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New Message Board Archives >> 2006 General Board Posts >> Pretty sad that I have no where to go...
(Message started by: Ree on Feb 2nd, 2006, 12:29pm)

Title: Pretty sad that I have no where to go...
Post by Ree on Feb 2nd, 2006, 12:29pm
It's pretty sad that I have no where to go when I suffer.
Because I have those M...not supposed to talk about headaches....anyway... my heads killin me in case you haven't noticed I haven't been around.....where is that headache log template.....I know there was one here. The neuro wants me to log my migraines what for I dunno... he isn't as cool as Daves new Neuro.... Maybe he wants me to log them so I can hit him with the log when I'm through.... anyway thanks for this illegal vent...
I love you anyway..... Ree

Title: Re: Pretty sad that I have no where to go...
Post by Donna_D. on Feb 2nd, 2006, 12:36pm
Ree,

You feel free to vent ANY TIME YOU WANT TO!!!

If anyone has anything to say about it...well you send them my direction!!!

I'm sorry you are hurting and I wish I could take away the pain.  Maybe the neuro will have some answers for you...

Take care and you are loved.


DD

Title: Re: Pretty sad that I have no where to go...
Post by chewy on Feb 2nd, 2006, 12:45pm
Your a CH supporter. Youse got rights.

Aren't there any Migraine sights for sufferers similar to this one?

Just wondering.

Title: Re: Pretty sad that I have no where to go...
Post by nani on Feb 2nd, 2006, 12:47pm

on 02/02/06 at 12:36:47, Donna_D. wrote:
If anyone has anything to say about it...well you send them my direction!!!


When you're through with 'em, DD...send 'em over to me. Nobody's going to stop you from ranting here, Ree. We all love you way too much. Sorry you're hurting, hon. *big hug*
Just so you know... kudzu can work for migraines, too. PM me for details. There are also some migraine support boards out there, too. (Not that I don't want you to get it here...but I know it helps to talk to someone who really understands your kind of pain.) Harvard's Brain talk communitites has an active Headache forum (their CH board is dead, LOL) but there's a lot of migraine sufferers on it. I think Teri's HA site on About.com has an active board, too.
I hope you feel better soon. hugs, nani

Title: Re: Pretty sad that I have no where to go...
Post by Linda_Howell on Feb 2nd, 2006, 12:48pm


 Ree,  

  You have many many friends here and you know that a lot of them have Migraines.  

   Also...Dave once asked me if 02 would help your migraines and I said yes.  Are you trying that?  

 
Quote:
anyway thanks for this illegal vent


You crack me up lady.

Linda

Title: Re: Pretty sad that I have no where to go...
Post by Ree on Feb 2nd, 2006, 12:49pm
there was Elaines sight and it got closededed...bummer Now I've gots no where to go.....except to bed and I have 4 rugrats runnin me ragged today.... lol

we made ground hogs..... one of the kids just went home with his Grandmother and said "WE MADE HOGS TODAY" LOLOL.....

I am also being creative with my pain regimen because I waited too long now and the abortives won't work... life sux bein me.... gotta roll.....yesterdays M lasted 9 hours.  ree

Title: Re: Pretty sad that I have no where to go...
Post by Svenn on Feb 2nd, 2006, 12:52pm
DAMNIT REE

You know you are one of the cornerstones here and you just vent away.
Anyone say different is accountable to "King Jonny" and the mad viking



Svenn

Title: Re: Pretty sad that I have no where to go...
Post by BMoneeTheMoneeMan on Feb 2nd, 2006, 12:54pm
Sorry Ree,
Hope you get relief soon from whatever headache you got.  You could have any sort of vascular headache and still be welcomed here    :-*
You have any meds for those?
Pain free, puke free wishes.
BMonee

Title: Re: Pretty sad that I have no where to go...
Post by Ghost on Feb 2nd, 2006, 1:03pm

on 02/02/06 at 12:52:55, Svenn wrote:
DAMNIT REE

You know you are one of the cornerstones here and you just vent away.
Anyone say different is accountable to "King Jonny" and the mad viking



Svenn

And the goat will give them a head butt they will never forget
8)

