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New Message Board Archives >> 2006 General Board Posts >> GODS involvement ?? part 3
(Message started by: mixter on Jan 21st, 2006, 8:17pm)

Title: GODS involvement ?? part 3
Post by mixter on Jan 21st, 2006, 8:17pm
I realize that for some this topic is annoying, anything or anyone that mentions the G word is told to STFU, shunned, or ignored. PLEASE do. I am looking for answers no matter how far out they may seem. If someone wants to say aliens abducted them and this is the cause of their ch let's talk about it.

When people commit the ultimate escape to escape these I am listening to it all baby. And because I know that he lives only makes it a deeper question of why for me.

I am thankful that I do not know a child that is a ch sufferer. To me I can not untangle the complexities of that situation. Dose anyone know of or can speak for the pain of a child that suffers from ch?

Speaking for MYSELF it is not a stretch to imagine that somehow deep within my psyche I have found a way to punish myself. The mysteries of the mind will be discovered for many many years to come. I am a believer of, if you can imagine it ...it can be done. To control the mind when we understand so little of it is almost laughable. Remember what we used to control not to long ago with labotomies and shock treatment have more benine and effective drug treatments today. Forty years ago we barely thought of going to the moon let alone pluto.

Those of us that share this disorder I believe are special. I don't know why, but because of it's rarity it is obvious we are. So heres to us...even you chewy


end part 3.... and for today

Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 21st, 2006, 9:57pm
What a fuckin bag of gas.

Good thing you didn't have any input on the ten commandments. God would still be cuttin the tablets.

Title: Re: GODS involvement ?? part 3
Post by Kevin_M on Jan 21st, 2006, 10:03pm
The King is gone.      We have chewy!      ;)







http://www.nationalgallery.org.uk/WebMedia/Images/55/NG5597/eNG5597.jpg




Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 21st, 2006, 10:06pm
Poor ole Moses would need a chiro.

Title: Re: GODS involvement ?? part 3
Post by Kevin_M on Jan 21st, 2006, 10:23pm
Looks like a tamborine in the lower left hand corner of the picture.  


Kumbaya
Koom-bye-yah
Coom-bi-yah
Coombya
Cum-bi-..


Getting ahead of the plot, that's part 42

Title: Re: GODS involvement ?? part 3
Post by AussieBrian on Jan 21st, 2006, 10:41pm

on 01/21/06 at 22:23:56, Kevin_M wrote:
Looks like a tamborine in the lower left hand corner of the picture.  


And a truck parked in the background.

Title: Re: GODS involvement ?? part 3
Post by cootie on Jan 21st, 2006, 11:42pm
That's not a tamborine it's a ch bracelet.......the ones we bought on here. hail to the bullshit Pam  8) 8) 8)

Title: Re: GODS involvement ?? part 3
Post by Kevin_M on Jan 21st, 2006, 11:46pm

on 01/21/06 at 22:41:21, AussieBrian wrote:
And a truck parked in the background.



The beer truck wasn't going anywhere http://www.40ozmaltliquor.com/oldbluebullcase.jpg  

Title: Re: GODS involvement ?? part 3
Post by LeLimey on Jan 22nd, 2006, 4:03am

on 01/21/06 at 20:17:15, mixter wrote:

I am thankful that I do not know a child that is a ch sufferer. To me I can not untangle the complexities of that situation. Dose anyone know of or can speak for the pain of a child that suffers from ch?



I am thankful you don't either. I can see you being about as much help as a cloth crash helmet. I DO know a child sufferer and you know what? THE LAST THING I DO IS THINK ABOUT IT COS IT HURTS TOO FUCKING MUCH.  >:(
I deal with it, I cope with it... but I don't think about it if I can help it.
Do you think eating bran would give me some of your moral fibre?

Title: Re: GODS involvement ?? part 3
Post by sandie99 on Jan 22nd, 2006, 9:11am
Well, all I can say, is that I believe in God. Always have and ch has not made me question my faith. I do think that I have ch for a reason -  when it begun, I had been treating myself badly for years and only begun to think in a positive manner. Since ch came into my life, my faith in God has become stronger, so has my faith in myself. I think positively now, I treat myself better now, I live a healthier life. And I live a PF life, now.

I don't know what causes ch... but I live in hope that one day that, too, is known. And that all the sufferers can get a proper treatment quickly from neurologists who know ch. Yes, I'm optimist... ;)

I have learned a lot from the pain, I have learned a lot from ch. I'm a better human being because of the lessons I've learned from it. I can see a lot of silver living in the dark cloud called ch in my life. That includes the wonderful people whose posts I read here each day.

