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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Hi
        
(Message started by: Mrs_Delts on Nov 30^th, 2005, 3:53pm)

Title: Hi
Post by Mrs_Delts on Nov 30^th, 2005, 3:53pm

Just a quick hi, although i'm not a sufferer physically i feel i am mentally. what i mean is my husband has suffered from clusters since before we were an item.
I'm hoping to get more of an insight into what this is all about as i can't begin to imagine what he must be going through not being a sufferer myself.
Yeah i can make a hot water bottle or give him a hug and sit up with him if he awakes me, but i'm hoping i can get some tips if thats the right word on what more i can do to help him, as no-one should suffer alone.

Title: Re: Hi
Post by zanychef on Nov 30^th, 2005, 4:12pm

Hi Mrs Delts!!
You at the moment are doing a fantastic job as a supporter just by being here ;;D
I myself am a sufferer and mainly during an attack prefer to be left alone my supporter Theresa can also do what to yourselves may seem very little but just knowing that someone is there to make the coffee(in my case) or fill a hot water bottle in yours is comfort in itself ;;D
There is a supporters corner here also where other supporters and sufferers can give you advice and support too ;;D ;;D
please feele free to use my email address on my profile so that i can give you my phone number for you both....
i only live round the corner in worthing as do several other sufferers live even closer ;;D
yours
Ian

Title: Re: Hi
Post by marlinsfan on Nov 30^th, 2005, 4:46pm

Hi Mrs. Delts. Ditto to what zany said. Except I live in Florida.

Check out the supporter's section of the board too, and listen to Margi. She's the super-supporter here ;)

Like zany, I too like to be left alone. Understanding that is a big step in supporting your husband. People sometime get offended if they are told to leave or leave somebody alone, so just understand that it's normal for him tell you so.

My wife packs a can of starbucks espresso shot in her purse when we go out, gets me the ice pack when I get up in the middle of the night and go for my oxygen, and mostly just leaves me alone when I'm being hit. I love her a ton, and I can tell you I probably would not be here on earth if she weren't around.

The other thing is watch what he eats and drinks, and see if you can link any of that to triggers of headaches. And when you do, watch his diet. Since my wife & I found my triggers, she does a great job at ensuring that I don't eat/drink them while in cycle. If I'm behaving well on that front, I hardly get any daytime hits.

Thanks for being a supporter. Without you our lifes would not be worth living!

Jose

Title: Re: Hi
Post by thebbz on Nov 30^th, 2005, 9:33pm

Good job !
My wife can sense when I have shadows. She knows without a word to start the coffee(in my case) get a wet towel in the fridge and stuff the injection. I have come from back from a black out from pain to see her trying to drag me to the truck.
She rocks! by the way. She also ,however knows when to run and when any help is futile. Get your mate on here and good luck.
jb

Title: Re: Hi
Post by MJ on Nov 30^th, 2005, 10:03pm

Ditto what they said.

I think everyone hear understands the pain it causes you as well.
If it were not for people like you we wouldnt have so much fun after.
Being you and staying upbeat is the best support you can give. Never pays to let worry get to you as well.

Just remember sometimes you have to change the schedules.

Title: Re: Hi
Post by Jasmyn on Dec 1^st, 2005, 1:45am

Welcome here Mrs. Delts!

Everyone said it already. There is nothing better for a Clusterhead than to know they have someone to stand by them and give them the support they need.

You will also need support to get through this but here you will find it. This is a great family to join.

Jas

Title: Re: Hi
Post by LeLimey on Dec 1^st, 2005, 4:56am

Hi Mrs Delts!
You may not physically suffer the pain as you said yourself but no one can tell me you aren't suffering as much as 'im indoors. I know how hard it is seeing someone else get hit, and feeling so helpless. Its crucifying and there is and always will be as much of a place here for you as for him.
Looking forward to getting to know you better :)
Helen