Title: Re: Pretty sad that I have no where to go...
Post by alienspacebabe on Feb 2nd, 2006, 1:48pm
Take the time to take care of yourself, Ree. Migraines are no picnic. Rant when you need to.
hugs, Lizzie

Title: Re: Pretty sad that I have no where to go...
Post by sandie99 on Feb 2nd, 2006, 2:12pm
Ree....... [smiley=hug.gif]

I'm so sorry that you're hurting. Migraines suck, I've had my share of those as well. So, feel free to PM me anytime you need someone to write to. You're a wonderful supporter and you deserve a support system of your own. :) So when you need us, let us know, okay?

Wishing you all the best & PF time,
Sanna

Title: Re: Pretty sad that I have no where to go...
Post by BarbaraD on Feb 2nd, 2006, 2:15pm
Go ahead and vent all you want Ree. You know we're family here and no one's going to put you down for having meegraines.... some of us CHers have those things too and can vouch for the fact that they hurt like hell...... (the part I hate is the naseau).

We're always here for you and don't you forget it....

Hugs BD

Title: Re: Pretty sad that I have no where to go...
Post by SteCo on Feb 2nd, 2006, 2:48pm

on 02/02/06 at 12:47:11, nani wrote:
I think Teri's HA site on About.com has an active board, too.


Here is the site Nani is talking about; she has a forum.
http://headaches.about.com/
The head of the site is a sufferer too. Her name is Teri.

Here is the site's HA chart....
http://headaches.about.com/cs/diagnosis/a/diary.htm
the last one (about half way down page in bold) has tracking charts for daily/weekly/monthly comparison (see tabs at bottom of excel spread sheet)....pretty impressive.

My MIL has migraines and my O2 rig works pretty well on hers. Give it a try.

SteCo

Title: Re: Pretty sad that I have no where to go...
Post by Grandma_Sweet_Boy on Feb 2nd, 2006, 3:56pm

on 02/02/06 at 12:29:47, Ree wrote:
It's pretty sad that I have no where to go when I suffer.
Because I have those M...not supposed to talk about headaches....anyway... my heads killin me in case you haven't noticed I haven't been around.....where is that headache log template.....I know there was one here. The neuro wants me to log my migraines what for I dunno... he isn't as cool as Daves new Neuro.... Maybe he wants me to log them so I can hit him with the log when I'm through.... anyway thanks for this illegal vent...
I love you anyway..... Ree


IMHO - you're exactly where you should be right now!  Rant away girl.  There are many of us that suffer migraine along with CH - so I hear ya!  I liked the idea of you trying the O2.  I know that our Margi has used it and it seems to help.

Hugs on the way to you
Carol

Title: Re: Pretty sad that I have no where to go...
Post by Nosferatu on Feb 2nd, 2006, 4:07pm
http://www.migrainepage.com/help.html
http://www.healthboards.com/boards/forumdisplay.php?f=62
http://www.migraines.org/
http://www.migrainesadvice.com/
http://www.migraineprevention.org/mp/
http://stepchat.com/headaches/index.htm
http://www.healingwell.com/community/default.aspx?f=31
http://www.ha-support.com/support.htm
http://migraine-cures.blogspot.com/

Yup,pretty slim pickins out there,,,,,,,,,,, ::)

Title: Re: Pretty sad that I have no where to go...
Post by Margi on Feb 2nd, 2006, 4:22pm
Ree, seriously, if you've got O2 for Dave, try it.  It's even aborted a 2-day old migraine for me (because I was too stubborn to try it earlier and I didn't want to waste it in case Mike needed it).  
Don't forget to do your exercises, lady - you're the one that told me about that tactic.  I know it's the last thing you feel like doing right now but...it might help you blow this one away (I'm thinking you don't have oxygen set up yet, right? it may be a good substitute - or at least go out for a brisk walk tonight in the cool air - that helps too).  So sorry you're hurting, my friend.  You're not alone, you know that.   :-*

Title: Re: Pretty sad that I have no where to go...
Post by Sandy_C on Feb 2nd, 2006, 5:05pm
You've always got a place to go, sweetie.  Right here, for any reason whatsoever.  Vent away, any time.