Best wishes & PF days to all,

Sanna

Title: Re: GODS involvement ?? part 3
Post by cootie on Jan 22nd, 2006, 1:03pm
Here I go.........but I think religion is a master plan for control that dates way back of course......sense we don't know much about the universe we can only hope there is a god as we have been taught to save souls and not die eternally. Religion can be the difference between killing and being killed.....it puts a good fear into alot of people and keeps them straight and narrow which is a GOOD PLAN......don't get me wrong.....I am NOT knocking religion as some of you see it. I just don't beleive in monsters anymore then I believe in angels flying around our heads keeping us safe either. I do beleive in instinct and things we have inside us we don't know how to capture or understand......as far as getting a feeling when something is wrong or goin to happen or thinkin of sumone the same time theya re thinking of you kind of things.....stuff of that nature. Believieng is what gets most people thru life and all the hardships......so it works and I am not saying bad things about it. It is a belief......WHATEVER it may be. I think we are cells floating around someone elses bloodstream 'so to speak'....there's so much more out there.......believe what makes you have faith Pam

Title: Re: GODS involvement ?? part 3
Post by BobG on Jan 22nd, 2006, 1:29pm
God did not cause anyone to have cluster headaches.

God gave us the intelligence to cope with them.

I pray to God that there will not be a "GODS involvement ?? part 4".

Title: Re: GODS involvement ?? part 3
Post by LadyElaine on Jan 22nd, 2006, 1:50pm
http://i9.photobucket.com/albums/a57/sweetladybug/woman_drinks.gif

I will Drink to that Bob! Coke a cola but I will drink to it :-)

Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 22nd, 2006, 2:05pm
So Mixter, to sum it up for you:


Quote:
What a fuckin bag of gas.

Title: Re: GODS involvement ?? part 3
Post by mcf69 on Jan 22nd, 2006, 2:20pm
Whoa boy......... 3 things I don't discuss;
religion, politics, and religion

Title: Re: GODS involvement ?? part 3
Post by JenniferD on Jan 22nd, 2006, 6:34pm
Just my opinion here..........

I applaud you mixter.

For being new here, and going full on with what is going on in your mind. For "putting it out there" so to speak.

Not that I agree with what you say, I don't, but neither do I have an answer. I love the fact that, regardless of what others may think or say, you continue to THINK, to look for some kind of answer, however far-reaching those answers might be to some.

I can see that some on here are a little aggravated with your thinking or rationalization (or lack thereof), but do NOT, under any circumstances, stop trying to look for answers to this hell we face. Some of my thoughts and ideas and questions pushed some buttons too, and that's ok. As long as you are questioning, you are fighting......and we all need to fight this beast TOGETHER.

Do I think its God's design for us to have this? no. Can I handle the thought of a child with this? no. But I do truly believe that God brought us together here to help each other deal with what we share. And to use our adult strength and wisdom to comfort and help the children who face this or other hells.

So I applaud you mixter. Keep the faith, and keep fighting. One day, we won't have to anymore.

Jen

Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 22nd, 2006, 9:07pm

Quote:
For being new here, and going full on with what is going on in your mind


Applaud DJ for giving this windbag all the bandwith. You can clap by hitting the Paypal button. You and Mixter can applaud each other for a nice fat site donation.

Title: Re: GODS involvement ?? part 3
Post by Linda_Howell on Jan 22nd, 2006, 9:14pm


 
Quote:
You can clap by hitting the Paypal button



  For newcomers who may not know this.

DJ started this site for all of us in 1998.

He is not wealthy (except in friends)

and he has always paid for this site out of his own pocket.  He has also never asked for a dime from anyone.  So someone came up with putting a paypal button here so everyone can contribute whatever they can afford for the priviledge of having this place to come to for support and information.

Linda


Title: Re: GODS involvement ?? part 3
Post by Carl_D on Jan 23rd, 2006, 9:48am

on 01/22/06 at 14:20:28, mcf69 wrote:
Whoa boy......... 3 things I don't discuss;
religion, politics, and religion


Amen!

Title: Re: GODS involvement ?? part 3
Post by Dave_Emond on Jan 23rd, 2006, 12:23pm
Why the attacks and bashing of someone looking for answers or for “thinking out loud” to those who also speak out loud about their thoughts?
These message boards have been open to anyone who wants to talk about anything, some so irreverent to the topic of CH it’s almost absurd, but are all of these other posters told to STFU or donate money? Of course not!
Thoughts or opinions are not crimes on these boards, they are a means of trying to cope, maybe understand, or just any way to try to communicate with others who share their pain. When someone mention God, and you don’t like it, go to a different post. If I don’t like the porn messages I go to another post, but don’t think it’s my place to tell others to STFU … enough censorship in this world already!
I’m going to add a post I made years ago about faith and CH, they were private thoughts I wrote down. We have a right to think … ALL of us!

