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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> hi nice to meet you alll
        
(Message started by: biker_babe on Oct 24^th, 2005, 4:34am)

Title: hi nice to meet you alll
Post by biker_babe on Oct 24^th, 2005, 4:34am

hi my name is Debi, i was diagnosed a little over a month ago now, its only taken them 20 yrs!!!! im sad there are so many of us out there battling the beast that lives within, but im very glad to know there are others who know just how i feel when i scream "i wish i could just curl up and die!!" i will be reading and digesting any or all of the info i can on this site to learn more about this thing that lives with me daily, so thanks for, well, just being there. i could use a little help with the medication they put me on,"allegron" so if anyone has any suggestions be more then grateful, bye for now.

Title: Re: hi nice to meet you alll
Post by Kate in Oz on Oct 24^th, 2005, 4:55am

Hi Debi,

Welcome. I've not personally heard of allergon? Is it working for you?? Was hard to tell from your message whether you're chronic or eposodic.... My last couple of cycles I've used verapamil and 02 and that kinda worked - better than nothing!!

Anyway, I'm glad you found this site - it's been a godsend to so many of us. Stick around, let us know how you're going.

Wishing you PFDAN,

Kate

Title: Re: hi nice to meet you alll
Post by zanychef on Oct 24^th, 2005, 9:10am

hi Debi
i'm a chronic cher but cant really tell what you are from your post
try getting your doc to prescribe verapamil as a preventative and imigran subject as an abort then use the imitrextip at the left here to covver up to 6 attacks per day!
sorry you had to find us but glad you are here now ;;D
best place in the world for clusters both information and support ;;D
zany

Title: Re: hi nice to meet you alll
Post by RichardN on Oct 24^th, 2005, 11:00am

Hi Deb and welcome,

Also not familiar with the above med, but someone will be along who is.

GET A SCRIPT FOR OXYGEN! I can kill the beast in minutes if caught early enough. I keep it with me at all times. Read up on the "oxygen info" button (9th down on the left). Works for about 70% of us to abort . . . . proper regulator (15lpm) and mask (non-rebreather . . . the one with the bag).is essential for maximum effect. . . . .has kept me from many a "dance".

You have much reading to do and many questions to ask. Here you will find folks who truly understand your pain and can offer suggestions and experience to help you beat the beast.

Be Safe, PFDANs

Richard

Title: Re: hi nice to meet you alll
Post by Gator on Oct 24^th, 2005, 2:52pm

Hi Debi and welcome. You are definitely in the company of people who understand here. I'm always amazed and saddened at how long it takes some people to get diagnosed, escpecially since it presents with such classic symptoms. Time to do your homework and get the medical treatment you need. I've sent you a PM with info on treatments and more. Check the upper right corner of the page.

If you haven't already checked them out, take a look at the OUCH-UK website.

http://www.clusterheadaches.org.uk/

There you will find information on treatments available in your local area and even a phone number to call and speak to someone. There are several members of OUCH-UK here that should be able to guide you more specifically.

Allergon (nortriptyline) is a tri-cyclic antidepressant. It is also sometimes used for people with chronic pain. Here are some websites that will give information:

http://www.nmhct.nhs.uk/pharmacy/depr1.htm

http://www.drugdigest.org/DD/DVH/Uses/0,3915,497|Nortriptyline,00.html

http://www.rxlist.com/cgi/generic/nortrip.htm

Again, welcome to our little corner of the web.

Mike