[smiley=hug.gif]

Sandy

Title: Re: Pretty sad that I have no where to go...
Post by Ghost on Feb 2nd, 2006, 5:08pm
Ree Ree
you got me
to vent to
any time you want to [smiley=biggrin.gif] [smiley=hug.gif]

Title: Re: Pretty sad that I have no where to go...
Post by Sean_C on Feb 2nd, 2006, 7:36pm
You know better than to say those things around here Ree, you can rant/vent/scream/cry/laugh anytime you want, your definately part of this family. You have all my numbers, don't be scared to call if ya need a hug ;;D I know your a supermom and everything, but even they need a shoulder once in a while. ;)

Huge hugs comin at ya bud [smiley=hug.gif]

Sean.................................

Title: Re: Pretty sad that I have no where to go...
Post by Woobie on Feb 2nd, 2006, 8:00pm
[smiley=hug.gif] [smiley=hug.gif]

sorry Ree.......
I hope you feel better.

I dont think anyone here will belittle your pain.  We all love you.

tina :-*

Title: Re: Pretty sad that I have no where to go...
Post by kissmyglass on Feb 2nd, 2006, 8:11pm
Hey Ree,
Sorry to break the news but, symptoms or not, You are a Clusterhead.
Vent away!
sorry you are hurting  :-* :-* :-*

Kev

Title: Re: Pretty sad that I have no where to go...
Post by rickyshot on Feb 2nd, 2006, 8:11pm
As many of you know i suffer complicated and I mean complicated migraines as well as CH. And believe me many times were the migraines worse than some of the CH attacks. I have been paralyzed on one side from them and one of the attacks even led to a TIA for which I was weak on the rt side and facial paralysis for five friggin days. My last visit to the hospital for a week was for the migraines. My neuro finds me interesting (oh Joy) and said I am the worst migrainer he has ever seen but not the only case like me. And even bigger fun is when the two headaches meet. Fucko.......

Title: Re: Pretty sad that I have no where to go...
Post by Cathi04 on Feb 2nd, 2006, 8:44pm
Ree,
I tried to PM you, but it bounced back. :-/
I am sorry your head hurts too! Pain is pain, and I really wish I had a cure for you....but I dont.........I DO want you to know, if you ever want to, feel free to vent,rant, or just commiserate.
Please, get some sleep, rest well, and tomorrow we will all hope your day is PF!

Cathi.sending you a hug.......

Title: Re: Pretty sad that I have no where to go...
Post by E-Double on Feb 2nd, 2006, 9:34pm
I'm a full blown chronic CHer.
I do however get multiple HA types in addition.
One being the M word.
I can empathize and certainly don't even wish those on anyone.

You have been a major support my friend and know that I am here for ya too!

Try the oxygen.

My wife has tried it for hers ;)

Title: Re: Pretty sad that I have no where to go...
Post by cootie on Feb 2nd, 2006, 10:15pm
I started my new years out with one........started up around 11:30 pm and everyone was sitting (BOREING) waiting for the new years ball to drop and whoop it up and shit shit shit shit shit did that commotion ever hurt ! How come moveing around makes my head hurt WORSE ? I couldn't take nothin to keep it from gettin worse cuz I'd been drinkin beer.......'I know better then that' ! So it was a new years I won't soon forget as I got to my room with my cement block head and cried myself to sleep which took HOURS. Then I had one for the next several days and off and on all that week. Brad was less then sympathtic so I felt pretty much alone. But he keeps forgetting........I cook his food and make his lunch Pam  ;) 8) ;)

How come they don't have a ch'rs migraine area.......I mean after all.....shouldn't family be allowed to talk about ANYTHING if they need support ? (not for migrainers per-say tho off the street) OK.....did I just break a commandment.........sorry !!!!!!!!

Title: Re: Pretty sad that I have no where to go...
Post by LeLimey on Feb 3rd, 2006, 4:48am
Oh Ree ((HUG))
I'm sorry you are hurting.
I have one son with CH and one with migraines. Neither deserves more of my attention than the other and both are crippled with pain.
What's in a name after all? You're a member of this family and you're hurting and that hurts me.
love you lots and hope you get some PF time soon, do try the o2, it does work for migraines!
Helen XXX

PS Oh and by the way Nosferatu, I really don't suggest you use that attitude when you talk to Ree again.