I could never pretend to pit one pain against another. There is no such yardstick. Pain is pain in its own sake, and takes on many forms. Many of which can only be known by the beholder.
Sometimes it helps to just talk. To let it all out. To curse those torturous demons that rip away at our heart, claw and grate at our minds, trying with all their might to eat away at our very soul. They are strong and relentless, never ceasing. They work from the inside, but manifest themselves outwardly, both physically and emotionally. They want not only us, but those around us.
How can I protect myself? How can I protect those around me? These demons can drop me to my knees in seconds begging for mercy. They can brutalize my concepts of logic, emotion, will … and sadly beat me down to the point of losing faith and hence respect for my own life. Then I am nothing.
I cannot allow this. I will not allow this. There are weapons to fight these demons, but my strength is weak to grasp them. One hand is already full of pride, I must drop it in order to have two free hands to receive these implements of war to battle these beasts. I hold so tightly to that pride as if it were my last defense, all the while knowing it is my demise. In anguish, I release it.
There is a faint but solid voice, “ My Grace is sufficient for thee, for My strength is made perfect in weakness.” This Grace fills the void left in my empty hand where the pride once ruled. Where pride had failed, the Grace of God now slashes through demons sending them scattering for hiding places.
I feel the gentle lifting of my other hand by family and friends, they would be there to lift me when I fell, to bandage my war wounds, to prepare me to stand again.
The demons only consider this a temporary setback. They reorganize, and spread to new bunkers. Their commander is wise to this type of battle and has defeated it before. Time. He is the master of time. He uses it well. He has specialized forces in camouflage. He knows his victim has already built up a certain degree of pain tolerance, in fact, to a point that others around them could not see the pain, (they are conditioned to the full on attacks). So, these demons secretly do their discrete attacks in the shadows, and the victim rarely makes too much ado about it. Victims tend to feel guilty about being a burden to those whose lives they have interrupted, unfounded … true, but these demons have done much damage to their preys minds. Time … maybe a day or two. The victim is fatigued, but will (along with the prodding of others) attempt to get back to life as they knew it. Easy steps at first, some simple chores, ignore the shadows and press on. The Beast loves to give that faint bit of hope before ambushing his victim again with full force.
The extreme pain is the initial onslaught, but the true arsenal is much more devastating. It’s called Anger. Anger is the Beasts best weapon. The excruciating pain sends the victim whirling out of control, hands flailing grasping for the first thing it can reach. The Beast Master of time knows this and the barrage of agony bolts endlessly and with such savagery the victim has no time to think. So they turn on themselves, foolishly hoping to rent the demons out by any means possible. But it cannot be done. Anger.
Anger bursts through our veins like boiling steam, electrical fires spark through our heads, nerves dangle like broken live wires in a storm. We run down the corridors of our minds, hands outstretched, reaching out for someone to grasp them. The demons slither out of creases in the folds of our brains and slash at us, they hang from above and drive spikes into our skulls. For every three steps forward we are pulled back two, but we push on. Eternity … the time of the Beast, it will never end.
I know they are there, I know I can’t clutch my hand to anger nor my other to pride, or I will lose the battle. Keep reaching, know … it will be there. And it is. Grace fills one hand and love from family the other. I can feel the evil spirits shrink and hollow back into shadows down into the deep crevasses of my mind. More bandages … more time?

Peace,
Dave

Title: Re: GODS involvement ?? part 3
Post by Jimi on Jan 23rd, 2006, 1:33pm
Awesome post Dave!

Title: Re: GODS involvement ?? part 3
Post by TomM on Jan 23rd, 2006, 4:53pm

on 01/22/06 at 14:20:28, mcf69 wrote:
Whoa boy......... 3 things I don't discuss;
her waist size, my waist size, and "Do you think she's pretty??"

Ditto.  ;;D

Title: Re: GODS involvement ?? part 3
Post by mcf69 on Jan 23rd, 2006, 4:57pm

Quote:
Whoa boy......... 3 things I don't discuss;
her waist size, my waist size, and "Do you think she's pretty??"


ROTFLMAO @ Tom  [smiley=laugh.gif]  [smiley=laugh.gif]  [smiley=laugh.gif]

Good one!

Title: Re: GODS involvement ?? part 3
Post by TomM on Jan 23rd, 2006, 5:14pm
I have what this thread needs: fast cars and good looking women.

http://www.thx2.net/hot-chicks-fast-cars/images/01Diablo-1_jpg.jpg

Title: Re: GODS involvement ?? part 3
Post by mcf69 on Jan 23rd, 2006, 5:15pm

on 01/23/06 at 17:14:05, TomM wrote:
I have what this thread needs: fast cars and good looking women.


I'll take one of each please!!!!!!

Title: Re: GODS involvement ?? part 3
Post by seasonalboomer on Jan 23rd, 2006, 5:30pm

on 01/21/06 at 20:17:15, mixter wrote:
Speaking for MYSELF it is not a stretch to imagine that somehow deep within my psyche I have found a way to punish myself.


If that's what works for you, then go for it. I find that line of thinking to be pointless for myself. I have Cluster Headache. That's it, an abnormality in my hypothalamus is what i'm told by the "facts". Okay, I'll deal with it without feeling as though some premarital sex, or illicit drug use when I was young has resulted in some form of divine retribution.

Life isn't as complicated as all that. In fact it is all so simple when you can shed the baggage that the worst aspects of judeo-christian mores apply to all of our interactions.

I'm not beating on this subject, I'm just trying to offer a respectful reply of my views, just as the originator of the thread has posted.

So for what its worth, it ain't God hurtin' your head. But the whole experience will strengthen your spirit and will and appreciation for life (also my opinion).

