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        New Message Board Archives >> 2006 General Board Posts >> A big thank you to all
        
(Message started by: Opus on Jan 30^th, 2006, 6:32pm)

Title: A big thank you to all
Post by Opus on Jan 30^th, 2006, 6:32pm

who helped with the Cluster Headaches Wikipedia article. (http://en.wikipedia.org/wiki/Cluster_headache)

It is obvious that some people from this group had a large part to play in it's factual presentation of Cluster Headaches.

Opus/Paul

Title: Re: A big thank you to all
Post by E-Double on Jan 30^th, 2006, 7:20pm

Did I miss something?
It seemed pretty well written.
I guess we can add to it pictures of us sucking O2 to make it more graphic

Title: Re: A big thank you to all
Post by Sean_C on Jan 30^th, 2006, 8:02pm

Are those stats right? 4 in every 1000 people suffer from CH? That would mean 208 people have clusterheadaches in my home town? I have never met one if there even is one. I went 23 years without ever meeting/seeing/talking/ or knowing anyone who knew anyone with Ch, that stat has to be wrong. :-/

Sean........................................

That would also mean in the worse case scenario 120,000 people suffer from clusterheadaches in the United States? Can't be right guys.

Title: Re: A big thank you to all
Post by Jonny on Jan 30^th, 2006, 8:13pm

on 01/30/06 at 20:02:06, Sean_C wrote:

Are those stats right? 4 in every 1000 people suffer from CH?
Can't be right guys.

It seems their stats are way off

" CH is a rare neurological disorder, affecting approximately 0.1% of the population"

Title: Re: A big thank you to all
Post by Sean_C on Jan 30^th, 2006, 8:22pm

0.1% is 1 in a thousand no? I have no idea, remember it takes me 185 seconds just to read the dumbass trivia, and another 100 seconds to figure out which dot to check off ;;D Just doesn't seem right thats all ;;D.

Sean...................

(sp)

Title: Re: A big thank you to all
Post by Jonny on Jan 30^th, 2006, 8:26pm

I believe I read many times (But dont quote me) that its 1 in 69,000

Im searching for it, but the pillow is calling me......LMMFAO ;;D

Title: Re: A big thank you to all
Post by Sean_C on Jan 30^th, 2006, 8:29pm

on 01/30/06 at 20:13:21, Jonny wrote:

It seems their stats are way off

" CH is a rare neurological disorder, affecting approximately 0.1% of the population"

As far as I'm concerned there's only 2 in Weymouth out of 53,998 people in a 2000 census of the population. I would say 54 which is 0.1% is even a bad number.

Sean..................................

Title: Re: A big thank you to all
Post by Sean_C on Jan 30^th, 2006, 8:30pm

LMAO nite bro ;;D

Title: Re: A big thank you to all
Post by E-Double on Jan 30^th, 2006, 8:42pm

oops missed that one :-/

Title: Re: A big thank you to all
Post by vig on Jan 30^th, 2006, 8:55pm

I remember seeing .069%...
which is about 7/10,000...
...at a packed Soldier Field for a game meant there were 50 more like me somewhere in the crowd....
we're not alone....
;;D

Title: Re: A big thank you to all
Post by Sean_C on Jan 30^th, 2006, 9:16pm

Paul that would mean 7 in 100,000 right?

Title: Re: A big thank you to all
Post by Drk^Angel on Jan 30^th, 2006, 9:42pm

Hey... At least O.U.C.H., CH.com, and Clusterbusters are listed in the external links.

PFDAN........................................... Drk^Angel

Title: Re: A big thank you to all
Post by Opus on Jan 30^th, 2006, 9:59pm

:-[ sorry fixed the thumbs down.

It was suppose to be a complement. It looked pretty good to me. I was sure that people from here had a hand in it. If you see something wrong feel free to edit it to make it more clear. That's what Wikipedia is for.

Opus/Paul

Title: Re: A big thank you to all
Post by Sean_C on Jan 30^th, 2006, 10:03pm

I didn't mean anything by it Paul. I thought it was great ;;D I just was curious if those stats were right thats all ;;D

Awesome job bud honestly ;)

Cheers

Sean..........................................

Title: Re: A big thank you to all
Post by E-Double on Jan 30^th, 2006, 10:11pm

Thought you were being sarcastic.......

We need some sleep...badly [smiley=laugh.gif]

Title: Re: A big thank you to all
Post by BobG on Jan 30^th, 2006, 10:44pm

Nice job Paul. Thanks.

But,

Quote:

Latitude plays a role in the occurrence of cluster headaches, which are more common as one moves away from the equator towards the poles. It is believed that greater changes in day length are responsible for the increase.