Title: Re: Pretty sad that I have no where to go...
Post by Jasmyn on Feb 3rd, 2006, 4:56am
Ree you are part of this family
[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Hang in there Girl!

Title: Re: Pretty sad that I have no where to go...
Post by Nosferatu on Feb 3rd, 2006, 11:09am

on 02/03/06 at 04:48:29, LeLimey wrote:
Oh and by the way Nosferatu, I really don't suggest you use that attitude when you talk to Ree again.


Attitude  [smiley=huh.gif] what attitude? Attitude eh,hmm,you the attitude police now?  I listed sites that she may find helpful,there are MANY more sites for migraine than for CH,and yes I do have both.
I was only stating the painfuly obvious. In fact,it's not even the fact that she has migraines that I was talking about! It was This-
on 02/02/06 at 12:29:47, Ree wrote:
It's pretty sad that I have no where to go when I suffer.
Because I have those M...not supposed to talk about headaches....

And I was trying to be helpful,
on 02/02/06 at 12:29:47, Ree wrote:
where is that headache log template.....I know there was one here. The neuro wants me to log my migraines what for I dunno
There are headache logs on at least most of the sites that I listed!
Pain by any name is pain,it all sucks!


Title: Re: Pretty sad that I have no where to go...
Post by Linda_Howell on Feb 3rd, 2006, 12:03pm


I'd say it was more sarcastic, than attitudenal.  Especially the last line with the rolling eye smiley.

 
Quote:
--------------------------------------------------------------------------------
http://www.migrainepage.com/help.html
http://www.healthboards.com/boards/forumdisplay.php?f=62
http://www.migraines.org/
http://www.migrainesadvice.com/
http://www.migraineprevention.org/mp/
http://stepchat.com/headaches/index.htm
http://www.healingwell.com/community/default.aspx?f=31
http://www.ha-support.com/support.htm
http://migraine-cures.blogspot.com/

Yup,pretty slim pickins out there,,,,,,,,,,,  



Ree is very important to a lot of us here and we won't let anyone hurt her feelings.  Just letting you know.

Linda

Title: Re: Pretty sad that I have no where to go...
Post by Nosferatu on Feb 3rd, 2006, 12:29pm

on 02/03/06 at 12:03:59, Linda_Howell wrote:
Ree is very important to a lot of us here and we won't let anyone hurt her feelings.  Just letting you know.

Then why is it she feels she can't post about her pain here? Could it be from those of you whom she means so much to slamming her for it?


on 02/03/06 at 12:03:59, Linda_Howell wrote:
I'd say it was more sarcastic, than attitudenal.  Especially the last line with the rolling eye smiley.

Sarcastic? Yes I guess you could say that.But when someone would rather whine about having no-place to turn to than finding help for themselves,,,,,,,,,,,,,
What am I supposed to feel? Sympathy?That's in the dictionary between sh!t and syphilis!


I'm sorry Ree,I did not intend to turn this into a pissing match.But that is the nature of this board it seams. PM me any time,I will be glad to talk to you about migraines.I honestly do hope your head is fealing better.Be it migraine,CH,CPH,whatever,pain sucks.

Title: Re: Pretty sad that I have no where to go...
Post by Linda_Howell on Feb 3rd, 2006, 12:51pm


Quote:
Could it be from those of you whom she means so much to slamming her for it?


If you have read all the responses she recieved from everyone here you will see no one slammed her at all.  In fact she got nothing but supportive replies.

DJ started this site for clusterheads because there was NOTHING out there for us before CH.COM   That's all.  In the past, there have been people who have come here who have not read that it is a CH site and only got as far as "HEADACHE" in their search.