Scott



Title: Re: GODS involvement ?? part 3
Post by vig on Jan 23rd, 2006, 5:48pm
on Jan 21st, 2006, 8:23pm, mixter wrote:Speaking for MYSELF it is not a stretch to imagine that somehow deep within my psyche I have found a way to punish myself.  


on 01/23/06 at 17:30:07, seasonalboomer wrote:
I find that line of thinking to be pointless for myself.
Scott

it's self-destructive on top of that....
You are going to have to be at your best to cope with this CH.

Title: Re: GODS involvement ?? part 3
Post by mixter on Jan 23rd, 2006, 6:33pm
I took a deep breath when I contimplated posting what I have begun. I recieved pretty much what I expected, almost word for word in a few instances. That's o.k. When you poke a hive with a stick you know you will get stung. ouch! There is the other side of IT too. I'm smiling though because there were quite a few warm reponses, several sent private that are special. Thank you to those.

AND....as long as the hive is alive let me add another aspect to this that makes me ask these questions and make these statements.

This is partly where I got the nickname Mixter (originally Mixstir).

At the age of 49 I have been, yes I will use the word BLESSED, another conotation and reference to that word GOD, with numerous physical as well as visual happenings in my life. Things that I can not and will not deny nor explain.

Now here's the ingredient that when I mix and stir will evoke somewhat the same I'm sure. Not for the sake of the reaction mind you, but because it CAUSES me to ask the deeper questions, how, and why.

In part three I briefly touched in passing (otherworldly) aspects to someones possible explanation of ch. Well I'm not saying yes, and I am certainly not saying no. But my ex-wife and I experienced an incident(otherworldly) together that niether one of us has ever been able to explain. I by myself at about the same time frame while she slept next to me, and her by herself with an object implanted in her leg.

Because of all these many things I am compelled to ask the questions that most will avoid. When science fails, we have to turn to what is left. Maybe science next week will answer the question for us as to what it is we are going through. In my case it isn't genetics, no history of migraines or ch. It isn't my diet, my lifestyle or the fact that I pick my nose occasionally. The MYSTERY, as it is for most of us, if not all.

And as far as finding a cure, I am very skeptical. It's like releasing a new source of fuel apon the market that gives us free fuel from a tablet for a year. NO MONEY IN IT!!!! Diabetes, cancer, thyroid desease. Are the pharmacuetical companies and the doctors going to put themselves out of buisiness any faster than the fuel manufacturers. I laugh...capitalisim baby. We will kill ourselves before we cure the population. We will get a bone now and then though, but you can bet it won't be thrown our way. NO MONEY IN IT!!


Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 23rd, 2006, 7:07pm
So what meds are you taking to treat CH ?

Title: Re: GODS involvement ?? part 3
Post by Jimi on Jan 23rd, 2006, 7:26pm
The better question might be...What meds are you taking as you write these blurbs? ;)

Title: Re: GODS involvement ?? part 3
Post by Kevin_M on Jan 23rd, 2006, 7:35pm

on 01/21/06 at 17:35:10, mixter wrote:
Drugs appear to me to be band aids, though for some a very necessary one of survival. Because I can not afford them I choose not to use them as much as my doc would like me to.








on 01/21/06 at 20:17:15, mixter wrote:
If someone wants to say aliens abducted them and this is the cause of their ch let's talk about it.

Just looking for intelligent conversation from people that have been in this awhile


;)   wink wink                                 :)  nod approvingly



on 01/23/06 at 18:33:53, mixter wrote:
This is partly where I got the nickname Mixter (originally Mixstir).


Title: Re: GODS involvement ?? part 3
Post by mixter on Jan 23rd, 2006, 7:38pm

on 01/23/06 at 19:07:07, chewy wrote:
So what meds are you taking to treat CH ?


My last cycle was Imitrex, demerol, percocet,ergotamine tabs,O2,coffee,lithium,verapamil....not all at the same time of course. Just about every conceivable OTC that is sold. Some of them have been fun but,.... ineffective.

The most effective and financially viable has been ice packs and time. The one I am today discontinuing is topamax. It is killing my kidneys. It was a free sample from my doc but free stones are still stones.

Title: Re: GODS involvement ?? part 3
Post by Kevin_M on Jan 23rd, 2006, 7:42pm
Mixter,


Have you read about Kudzu, RC seeds, oxygen, or what level verapamil, which could be affordable?


How did the oxygen go?  There are improved masks now.

Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 23rd, 2006, 7:57pm

Quote:
The one I am today discontinuing is topamax.


That might explain a few things.

Title: Re: GODS involvement ?? part 3
Post by mixter on Jan 23rd, 2006, 8:20pm

on 01/22/06 at 09:11:22, sandie99 wrote:
Well, all I can say, is that I believe in God. Always have and ch has not made me question my faith. I do think that I have ch for a reason -  when it begun, I had been treating myself badly for years and only begun to think in a positive manner. Since ch came into my life, my faith in God has become stronger, so has my faith in myself. I think positively now, I treat myself better now, I live a healthier life. And I live a PF life, now.

