people I've sent to this site... I say nothing but good things about this family... EVEN YOU....... (Yes... it's true... Johnny is a nice guy... most of time... unless your claiming to have found a "cure"...... ) |
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Title: Re: here we go again Post by psycofemale0403 on Feb 11th, 2006, 9:42pm by the way Jonny, what happed with the key thing???? |
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Title: Re: here we go again Post by sandie99 on Feb 12th, 2006, 10:16am Hi Lisa, sorry that the beast is back... :( What comes to preventatives, verpamil helped me. I had to try plenty of others before finding that one, though. I hope a better luck for you and a great neuro. :) Wishing you lots of PF days asap, Sanna |
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Title: Re: here we go again Post by Richr8 on Feb 12th, 2006, 11:19am on 02/11/06 at 18:04:05, psycofemale0403 wrote:
Too new to remember, but sorry your back and with such a famliy and social load no doubt this will be very difficult cycle. It looks like you have much reading to do with all of the tips and links provided although no one has reported any universal miracle cures that I am aware of, but maybe one of the newer regimens will work for you , so read up. Despite the health risks associated with it, Prednisone tapers have reduced my cycles to several weeks from several months. I use O2 as an abortive and Verapamil as a preventive with 6mg of Melatonin to help with the sleeplessness brought on by the beast and the Prednisone. I hope this cycle isn't as bad as you remember, and don't forget, the lights are always on here if you need an ear. Rich |
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Title: Re: here we go again Post by Charlie on Feb 12th, 2006, 5:02pm Glad you found your way back but not about the reason. I don't have anything new unless the following is new to you. It worked for me. Dr. Wright’s Circulatory Technique: I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice. I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain. Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working. This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance. Charlie |
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Title: Re: here we go again Post by Dragnlance on Feb 12th, 2006, 9:05pm Sorry to see you back. We are here,and feel free to vent. There a lot of good posts over the last week or so that cover a lot of new items that you may want to look into Dragnlance |
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Title: Re: here we go again Post by psycofemale0403 on Feb 13th, 2006, 12:02am Thank you everyone for all the help you have given me. And Charlie, THANK YOU! I remember you telling me that last time I was in cycle, and it did help alot. I completely forgot about that. Thank you again... I knew returning to this family was a good idea! Lisa |
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Title: Re: here we go again Post by Jasmyn on Feb 13th, 2006, 2:21am Quote:
Ditto to what Rich said and get yourself on meds soon so that you can survive with the 2 little one's and your 3 jobs. When you have the time and feel that you cannot cope we will be here for you. |
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Title: Re: here we go again Post by BikerBob on Feb 13th, 2006, 2:58am Lisa, To hell with the conventional meds and doctors. Now is your chance to go straight to clusterbusters.com and bust the episode before the CH and conventional meds get a stranglehold on you. PM me if you need help on this matter. I like your username psycofemale0403. Are you in any way related to psycofemale0182 or psycofemale0302? I know them. BB ;) |
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Title: Re: here we go again Post by Carl1958 on Feb 13th, 2006, 9:17am on 02/13/06 at 02:58:26, BikerBob wrote:
My first post on here. I have to agree with you there Bob. Got my PF status from there. Positive light, & energy, & all that. ;) TC CArl. |
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Title: Re: here we go again Post by chewy on Feb 13th, 2006, 9:25am Quote:
Great advice for a woman with two kids. Think about it. |
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Title: Re: here we go again Post by nani on Feb 13th, 2006, 11:02am on 02/13/06 at 09:25:00, chewy wrote:
OK...I thought about it. What's the problem with the advice? CB works really well for me. The site will give her all the info she needs to do it safely. ~ nani who has 4 kids (with 2 young ones at home still) and broke a 5 year chronic cycle. |
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Title: Re: here we go again Post by chewy on Feb 13th, 2006, 11:05am Are mushrooms legal in St. Charles, IL ?? |
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Title: Re: here we go again Post by nani on Feb 13th, 2006, 11:08am Mushrooms are not the only CB treatment, you know. Seeds containing LSA are legal. And I'm pretty sure mushrooms are not legal anywhere in the US. Spores, however, are not illegal in Il. |