" And that is all I've got to say about that. "   Forrest Gump

no pissing match, Linda  

Title: Re: Pretty sad that I have no where to go...
Post by Svenn on Feb 3rd, 2006, 2:10pm

on 02/02/06 at 12:52:55, Svenn wrote:
DAMNIT REE

You know you are one of the cornerstones here and you just vent away.
Anyone say different is accountable to "King Jonny" and the mad viking



Svenn





Repeating in case someone did not read this the first time


Svenn

Title: Re: Pretty sad that I have no where to go...
Post by Nosferatu on Feb 3rd, 2006, 2:17pm
Any one here that has even mentioned migraines has been slamed. I think that is the whole reason she felt that she couldn't complain about her mirgaines on this site was because in the past she and anyone who used the M word was picked on, because "Meegraines are a walk in the park. " I do understand how they feel, I also have Meegraines  that have put me down for days. And rather spending my time digging thru the archives to find the post  that YOU KNOW are there, I will do what I can do to help people instead. Which is what I did by posting the Meegriane sites.

PS I hope the seeds are still working there magic for you

Title: Re: Pretty sad that I have no where to go...
Post by LeLimey on Feb 3rd, 2006, 2:29pm
I'm not hijacking this thread anymore, I'm sorry Ree.  :-*

Title: Re: Pretty sad that I have no where to go...
Post by Lizzie2 on Feb 3rd, 2006, 2:50pm
[[Ree]]

As you know, I've had the one continuous migraine since 1/17/01 and I, for one, would NEVER harass you for talking about it... ;)  You have been so supportive to Dave and all of us here - you know you'll get nothing but support from us, too. :)  I do get a little upset when people make comments like they wish they could go to bed and sleep it off like a migraine because as you know...you can lie down, but rarely can you sleep it off.  :(  The mere sensation of movement, light, sound, what have you can send your world crashing to pieces.  Just know I understand....and you know I'll always listen if you need to vent, etc. :)

I think what is hard about going to other sites when Ree posts here all the time is that this site is family.  Her friends are here.  People are here who understand.  She feels comfortable talking to us.  Many of those migraine sites are heavily moderated and don't have the same atmosphere at all - not that they are bad by any means, but it is a lot different than being able to write here the same way we do about everything.

Sorry, Ree...if that's off base.  I know that's one reason why I really don't go to any of those sites anymore except here.  And I speak up about my migraine from time to time....cuz afterall, it's a part of me...take me or leave me. ;)

Love ya sis, and hope you are feeling a little better by now...!!!

Carrie/Lizzie2 :)

Title: Re: Pretty sad that I have no where to go...
Post by Opus on Feb 3rd, 2006, 3:21pm
Ree,
If you need a simpler chart, that you can print out, I have one in PDF form that I can email you.

I hope you are PF soon. I am so glad I was able to beat my Migraines with watching out for food triggers. I hope you find some help soon.

Opus/Paul

Title: Re: Pretty sad that I have no where to go...
Post by aprilbee on Feb 3rd, 2006, 3:29pm
Getting in on this a little late, but Hope you are feeling better Ree!!!  Migraines are aweful because they seem endless...be strong.. :-*

Title: Re: Pretty sad that I have no where to go...
Post by broomhilda on Feb 3rd, 2006, 4:22pm
[smiley=hug.gif] on over from Canada Ree, hang on and keep fighting...

Hope you are feeling better soon, check in when you can

Andrea

Title: Re: Pretty sad that I have no where to go...
Post by thebbz on Feb 3rd, 2006, 6:08pm
;) All the best Ree.
>:(Nosferato, you don't seem to play well with others. I hope you can reach way deep and find the courage to diffuse the impressions your are leaving of yourself. I have read Ree's post's for years..all of them positive. What about yours?
I get meegraines, they hurt. I hate if for ya Ree.
All the best ...you too Nosfer. bat lover.
jb ;;D

Title: Re: Pretty sad that I have no where to go...
Post by Jonny on Feb 3rd, 2006, 6:24pm
Nosferato or whatever your name is......

Why dont YOU shut the fuck up?

Ree has been a part of this family for many years, you on the other hand feel free to tell someone to shut the fuck up on your seventh post!

Ree does not need your help, none of us need what you are spewing, shit-head.

My guess is that this punk has been here before under a different name and I think I know who it is.

Sorry Ree....you know we love you!!!!