I don't know what causes ch... but I live in hope that one day that, too, is known. And that all the sufferers can get a proper treatment quickly from neurologists who know ch. Yes, I'm optimist... ;)

I have learned a lot from the pain, I have learned a lot from ch. I'm a better human being because of the lessons I've learned from it. I can see a lot of silver living in the dark cloud called ch in my life. That includes the wonderful people whose posts I read here each day.

Best wishes & PF days to all,

Sanna


What you wrote is a lot of what I am feeling and asking of myself Sanna. I do not know if it is connected but I'm lookin at it. Mixter

Title: Re: GODS involvement ?? part 3
Post by Dave_Emond on Jan 24th, 2006, 12:05am
:-[
Wish I had the physical means to go "Tolstoy" here, but my health and concentration will spare you that.  ;)
Mixter is new here and thought it safe to ask for conversation on thoughts, thoughts that have come up many times before over the years. I'm embarrased at so many of the responses, but at least thankful for the few that have treated mixter with some respect.
We all know how hard it is to get ideas across on a message board, a big difference from sitting down and talking face to face. It's too easy to pull out a quote here and there and attack. Been seeing a lot of this on the boards lately. Been seeing more pics, jokes, politics, porn, trolls (no wonder) and just completely off CH topics. I don't mind these things, even enjoy some of the subjects. I do mind when a newbie comes to our family shares their thoughts and is ridiculed by a few who don't even put thought into responses, take things out of context, change the posters topic, etc.
What's happening here? Anyone want to say they haven't made a post that was misunderstood, or asked a question that was misunderstood. Maybe wrote a post they wish they could take back? Or the toughest is writing while in pain ... so very ... very hard to put in writing what we are trying to ask, question or seek help?  :-[ :-[ :-[
We didn't start out this way in the beginning of the boards, we were family and we treated each other with respect as fellow sufferers and supporters ... miss those days so much, we knew why we were all here ... wish we still did. Come on all us "old-timers" from the 90's, do you feel the difference?
So much for my humble opinion on that area. If I can hang on long enough though, I'd like to add a couple thoughts:
First ... Jimi has the best tag line on the boards:

"I am convinced that life is 10% what happens to me and 90% how I react to it."

Couldn't agree more Jimi!

Last, a note to mixter and anyone else who cares. I was having a conversation with some friends about God, CH and some other health issues during our garage sell. Many wondered why God would allow this ... many different views. But, there was a lady looking around and passed by our group and having heard most the conversation, casually walked by and simply said, "Maybe all this isn't about you, maybe God is working through you for the sake of someone or something else." She went on her way, but I'll never forget that ... so many possibilities with probably no absolute answers. Don't see any problems with people searching anywhere for answers. If we go back to listening and communicating with respect for one another we can still bring this back to a family here to support instead of tear down.
Okay, you'll be happy to know I can't go on ... taking to much effort to find keys and I can only hope I've made some sense and only wish for peace and support for everyone here.  [smiley=huh.gif]
Dave
And oh yeah ... God Bless!  :-*

Title: Re: GODS involvement ?? part 3
Post by JenniferD on Jan 24th, 2006, 7:39am

on 01/23/06 at 19:57:26, chewy wrote:
That might explain a few things.



I can't believe I am going to agree with you- and if anyone ever says I did, I'll say they lied...

but I was gonna say the same thing  :)

(just kidding mixter  ;) )

Title: Re: GODS involvement ?? part 3
Post by TomM on Jan 24th, 2006, 8:42am

on 01/23/06 at 18:33:53, mixter wrote:
At the age of 49 I have been, yes I will use the word BLESSED, another conotation and reference to that word GOD, with numerous physical as well as visual happenings in my life. Things that I can not and will not deny nor explain.

Now here's the ingredient that when I mix and stir will evoke somewhat the same I'm sure. Not for the sake of the reaction mind you, but because it CAUSES me to ask the deeper questions, how, and why.

In part three I briefly touched in passing (otherworldly) aspects to someones possible explanation of ch.

Hey Mixter. You found GOD. Good for you. Ask any person who's been in a foxhole, seen the sunrise in the middle of the ocean, or ask any parent about the birth of thier child and they will tell you they believe in GOD. Fantastic for you...but DO NOT ram it down my throat.

You ramble in your posts and are not clear...then I read: "My last cycle was Imitrex, demerol, percocet, ergotamine tabs, O2, coffee, lithium, verapamil....not all at the same time of course. Just about every conceivable OTC that is sold. Some of them have been fun but,.... ineffective. " You're a walking phamacological experiment. I personallly think your a druggie and are using CH for your fix. Clean up then come back.
TomM

Edit to add: This is my humble opinion. I could be wrong.

Title: Re: GODS involvement ?? part 3
Post by Bob P on Jan 24th, 2006, 10:02am
Imitrex, Zomig, Maxalt, Amerge, Frova, Cafergot (tabs, inhaler & sublingual), Sansert, Verapamil, Topomax, Darvocet, Vicoden, lidocane, fiorinal, beta blocker, shrooms, prednisone.

