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        New Message Board Archives >> 2006 General Board Posts >> CPH....I need as much first hand info as I can get
        
(Message started by: DonnaHar on Jan 24^th, 2006, 8:41pm)

Title: CPH....I need as much first hand info as I can get
Post by DonnaHar on Jan 24^th, 2006, 8:41pm

I just learned of a 20 year old young lady whose mom I work with who has what I, in my limited knowlege of this malady, sounds like CPH. Seizures are also a medical problem.

Naturally, her life is hell, never diagnosed and has no line of defense.

Please help. They're sort of counting on us...as they don't know what they are even dealing with, and our search engine in the archives isn't any help.

Thanks guys and gals,
Donna H.

Title: Re: CPH....I need as much first hand info as I can
Post by chewy on Jan 24^th, 2006, 8:58pm

Before we go ahead with suggestion about what "sounds" like CPH why doesn't she see a doctor for a diagnosis?

If it's not CPH your going to get a pile of useless info. If it is then endo is ussually 100% effective.

Not first hand but comprehensive:
http://www.emedicine.com/NEURO/topic67.htm

Title: Re: CPH....I need as much first hand info as I can
Post by Redd715 on Jan 24^th, 2006, 9:23pm

I can't believe this....I agree with Chewy?

Somebody check me for fever.... [smiley=laugh.gif]

Good advice Don...seriously.

Title: Re: CPH....I need as much first hand info as I can
Post by DonnaHar on Jan 24^th, 2006, 9:42pm

Thanks Don......good article.

Fact is, she's been to docs but remains undiagnosed. Sound familiar?

Looks like Inderal is the med of choice here so far. And I'm happy to see that Goadsby is working on it. I'll have to look harder, but if anyone has any solid info, I'd be very thankful and appreciative to hear it.

It's one of those things where she needs to go to a Neuro armed with her own info.

Title: Re: CPH....I need as much first hand info as I can
Post by chewy on Jan 24^th, 2006, 9:57pm

It says somewhere in that article that endo is 100% effective. Have her download it bring it to the Doc.

If its CPH this kid could be PF in no time and get on with her life.

Title: Re: CPH....I need as much first hand info as I can
Post by Drk^Angel on Jan 25^th, 2006, 8:45am

I thought endo was street speak for drugs... ;D Indomethacin is the recommended treatment for Paroxysmal Hemicrania, and has been found to be completely effective in nearly every case.

Quote from the International Classification of Headache Disorders 2^nd Edition, published by the International Headache Society.

Quote:

3.2 Paroxysmal hemicrania

Description:

Attacks with similar characteristics of pain and associated symptoms and signs to those of cluster headache, but they are shorter-lasting, more frequent, occur more commonly in females and respond absolutely to indomethacin.

Diagnostic criteria:

A. At least 20 attacks fulfilling criteria B–D

B. Attacks of severe unilateral orbital, supraorbital or temporal pain lasting 2–30 minutes

C. Headache is accompanied by at least one of the following:
1. ipsilateral conjunctival injection and/orlacrimation
2. ipsilateral nasal congestion and/or rhinorrhoea
3. ipsilateral eyelid oedema
4. ipsilateral forehead and facial sweating
5. ipsilateral miosis and/or ptosis

D. Attacks have a frequency above 5 per day for more than half of the time, although periods with lower frequency may occur

E. Attacks are prevented completely by therapeutic doses of indomethacin¹

F. Not attributed to another disorder²

Notes:

¹ In order to rule out incomplete response, indomethacin should be used in a dose of ≥150mg daily orally or rectally, or ≥100 mg by injection, but for maintenance smaller doses are often sufficient.

² History and physical and neurological examinations do not suggest any of the disorders listed in groups 5–12, or history and/or physical and/or neurological examinations do suggest such disorder but it is ruled out by appropriate investigations, or such disorder is present but attacks do not occur for the first time in close temporal relation to the disorder.

Comments:

There is no male predominance. Onset is usually in adulthood, although childhood cases are reported.

In the first edition all paroxysmal hemicranias were referred to as chronic paroxysmal hemicrania. Sufficient clinical evidence for the episodic subtype has accumulated to separate it in a manner analogous to cluster headache.

Paroxysmal hemicrania with coexistent trigeminal neuralgia (CPH-tic syndrome):

Patients who fulfil criteria for both 3.2 Paroxysmal hemicrania and 13.1 Trigeminal neuralgia should receive both diagnoses. The importance of this observation is that both conditions require treatment. The pathophysiological significance of the association is not yet clear.

3.2.1 Episodic paroxysmal hemicrania

Description:

Attacks of paroxysmal hemicrania occurring in periods lasting 7 days to 1 year separated by painfree periods lasting 1 month or longer.

Diagnostic criteria:

A. Attacks fulfilling criteria A–F for 3.2 Paroxysmal hemicrania

B. At least two attack periods lasting 7–365 days and separated by pain-free remission periods of greater than or equal to 1 month

3.2.2 Chronic paroxysmal hemicrania (CPH)

Description:

Attacks of paroxysmal hemicrania occurring for more than 1 year without remission or with remissions lasting less than 1 month.

Diagnostic criteria:

A. Attacks fulfilling criteria A–F for 3.2 Paroxysmal hemicrania

B. Attacks recur over greater than 1 year without remission periods or with remission periods lasting less than 1 month

PFDAN........................................ Drk^Angel

Title: Re: CPH....I need as much first hand info as I can
Post by JenniferD on Jan 25^th, 2006, 10:34am

*sigh* I can't read Doctor-ese.

I hope your friend (or mom) gets the diagnosis and meds she needs soon!

Title: Re: CPH....I need as much first hand info as I can
Post by Ghost on Jan 25^th, 2006, 10:39am

on 01/24/06 at 21:23:34, Redd715 wrote:

I can't believe this....I agree with Chewy?

Somebody check me for fever.... [smiley=laugh.gif]

Good advice Don...seriously.

If you insist now where was that thermometer?

I found it! :o :o :o

OOOps wrong probe. [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]

Title: Re: CPH....I need as much first hand info as I can
Post by Ghost on Jan 25^th, 2006, 10:43am

Sorry donna had to throw that in but deffinately what dark has posted would be seriously helpful. if she has no insurance bring her to er they have to treat. print what dark has and come prepared. good luck. oh yea chewy right on the money.
God I love this place help and great advise on call 24/7

Title: Re: CPH....I need as much first hand info as I can
Post by E-Double on Jan 25^th, 2006, 2:35pm

Exactly Chewy!

If it is E or C Paroxysmal hemicrania then it will be near 100% kept at bay by using Indomethacin!

Should get to a headache specialist.

Title: Re: CPH....I need as much first hand info as I can
Post by chewy on Jan 25^th, 2006, 3:52pm

Quote:

I thought endo was street speak for drugs

Yeah well. You can take the guy off the street but you cant take all the street outa the guy.

Title: Re: CPH....I need as much first hand info as I can
Post by DonnaHar on Jan 25^th, 2006, 8:32pm

You guys and gals are really great. I have several things to take to work with me tomorrow for them to research and present to their next doctor.

She has most of the symptoms that you mentioned, chewy.

I love this place and it's citizens.

Thanks to you all.