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Title: Re: here we go again Post by seasonalboomer on Feb 13th, 2006, 11:15am I'm with Chewy on this one. To start out by saying, "To hell with the conventional meds and doctors. Now is your chance to go straight to cluster busters.com" I do believe that clusterbusters is a very viable route but with the implied risk that its illegality brings that it should be one that is evaluated by someone who has taken the proper time to weigh the risk/reward ratio appropriately. folks that eventually arrive at clusterbusters and go forward with it most often fall into that category. For an episiodic who hasn't tried some of the conventional options (many that others have found relief with) it may be that clusterbusters isn't the first direction to go to. I will likely try the clusterbuster route myself one day if my present arsenal stops working but have to be honest. I do worry about the illegality. And everyone should weigh that before they throw out all the other options. Scott |
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Title: Re: here we go again Post by nani on Feb 13th, 2006, 11:21am Oh, I agree that the decision needs to be well thought out. Whether the risks outweigh the benfits is an individual decision. However, conventional med advice was given already. A mention of CB was not out of line, IMHO. |
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Title: Re: here we go again Post by Gena on Feb 13th, 2006, 11:35am Does every thread on this board have to turn in to a debate? I am sure that she can read the advice she was givin and take what she wants from it. I am also sure she can decide for herself what risks she is willing to take. Gena MOTHER of 2 - Lover of the clusterbuster site edited to say sorry hit the wrong button did not mean to quote Nani |
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Title: Re: here we go again Post by chewy on Feb 13th, 2006, 11:37am Quote:
A mention? Thats not a mention. Sounds more like an uninformed directive to me with no thought given to someones personal liabilities. |
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Title: Re: here we go again Post by Gena on Feb 13th, 2006, 11:39am on 02/13/06 at 11:37:16, chewy wrote:
Does it really matter what you thought or what your take on it is. Was it advice for you? If you don't like the advice DON't Take IT! |
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Title: Re: here we go again Post by seasonalboomer on Feb 13th, 2006, 11:45am what's wrong with a debate? |
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Title: Re: here we go again Post by MJ on Feb 13th, 2006, 11:56am on 02/13/06 at 02:58:26, BikerBob wrote:
Sounds like Lisa has gone the conventional routes. I have only tried RC seeds and only in the midst of a deep dark cycle. Now I am still in that cycle but dont suffer terribly. I saw where a few people have taken RC seeds before CH cycle with success, the cycle never came. Are there other conventional meds that can actually stop a cycle before it starts, and without large side effects, and with a single small dose? There is nothing illegal in purchasing RC seeds that I know of. There is nothing cheaper. In my opinion the buzz and side effects at the lower doses are way less than a single OTC sudafed. Why "suffer" waiting untill all else fails. I say let the seeds be the first to fail. |
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Title: Re: here we go again Post by Gena on Feb 13th, 2006, 11:56am on 02/13/06 at 11:45:29, seasonalboomer wrote:
Nothing I Guess... I am going to take what I need and leave the rest, sorry for interrupting this thread, please continue on, and on, and on. |
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Title: Re: here we go again Post by chewy on Feb 13th, 2006, 12:02pm Quote:
May be the fuck it does matter. Who the fuck are you to decide? |
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Title: Re: here we go again Post by seasonalboomer on Feb 13th, 2006, 12:04pm on 02/13/06 at 12:02:17, chewy wrote:
I'm gone from this thread. No need to take it here. My input was honest and I felt, thoughtful. Not meant to inflame. |
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Title: Re: here we go again Post by MJ on Feb 13th, 2006, 12:29pm on 02/13/06 at 12:04:37, seasonalboomer wrote:
I agree Boomer and personally thats the way I heard it. A voice of feeling and reason. Without input there is no debate. |
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Title: Re: here we go again Post by thomas on Feb 13th, 2006, 12:41pm on 02/13/06 at 12:02:17, chewy wrote:
I believe her opinion carries as much weight as yours. Unless you have some unknown cluster super powers, or were voted El Presidente of cluster treatment options. |
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Title: Re: here we go again Post by chewy on Feb 13th, 2006, 1:22pm Quote:
Absolutely. Apparantly she does't have that view. Quote:
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