If you've been at it long enough, you give them all a try.  Am I a druggie?  Not because of what I listed but maybe because of the weed, reds, double crosses, coke, opium, hash and mescaline in the 60's I am.

Title: Re: GODS involvement ?? part 3
Post by TomM on Jan 24th, 2006, 10:17am
Bob I hear you but demerol, percocet and coffee????? Any of us who have been around know that the pain killers only bring on the rebound HA's. Coffee? I don't see a clear picture from this guy. I think his judgement is clouded.

Title: Re: GODS involvement ?? part 3
Post by mixter on Jan 24th, 2006, 11:17am
Well Tom as far as being a druggy or a pharmacological experiment....I do feel that way for sure sometimes. And I'll bet there are a lot of people that feel as if they are an experiment, wouldn't you think?

However, not that you or anyone LIKE you would believe it I have pain meds sitting on my night stand that are at the edge of their expiration date. Because things have not worked for me and they can be so expensive and I cannot afford health insurance like millions of americans, I go without it. I do keep Celebrex and hydrocodone for the arthritis in my hands so I can work....BLUE COLLAR BABY!!! we keep america, america.

It wasn't until 3 days ago while reading the fine print from the Topamax that I noticed that it was primarily for epilepsy but has increasingly been prescribed for migraines. And my caring Doc is and was only attempting to find something that might break my cycle. Which I am carefully stating seems to have closed, 4 nights in a row PF. I am actually edjucating my doc with a case of his own. They are still mistakingly attempting to treat migraines and clusters the same way. SAD. I've told myself to ignore the hostiles they /you, will go away, you always do. You don't water a weed it dies. I have almost felt as if I were on a grade school playground with the group of bullies that feel so inadequate with themselves that they lash out to make themselves feel important.

I was the kid that got expelled because I stood between those bullies and their victims. Never did understand that.

Peace Brother....Mixter

Title: Re: GODS involvement ?? part 3
Post by Kevin_M on Jan 24th, 2006, 11:32am

on 01/24/06 at 11:17:13, mixter wrote:
You don't water a weed it dies.


Glad to see you're able to relate less "otherworldly", due to not watering your previous posts.  

Welcome.

Title: Re: GODS involvement ?? part 3
Post by TomM on Jan 24th, 2006, 11:37am

on 01/24/06 at 11:17:13, mixter wrote:
Well Tom as far as being a druggy or a pharmacological experiment....I do feel that way for sure sometimes. And I'll bet there are a lot of people that feel as if they are an experiment, wouldn't you think?
Peace Brother....Mixter

I call it as I see it. I'm a no bullshit kind of guy.
If you can't handle the criticism, don't post on the World Wide Web.
I've taken your name calling quite well...thank you.
TomM

Title: Re: GODS involvement ?? part 3
Post by mixter on Jan 24th, 2006, 12:03pm

on 01/24/06 at 11:37:36, TomM wrote:
I call it as I see it. I'm a no bullshit kind of guy.
If you can't handle the criticism, don't post on the World Wide Web.
I've taken your name calling quite well...thank you.
TomM



Tom,

I shoot from the hip, I carry no chip. Intelligent criticism, if it makes me look inside to see an error needing to be corrected, I welcome.

Being that this is only my 15th post it is plain to see to anyone interested, I have not called anyone, anything.

Analogies are only that.

Mixter

Title: Re: GODS involvement ?? part 3
Post by floridian on Jan 24th, 2006, 12:51pm

on 01/23/06 at 18:33:53, mixter wrote:
In my case it isn't genetics, no history of migraines or ch. It isn't my diet, my lifestyle or the fact that I pick my nose occasionally. The MYSTERY, as it is for most of us, if not all.

And as far as finding a cure, I am very skeptical. It's like releasing a new source of fuel apon the market that gives us free fuel from a tablet for a year. NO MONEY IN IT!!!! Diabetes, cancer, thyroid desease. Are the pharmacuetical companies and the doctors going to put themselves out of buisiness any faster than the fuel manufacturers. I laugh...capitalisim baby. We will kill ourselves before we cure the population. We will get a bone now and then though, but you can bet it won't be thrown our way. NO MONEY IN IT!!


How do you know it isn't genetics?  Just because there is no family history doesn't mean that the the right (or in this case, wrong) set of genes came together, or a mutation occured, and that leaves you susceptible to CH.

Also, don't be sure about nose picking - atleast see the post on 'intranasal contact points' in the med section.  For some, sinus issues are a real factor.

You mentioned thyroid disease: My wife has thyroid disease, which she has been able to control and reverse by diet and supplements. Not what most people call a 'healthy diet' - a specific diet that has been tested and found effective for this condition.  It's not that all doctors are covering up the link between diet and autoimmune thyroiditis - there are lots of good published articles from doctors, and reading those gave her more control of her disease than her specialist thought possible.  

And please send me a package of those fuel tablets.  

PS - if you don't like the pharmaceutical industry and the prices they charge, you should look into switching out your celbrex for some curcumin (from turmeric root).  Many find it effective for arthritis (it is a cox-2 inhibitor), it has fewer side effects, improves cholesterol, prevents many types of cancers, and doesn't thicken the blood and raise the risk of heart attack like celebrex appears to do.

