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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> New to this Group 
        
(Message started by: SteveG on Oct 26^th, 2005, 10:41am)

Title: New to this Group
Post by SteveG on Oct 26^th, 2005, 10:41am

Hello,

I was recently diagnoses with CH, but I've been getting them since I was a child. When I was a kid people would tell me to deal with it, it's just a headache. Then, almost as if I can't remember, I didn't receive anymore until 2001. When they resurfaced, I literally wanted to end it all. They lasted for about eight weeks then dissapeared as fast as they appeared. This kind of pain is not meant to be tolerated. I've been in the military, had testicular cancer, followed by chemo and nothing compairs to this kind of pain. I've always thought of myself as a man who could handle any pain out there, and I can, except this. They started again about six weeks ago. I don't get several per day. I get one real bad one that lasts anywhere from 30 minutes to six hours. However, the one I got last night was different, not as intense, but long and throbbing. Maybe it's a sign that their going to end. I've said that before though, only to be dissapointed later that night. I really thought I was alone in the world. It's comforting yet sad to see there are others out there like me. Thats about it I guess. Oh, I'm 27 live in Kansas City. If it weren't for my girlfriend and eight month old son, I probably wouldn't be here. Thank you for listening.

Title: Re: New to this Group
Post by nani on Oct 26^th, 2005, 11:02am

Hi Steve. Welcome and sorry you had to find us. You have stumbled upon the best CH site out there. It's full of helpful info and supportive folks. Read all you can here, you are your own best advocate. Have you been officially diagnosed? Are you trying any meds?
pain free wishes, nani

Title: Re: New to this Group
Post by zanychef on Oct 26^th, 2005, 11:08am

hi Steve
glad you found here sorry you had to though
you just joined what must be the greatest family of non related people in the world [smiley=laugh.gif] [smiley=laugh.gif]
best advice i can give is read,read,read then present docs with your knowledge
see you soon
zany

Title: Re: New to this Group
Post by unsolved1 on Oct 26^th, 2005, 11:53am

Hi Steve ! Welcome aboard ! Grab an oar and help us row ;;D

Read, read, read !
http://www.brightok.net/~mnjday/chtherapy.pdf

PF Wishes
UNsolved

Title: Re: New to this Group
Post by SteveG on Oct 26^th, 2005, 12:44pm

Nani,

Yes I have been officially diagnosed. When I went to the emergency room last weekend. Thanks for the support.

To everyone,
Tell me more about Histimine. I've read a little about it. I've alos heard that lithium can be useful, although it's chalked full of side effects.

Title: Re: New to this Group
Post by pattik on Oct 26^th, 2005, 1:10pm

Hi Steve,
You might also want to take a look at oxygen as an abortive. There is specific information on how to use it properly for Ch here on this site. And the people here are great at answering any questions you may have. Good luck, and pain-free wished to you.
Patti

Title: Re: New to this Group
Post by Barry_T_Coles on Oct 26^th, 2005, 5:56pm

Hi Steve

Welcome but sad you have to be here.
This is a great family of people and have to greatest bag of knowledge about CH.
Read read and ask & remember there isn't any dumb questions, ask anything you want there will always be someone who can help.

Oh one word of warning DONT UPSET THE GIRLS THEY GET SAVAGE.
Now i'm outa here before they bite.

Kind Regards
Barry

Title: Re: New to this Group
Post by Gator on Oct 27^th, 2005, 10:52pm

Welcome to our little corner of the web, Steve. I can tell you, we all know what you're talking about with the pain. It's kind of nice to be able to find someone who can relate without having to explain it all. Sounds like you have two very good reasons to hang in there and keep fighting.

There's tons of info to be found here and lots of people who will answer any questions you may have. Knowledge is the key to getting the proper medical treatment you need. Read everything you can find ask questions and share what you have learned with others.

Check your messages - up in the right hand corner.

Again, welcome.

Mike

Title: Re: New to this Group
Post by LeLimey on Oct 28^th, 2005, 8:58am

Us girls aren't savage Barry and I'm gonna bust your chops for saying that ;)

As you can see Steve the girls here are all sweetness and light, one of the big things about this family is the support we give each other and the other is our sense of humour, if it wasn't for both it would be alot harder for me at least to cope.
Get your girlfriend to come to this site too.. theres as much here for her as there is for you, its tough being a supporter and seeing someone you love go through this diabolical pain. I'm a sufferer, my hubby is my supporter and I know he is torn up seeing me get hit.
I can only reiterate what the others have said about o2, its a life saver for me and I can't rate it highly enough. You need to be using a non rebreather mask and a high flow rate of 12-15 LPM for it to be effective, others can get away with lower but as a new user go for broke and get the optimum set up. Its med free, its cheaper than any triptan and you can get portable sized tanks (E tanks) so its perfect. Using O2 changed my life for the better and I can't recommend it enough.
My other advice is to read, read and read a bit more. This site is a gold mine of information and you can tap into the mother lode any time you like!
Looking forward to getting to know you and your family better
Regards
Helen
PS Baby photos are compulsory so hurry up thank-you-very-much!