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        New Message Board Archives >> 2006 General Board Posts >> FOX news talking about ch  yesterday
        
(Message started by: eddie on Jan 22^nd, 2006, 10:42am)

Title: FOX news talking about ch yesterday
Post by eddie on Jan 22^nd, 2006, 10:42am

GOOD TO SEE
TALKING ABOUT O2 WORKING

Title: Re: FOX news talking about ch NOW
Post by maffumatt on Jan 22^nd, 2006, 10:56am

He wasn't very knowledgeable, I wouldn't go to him....indocin for CH

Title: Re: FOX news talking about ch NOW
Post by eddie on Jan 22^nd, 2006, 11:02am

he seem to be confused
but he did say 100% o2 works. my first neuro told me
1 in 10 o2 worked . thats why i fired his ass.
I wish everyone would email the dr rosenfeld
with questons and get the word out.
just think how many dont have a computer.
PFDAN TO ALL

Title: Re: FOX news talking about ch NOW
Post by JenniferD on Jan 22^nd, 2006, 11:21am

housecall@foxnews.com :) just sent.

Dear Dr. Rosenfeld,

Thank you so much for your report on clusters. As a cluster sufferer for 20 years, I appreciate that this horrible affliction is now gaining national attention and information is being provided to the general public.

I fully respect your medical expertise; however, I must point out that there are MANY women, and children of both sexes, who suffer with clusters. When physicians continue to see this as primarily a "man's illness", far too many women and girls are being misdiagnosed and suffer far too long without proper medical care.

Clusters are hell. I have been episodic for 20 years, yearly cycle starting in the fall and lasting for 3-4 months. Because this was a "man's disease", I was told I had sinusitis, tension headaches, needed glasses, stress, everything BUT clusters because doctors thought it was a "man's disease".

I have had migraines and have cluster headaches. Cluster pain is unlike any pain I have ever experienced in my life and truly far, far worse than migraines. Showing the woman on the street touching her head and saying it hurts so bad did a complete disservice to those who are cluster sufferers. If it was real, she would've been on her knees, banging her head on the concrete and begging for relief.

Please, please continue to report on cluster headaches so that the medical community at large will be better informed, the general public will become more understanding of the hell we face, and medical research groups will be forced to see that we NEED research and medicine specific to our pain.

A cause, a cure, our hope,
Respectfully,
Jennifer Donald

Title: Re: FOX news talking about ch NOW
Post by sandie99 on Jan 22^nd, 2006, 11:29am

Naturally, I couldn't see the broadcast back here, but I do think that it's great that they did broadcast something about ch! :)

Jennifer, great post! :)

Sanna

Title: Re: FOX news talking about ch NOW
Post by BarbaraD on Jan 22^nd, 2006, 1:12pm

Missed the report, but will get an e-mail off to him anyhow. Great e-mail Jen...

Hugs BD

Title: Re: FOX news talking about ch NOW
Post by cootie on Jan 22^nd, 2006, 1:29pm

DAM IT.....I missed it and usally watch fox news ! Anyhow......I don't have 100 percent faith in docs anyhow cuz they all seem to have different ideas on this mess.......my doc keeps tellin me topomox is the cure for ch.........duh......no way could Brad function on that stuff and next cycle I'm sure he will push the med and WE will have to educate him. Brad works with big presses daily.....there's no way. And my mom's new neuro for sum issues she was haveing told her he treats alot of ch and does NOT prescribe 02. Guess he talked to my mom quite a bit about it since he knew so much and she was interested cuz Brad has it. Course that doc shit cann'd her when her ins would NOT pay for some more tests he order'd even tho he told her her condtion wasn't something requireing surgery and could be treated with meds. He refuses to treat her further without the tests which will not really prove anything more anyhow. Pay up or get out Pam

Title: Re: FOX news talking about ch NOW
Post by eddie on Jan 23^rd, 2006, 6:05pm

i sure hope everyone emails them
the more news out the better off we are.
1 bump cause