Title: Re: GODS involvement ?? part 3
Post by Linda_Howell on Jan 24th, 2006, 12:57pm
Mixter,

I am one of the old-timers who have been here a long time and everyone who knows me....knows that I am going to tell you this.  ;)

 
Quote:
demerol, percocet,



 DON'T TAKE THESE DRUGS FOR CLUSTER HEADACHES.  PLEASE.

  Back to your regularly scheduled conversation.   ;;D

Linda

Title: Re: GODS involvement ?? part 3
Post by Bob P on Jan 24th, 2006, 2:55pm

Quote:
Any of us who have been around know that the pain killers only bring on the rebound HA's.

Very true Tom.

Pain killers do nothing for clusters.  My advice is to save them for recreational use after the cluster cycle ends.

Title: Re: GODS involvement ?? part 3
Post by BMoneeTheMoneeMan on Jan 24th, 2006, 3:06pm

on 01/24/06 at 12:57:57, Linda_Howell wrote:
Mixter,




 DON'T TAKE THESE DRUGS FOR CLUSTER HEADACHES.  PLEASE.

 
Linda


Mixter, this is important.  Obviously, if you need pain killers for other ailments you are in a bind, but i think most everyone here will tell you that pain killers typically do more harm than good for cluster headaches.
I used to take lots of OTC and prescription pain pills, even things like fioricet specifically made for headaches, they all make it worse for me.
PF wishes
BMonee


Title: Re: GODS involvement ?? part 3
Post by Linda_Howell on Jan 24th, 2006, 4:23pm

Quote:
Pain killers do nothing for clusters.  My advice is to save them for recreational use after the cluster cycle ends



    Do I have anyones permission to strangle BobP in his sleep?    [smiley=bash.gif]


              Linda


 

Title: Re: GODS involvement ?? part 3
Post by BobG on Jan 24th, 2006, 4:34pm
No Linda, not yet. We'll be needing him as a punching bag during Hillary's run for the White House.


P.S. I love putting politics in God threads.  ;;D

Title: Re: GODS involvement ?? part 3
Post by Bob P on Jan 24th, 2006, 4:45pm
God will condemn Hillary to live on that plantion for life!

Hadn't though about that Bob.  Should be a good time for all involved!

Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 24th, 2006, 4:46pm

Quote:
P.S. I love putting politics in God threads.


Hey Bob,

Is it true God sometimes stays at the Bellagio? I know he sure as hell isn't down on Freemont!

Title: Re: GODS involvement ?? part 3
Post by Ree on Jan 24th, 2006, 6:51pm
I buzzed on through this and just wanted to say... I believe in you God, Jesus..... (add your name) so be sure when you hit this message board with your lightning bolt you hit the right posters.........


only kidding just felt left out......oh not kidding about the believing YOU GUYS KNOW IM A NUN...... REE

Title: Re: GODS involvement ?? part 3
Post by Linda_Howell on Jan 24th, 2006, 7:07pm



Quote:
YOU GUYS KNOW IM A NUN...... REE


    [smiley=huh.gif]  Does Dave know?


Linda    ;)

Title: Re: GODS involvement ?? part 3
Post by Dave_Emond on Jan 24th, 2006, 8:16pm

on 01/24/06 at 19:07:32, Linda_Howell wrote:
    [smiley=huh.gif]  Does Dave know?


Linda    ;)


Also a .... um .... er ... choke ... ahhh ... a 17 year old Nun at that! ;)
The other Dave  :-X

Title: Re: GODS involvement ?? part 3
Post by Linda_Howell on Jan 24th, 2006, 8:20pm




                   ;)



Title: Re: GODS involvement ?? part 3
Post by AussieBrian on Jan 24th, 2006, 8:41pm

on 01/24/06 at 16:34:47, BobG wrote:
P.S. I love putting politics in God threads.  ;;D


Sex.

Title: Re: GODS involvement ?? part 3
Post by Melissa on Jan 24th, 2006, 8:47pm

on 01/24/06 at 20:41:15, AussieBrian wrote:
Sex.

[smiley=JAW_DROP.gif]


NOWWWWWWWWWWWWW you're gonna burn in HELL!!! [smiley=worried.gif]

Title: Re: GODS involvement ?? part 3
Post by deltadarlin on Jan 24th, 2006, 9:38pm

on 01/24/06 at 20:47:07, Melissa wrote:
[smiley=JAW_DROP.gif]


NOWWWWWWWWWWWWW you're gonna burn in HELL!!! [smiley=worried.gif]


Only, and if only, he takes matters into his own hand, er, hands.

Title: Re: GODS involvement ?? part 3
Post by AussieBrian on Jan 24th, 2006, 10:50pm

on 01/24/06 at 21:38:48, deltadarlin wrote:
Only, and if only, he takes matters into his own hand, er, hands.


Truth is, ladies, that in all this world I can go to bed with any woman I please.