Is this true? We have a lot of Canadians and Northern Europeans here. And few South Americans. Maybe because of the language barrier?
A few years ago there was a very long discussion about this topic. If I remember right it seemed to be people who's families (past generations) were white/European types that were in the majority.
But, I could be wrong. Hell, I don't know.

Title: Re: A big thank you to all
Post by Opus on Jan 30^th, 2006, 10:54pm

on 01/30/06 at 22:03:18, Sean_C wrote:

I didn't mean anything by it Paul. I thought it was great ;;D I just was curious if those stats were right thats all ;;D

Awesome job bud honestly ;)
Cheers
Sean..........................................

on 01/30/06 at 22:44:11, BobG wrote:

Nice job Paul. Thanks.

No, No, No, No!
I didn't write any of it! If something you feel needs to be fixed the edit yourself, or put it in discussions. Anyone is free to edit, whether you join or not.

Title: Re: A big thank you to all
Post by floridian on Jan 30^th, 2006, 11:03pm

I wrote most of the wikipedia article, and Wendy/Pubgirl has also contributed. Since then, it has been comandeered by a wikipedia editor who is an MD, and he has repeatedly removed any link to my CH website - www.med-owl.com/clusterheadaches/ ... last few times I tried, they were removed within a day or so.. But that editor loves links to migraine pages. >:(

Title: Re: A big thank you to all
Post by Svenn on Jan 31^st, 2006, 1:59am

We are 4,5mill people in Norway and the new stats says of that amount it should be around 4-5000 clusterheads.

I do not know what kind of stats they are operating with in USA though

Svenn

Title: Re: A big thank you to all
Post by Charlie on Jan 31^st, 2006, 2:03pm

Very nice work kids. Very nice and it looks good too.

I've always read the 0.1% figure too but Jamestown has a population of about 35,000 and I've met two other clusterheads... one by phone who doesn't want to meet and the other in my neurologist's office. The doctor says he has several more patients too. The whole county has something like 130,00 the last I heard.

Charlie http://www.netsync.net/users/charlies/gifs/OUCH.png

Title: Re: A big thank you to all
Post by aprilbee on Jan 31^st, 2006, 3:03pm

Its a good article, but I really wish they'd leave the male to female ratio out of the equation...maybe I'm just bias here, but I wonder how many women go mis-diagnosed because some doctor looks at that ratio and figures it must be something else because of the gender...

just my [smiley=twocents.gif] really good article other than that..

Title: Re: A big thank you to all
Post by BarbaraD on Jan 31^st, 2006, 3:30pm

I guess Gladewater Texas had it's Over-Share cause after I wrote an article for the local newspaper people started popping up out of the woodwork. I knew of two before the article, but after that about 10 more popped into my office to tell me about being "alone" with their CH. The two I knew about committed suicide (yeah both of them - one a teenager and the other a 51 year old doctor). The population of Gladewater is only 6000. My neurologist treats about 35 CHers from the surrounding area of about 75,000 people.

I'm too tired of looking at numbers right now (tax season you know) to work up the statistics on this, but I think with more publicity on CH, we'll find more sufferers and more people getting diagnosed.

April, I have to disagree about the male/female ratio. I think this is very important to being diagnosed correctly for females. It's been a male disease for so long that docs need to realize that women get it too (we don't just have meegraines). The last time I checked it was about 75/25 male/female. That's up from 100% male 50 years ago.

Anyhow, that's my 2 cents....

Hugs BD

Title: Re: A big thank you to all
Post by floridian on Jan 31^st, 2006, 4:02pm

on 01/31/06 at 15:03:59, aprilbee wrote:

Now reads:

While migraines are diagnosed more often in women, cluster headaches are diagnosed in men at a rate 2.5 to 3 times greater than in women. This gap between the sexes has narrowed over the past few decades, and it is not clear whether cluster headaches are becoming more frequent in women, or whether they are merely being better diagnosed.

Title: Re: A big thank you to all
Post by Sean_C on Jan 31^st, 2006, 4:11pm

[smiley=thumb.gif]

Title: Re: A big thank you to all
Post by aprilbee on Jan 31^st, 2006, 4:17pm

on 01/31/06 at 16:02:01, floridian wrote:

Awesome!! :)

Title: Re: A big thank you to all
Post by Opus on Jan 31^st, 2006, 6:50pm

on 01/30/06 at 23:03:38, floridian wrote:

Great Job you two. I had something to add but I forgot what it was, Darn CH, but when I remember I will add your link, that is if I remember. I think the Doc doesn't like you adding a link to your own web site. That could be seen as self advertising. I am going to start an Article but I won't be adding a link to my own site, I'll let someone else do that ;)

Opus/Paul