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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Hi everyone
        
(Message started by: hogleg on Nov 12^th, 2005, 8:19pm)

Title: Hi everyone
Post by hogleg on Nov 12^th, 2005, 8:19pm

Just stumbled across this site and was so excited I had to post. I have suffered for 25 years with cluster migrains and been down the same frustrating road that many here have and its some how refreshing knowing Im not alone.

What happens to me is, it occures usually once a year and last right at 30 days. When it first started it would be after I fell asleep about 1 hour and of course behind my eye balls there was a demon trying to get out, when I rotated my shoulders or neck they would pop like crazy. As many here experienced all I could do was to crawl around and bang my head. And wait for 30 mind altering days.

Yes, after searching for 20 years I found the almight "bowing to the Imitrex injection" drug. I have 17 of those injections on hand...thank god for insurance!

Anyway, hope people don't have to go through that for 20 years before finding Imitrex.
And I also haven't done my share of reading here but I've been able to avoid them all together by managing stress.

chow

oh yeah, its goin on 2 years since the last bout, and my hats offs to those going through that and maintain a full time job ; )

Title: Re: Hi everyone
Post by lionsound on Nov 13^th, 2005, 10:25am

Welcome!:)
Please do read around here, you may find something else to add to your arsenal ...and you most likely have something valuable to add as well.

Be well and Pain Free,
lionsound

Title: Re: Hi everyone
Post by chewy on Nov 13^th, 2005, 12:30pm

First lesson:

There is no such thing as a Cluster Migraine.

You may have Clusters
You may have Meeegraines
You may have both.

But they are two distinctly differant conditions.

Title: Re: Hi everyone
Post by hogleg on Nov 13^th, 2005, 3:17pm

Really!

All I know is that they are a mind bending pain that last a couple of hours and occure on regular intervels for 30 days.

Can you explain how 2 differnt symptoms are occuring...or are they?
1. the migrain
2. the once a year, 30 day pattern or cluster

Thx

Title: Re: Hi everyone
Post by thebbz on Nov 17^th, 2005, 10:41pm

I get migraines I have episodic CH. The neuros many years ago as calling them suicide headaches, also coined the term cluster migraine for diagnosis. They are two different enemies, very distinct in their own way, and now are diagnosed as they are, Migraine HA and Cluster HA without the suicide. Look around and you will find others. Read Conquering Headache by Rappaport lots of good stuff there. The more you know. I know it sucks. Trex,,,,dont leave home without it.
jb