I just don't seem to please any.

Title: Re: GODS involvement ?? part 3
Post by BikerBob on Jan 25th, 2006, 12:18am

on 01/24/06 at 22:50:54, AussieBrian wrote:
Truth is, ladies, that in all this world I can go to bed with any woman I please.
I just don't seem to please any.


http://www.sexuality.org/l/sex/cunnfaq.html

BB

Title: Re: GODS involvement ?? part 3
Post by Bob P on Jan 25th, 2006, 11:30am

Quote:
No Linda, not yet. We'll be needing him as a punching bag during Hillary's run for the White House.


Can she serve another term?


Quote:
I'm not going to have some reporters pawing through our papers. WE are the president. (Hillary comments on the subpeonaed Whitewater documents)

Title: Re: GODS involvement ?? part 3
Post by Donna_D. on Jan 25th, 2006, 1:46pm
As I read through all of the thoughts and views on this topic I found that only one answer exists for me in answer to the question of God's involvement with my CH.

Yes, God is involved.  Just like he is with every other aspect of my life.  I was raised Baptist, but im not a "thumper".  I don't go to church and I don't blame my CH or any other misery I encounter on the fact that I don't attend.   I don't think I am being punished for "previous sins" in the form of "divine retribution".  

I won't lie.  I have sat and screamed at God and DEMANDED to know why I have to suffer like this, and why my children have to SEE me suffer like this.  I have wondered in times of deep depression and dispair (And believe you me there have been a lot of them lately) what it is that I have done so TERRIBLY WRONG that I have to go through all of this and why I have to hurt so bad.  Did it the other night, in fact.  I've had pneumonia since before Christmas.  I am SELF INDUCING Kip 8's three times daily by taking albuterol breathing treatments which I have to do to try and clear up my lungs (and its the only thing that is working so, no, I can't try anything else).  That is in addition to the four other hits I've been getting nightly.  I've been on eight different medications/treatments, half of which didn't work and none of which I can afford as I don't have health insurance.  In addition to all this my 5 year old broke her leg about 6 weeks ago.  So carrying her up and down the stairs with little to no lung capacity is killing me.  I throw up every time I get to the top and have to do this TWICE each evening when I get home from work once for the kid, once for all the other stuff.  I'm wiped out at the end of each day and then am up all night fighting with the beast.

Yeah, it would be really easy to blame God for everything that has gone wrong.

But instead, I think I will thank him.  

He gives me the strength to get through each hit, each breathing treatment, each trip up the stairs, each sleepless night, each time I tell a creditor that my payment will be late because of medical bills, each time I see my kids cry because the see me fight with the beast and each time I think I just can't make it through another day.  God gives me the strength to keep going and to not take a long walk off a short pier.

Nope, not going to blame God.  I am just going to thank him for seeing me through it all, thank him for my family here, and thank him for making sure that I wake up each day with the strength to face each challenge that is thrown my way.


My  [smiley=twocents.gif]

DD

Title: Re: GODS involvement ?? part 3
Post by BobG on Jan 25th, 2006, 4:07pm
Thank you Donna. You're a strong lady and a great mother. Hope that pneumonia clears soon.

Title: Re: GODS involvement ?? part 3
Post by Ghost on Jan 25th, 2006, 4:30pm
To or most precious gifts and most dreaded fears and pains, I would like to say Thank you Lawd for seeing me through them. I would like to say Thank you my brothers and sisters(CHenz) for standing beside me. I would also like to say Thank you to people who avoid me during a attack thinking I am crazy. I wont though I will just say Thank you to all who care and have not asked for more from me than I could give. And thank you to those who have helped me to understand not to ask for more than I need. The knowledge that I am stronger becuase of this family, is the greatest gift I can recieve, Much more than I need but thankfully it is for us all and not just me. Did god cause this? was it something we did wrong? are we being punnished? or possibly because of this people all over the world with differing views, opinions, beliefs, cultures, and dreams are pulled together and able to be as one force supporting each other through the troubles and pain making each ones burden a little less and assisting when we can to hold them up when they are weak. I believe there is a purpose here beyond anything we as mortal men and women can comprehend, I would like to believe because of this affliction we have become stronger together and alone. Did god cause it or did he just let it happen to see if we could see past our prejudges and become a family community with only one thing in common? As we grow we find we have alot in common and are not so different, just displaced.

Thanks for letting the sermon continue,

The  most reverend DeFunked!!!

;;D

Title: Re: GODS involvement ?? part 3
Post by BobG on Jan 25th, 2006, 9:48pm

on 01/24/06 at 16:46:23, chewy wrote:
Hey Bob,

Is it true God sometimes stays at the Bellagio? I know he sure as hell isn't down on Freemont!

He used to stay at the Bellagio but a new hotel just opened yesterday.........Hooters!
(this is no shit, it really did!)

Hey Boob, click this
http://survey.pollingpoint.com/3929941

Title: Re: GODS involvement ?? part 3
Post by chewy on Jan 26th, 2006, 7:54am
He didin't get the God job for being dumb.

Hooters must have better comps.



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