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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Long time, first time...
        
(Message started by: Joey_Joe on Sep 28^th, 2005, 12:51pm)

Title: Long time, first time...
Post by Joey_Joe on Sep 28^th, 2005, 12:51pm

Hello all;

As a 14-year sufferer of this horrible monster I am so very glad to have found this board today. I can't believe there are so many people who "feel my pain". Currently, I'm in week four of my first cycle in almost 3 years. Some days no clusters, other days 4 or 5 clusters, almost always around an 8 on the Kip scale. No discernable triggers, but most cycles have happened in the spring or fall.

My Dr. told me 6 years ago that there wasn't much I could do about it. Exercise sometimes works, other times makes it worse. It looks like this board is filled with different tips and ideas - I plan to try all of them.

My heart really goes out to everyone on this board.

J.

Title: Re: Long time, first time...
Post by nani on Sep 28^th, 2005, 7:07pm

on 09/28/05 at 12:51:29, Joey_Joe wrote:

My Dr. told me 6 years ago that there wasn't much I could do about it.

Well, that's a crock! Welcome, Joe, and sorry you had to find us. There is no cure, but there's plenty you can do about it. Look here for traditional meds:
http://www.brightok.net/~mnjday/chtherapy.pdf

Look here for a promising alternative:
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1110584362

And, another very promising alternative:
www.clusterbusters.com

I suggest you find a good neurologist who has a clue about CH. In the meantime, read, read, read. There's lots of great info here.
pain free wishes, nani

Title: Re: Long time, first time...
Post by Kris_in_SJ on Sep 28^th, 2005, 7:40pm

Hi,

Nani gave you the best of the links there are in current existance! Please read them.

There are much better treatments available besides heat/cold/exercise/caffiene, etc. (though many here prefer these and I find them helpful for shadows).

If your doc has no suggestions for good abortives like Oxygen, Imitrex, etc., then find a new doctor first. There is a treatment or a combo of meds out there that can probably help you. Follow the links .....

Hugs,

Kris