Title: Re: Pretty sad that I have no where to go...
Post by Roxy on Feb 3rd, 2006, 9:05pm
Ree, so sorry you are hurting.  Hope it will end soon for you.

I have just started getting "that other kind of headache".....and I'll tell you what.....I would rather have a cluster than a migraine.  I know people consider this type of thinking a little strange, but even getting hit everyday with clusters.....I get some in between time for things like life, kids, groceries.  All those things a person can do between hits.  Those damn migraines just won't ever fucking stop....and they hurt like hell.  

I'll take the hard pain for a shorter length of time.  My thoughts are with ya sweetie!

Roxy

Title: Re: Pretty sad that I have no where to go...
Post by Cerberus on Feb 3rd, 2006, 9:26pm
Ree,

Bummer you gotta endure, as taboo as it is to say those things here (in many cases) You should know by now that you are always welcome, and well respected round this MB. Your pain is shared.
As for the log... I suspect the doc. wants to see how often and severe your 'graines are, since it has recently become common knowledge that severe migraines have been known to cause physical damage to one's grey matter...which in turn leads to other things. Better safe than sorry I suppose. Hit him with the log anyhow, even if it doesnt work, it could be lots of fun.  :)

NEVER LEAVE HERE... Dammit!
Ramon

Title: Re: Pretty sad that I have no where to go...
Post by Sean_C on Feb 3rd, 2006, 10:05pm
I can't believe he was speaking in that tone to the two women I love.  [smiley=huh.gif]

Dude we don't do that here, I'm gonna give you the benefit of the doubt that you didn't know.

If you can't be nice to the ladies regardless of the way you feel, they ain't gonna let you play here no more dude, and thats the gods honest truth, DJ won't tolerate disrespect :-/

Nuff said.

Sean..................................


Title: Re: Pretty sad that I have no where to go...
Post by Ree on Feb 3rd, 2006, 11:49pm
2 whopping days and today I was like a walking zombie... YOU GUYS ARE WONDERFUL...

Three times Ive tried to modify this... anyway...

I never expected all this attention. Thanks for sticking up for me and allowing me to share my pain here.  I know there are alot of M*gra*ne sites out there.  But none have the family that I have grown custom to... I love you all and Im so lucky lucky lucky to have a family like you all...... Love Ree

Title: Re: Pretty sad that I have no where to go...
Post by cootie on Feb 4th, 2006, 12:11am
I've checked out other boards a couple times to limit my digressive whineing here boreing everyone.......but........it just doesn't feel like home. So...... I read a little bit and moved on. Homeward bound Pam

Hope ya feel better Ree.......

Title: Re: Pretty sad that I have no where to go...
Post by Sean_C on Feb 4th, 2006, 12:16am
Your family too Coots ;;D We;re here if ya need us you know that ;;D

Sean.....................................

Title: Re: Pretty sad that I have no where to go...
Post by Carl_D on Feb 4th, 2006, 12:18am
Ree, you vent anytime you feel the need to. You know there is always an ear or a shoulder here for you. You've been a tremendous supporter, and NEVER feel like you can't come here if you need some support of your own.

Hope you're feeling better
[smiley=hug.gif]
Carl

Title: Re: Pretty sad that I have no where to go...
Post by Charlie on Feb 4th, 2006, 1:32pm
You're one of us Ree...always have been.... and like Svenn says, "a cornerstone."  http://monsterteam.info/images/smilies/smiles_pack/party10.gif?SSImageQuality=Full

Nosferatu:

All you had to do was edit that post of yours before sending. What a difference.....for that matter, your not replying immediately would have been cool too. http://subscribe.smileygenerator.us/new/albums//block.gif

Try again though. Others have gotten off to rocky starts as well.

Charlie

Title: Re: Pretty sad that I have no where to go...
Post by Ree on Feb 4th, 2006, 3:28pm
heres what I was looking for... http://www.neuro.wustl.edu/headache/headache%20log.html a headache log... I thought we had one here at this site... love ree

Title: Re: Pretty sad that I have no where to go...
Post by sandie99 on Feb 4th, 2006, 4:31pm
Ree, thanks for sharing that link. Cool log. I do keep HA diary. :)

Sanna



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