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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Neurofibromatosis--Any Connection?
        
(Message started by: Fig on Sep 21st, 2005, 8:48pm)
Title: Neurofibromatosis--Any Connection?
Post by Fig on Sep 21st, 2005, 8:48pm
Have you even heard of it? This is a neurological disorder/disease, involving the whole body. There are tumors--internal and external--overgrowths of nerve endings. It's genetic. Progressive, incurable--tho they have identified the marker on the gene that causes it and are working towards a cure.... It's terribly complicated. Anyway..I have it, I have numerous tumors (external) but one was found last year on the surface of my brain behind my right eye (headache side!!). These tumors, while generally begnign can become malignant. Oh how cheery! Anyway. I'm just wondering if anyone here is familiar with NF and has any thoughts as to  a connection.  Thanks. Marion
Title: Re: Neurofibromatosis--Any Connection?
Post by nani on Sep 21st, 2005, 9:12pm
:(  I've never heard of it. I found a message board for it though.
http://brain.hastypastry.net/forums/forumdisplay.php?f=190

pain free wishes, nani


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