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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Hello....
        
(Message started by: Rivkid73 on Sep 13^th, 2005, 11:26am)

Title: Hello....
Post by Rivkid73 on Sep 13^th, 2005, 11:26am

I just found this site and wanted to stop in and say hello...
My name is John, I'm 26 and I've had cluster headaches for about 4 yrs now.Off and on(actually, I went for almost 2yrs without one!!)until just recently. They are back. If I am fast enough, I take 2 500mg excedrin Tensin headache pills, and tighten up my hat, and they aren't as bad. Also, if I am at home and I don't catch it in time, Super Blue Stuff(or Goo) works pretty good to dull it out.

Title: Re: Hello....
Post by seasonalboomer on Sep 13^th, 2005, 11:55am

Welcome to the site -- sorry you have a reason to find it.

Are you referring to the solvent "Goo"? If so I'm not even going to tell you that's not such a good idea --- you know it's not. As for "Super Blue Stuff" we've not had anyone to cite this as an abortive in the past but if it's working for you -- okay.

Please explore the site for what treatments and medications have been found to be effective in helping many of us manage our CH. There are some very specific options for you that have wide use and effectiveness. These include Oxygen and Imitrex. Since you use an alternative product already, you might want to take a look at the Kudzu thread -- a lot of us have found this to be very effective (especially episodics).

You may find that overuse of the Excedrin result in rebound headaches -- this has been cited before here and some thing to watch out for.

Spend some time on all the info -- it's very worthwhile.

Scott

Title: Re: Hello....
Post by Rivkid73 on Sep 13^th, 2005, 12:56pm

It is the super blue Stuff, with emu oil, I believe.... As for the Excedrin TH, only as directed....learned the hard way about taking too much.

Title: Re: Hello....
Post by jcmquix on Sep 13^th, 2005, 3:22pm

Hi Rivkid73....

Welcome to the site, sorry you had to find us this way, but its nice to meet you...

Well #1 if you are using the TREX inj, try the tip to the left, alot of the user's of TREX inj here find that they get the same results from a small amout of the TREX inj also with the tip to the left, you will not exceed the 12mg a day....

Also check out the tip to the left on the O2, I got it in the middle of this cycle and the O2 cut my TREX use alot, I got to where I was only using the TREX once a day, at my 1am hit... The O2 usually works in about 10 minutes for me.. just got to push your Dr really hard for it... even print out the information and take it to him.

If you are getting the night time hit, you may want to ask your Dr about trying the Melatonin.... I started that also in the middle of this cycle at the advice of a few of the Veterans here.. it cut my hits to almost nothing at night.... Its available OTC... you can get it in the Health Food Section of any Major Store... Get the 3mg pills...

I take the Melatonin (9mg) 3 pills about 30 minutes before bed time and I can usually sleep through the entire night, if I do get a hit, its usuall pretty light....
It take about 3 or 4 days to get into you system and start working, I'd say if your getting the night time hits, give it a try... its cheep...

Other than that I am sure someone who is good with the Meds will be along soon to ask a few questions...

I suggest that you Read, Read and Read more. This site has the collection of many of Hundereds of years of experience of dealing with CH.... The Support System here is Great, if you need to Rant, Rave or just need someone to talk to.. the lights are always on here 24/7/365....

Sorry I had to paste from another section, but I am short on time...

Pain Free Days to YOU !!!

God Bless
Charlie

Title: Re: Hello....
Post by Margi on Sep 13^th, 2005, 3:41pm

um, word of advice? All emu oil does is piss off the emus. (makes me hate to think how they get baby oil??) Isn't going to touch your headaches. It's more probably the tightening of your hat that is relieving some pain than it is the emu oil doing anything.

Have you seen a doctor at all? There are some natural methods for dealing with cluster pain if you're not able to get to a doctor. Read up on the kudzu here in the medications section, or check out the clusterbusters site (www.clusterbusters.com), or try melatonin, oxygen, water, etc.