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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Old time sufferer, first time poster
        
(Message started by: jug_head on Aug 25^th, 2005, 11:48am)

Title: Old time sufferer, first time poster
Post by jug_head on Aug 25^th, 2005, 11:48am

:-[

Hi Folks:
I'm Mike from Kentucky. 34 yrs old, have had CH's for half my life (started at 17 yrs old) they have followed me through college and my first marriage. "ENGINEERING SCHOOL WAS LESS STRESSFUL WITH A CH THAN MY EX-WIFE" ;)she always thought I was nuts ::)

Have gone through the gauntlet of med's to try to tame the beast . Had a good run for two years with allot of pfd's but this summer has been one date with the beast after another--and she has teeth this time around.

I live close to Lexington which has some top notch Neurologist that have been working with me for years. Oxygen is my abortive of choice but i keep imatrex injections around when it's in-appropriate to bring my tank ;)-

I look forward to talking with you folks! because until I found this site a few days ago! I thought that no one in the world knew the dance partner that takes my sleep at night and puts a fear into me of getting hit by the beast when I can't help but being in public or work.

hope the best for all of you, and look forward to becoming a part of your community.

Title: Re: Old time sufferer, first time poster
Post by seasonalboomer on Aug 25^th, 2005, 11:58am

on 08/25/05 at 11:48:29, jug_head wrote:

Hey Mike,

Welcome to the dance. Glad you found us and you don't have to look forward to being part of the community, you are part of it and have been for 17 years.

Couldn't tell from your post, are you episodic? It sounds as though you usually have an okay summer, but this summer you're getting extraordinarily hard.

Based on your present treatment regime you may find one of the alternatives suitable. Take a look at the Kudzu Survey thread -- that's some pretty good data, particularly for episodics. Many of us have been able to have very manageable cycles and potentially shortened cycles through it use. Before considering it, read the other thread and you can see some of the experiences others have had. (As with any medication, check with your physician, just cause it's herbal, doesn't mean it is harmless).

Enjoy the community here. There's a lot of good info and some pretty funny moments, and every once in awhile a good row to get everyone's blood going. Just like any other community.

Good luck and PF days to you.

Scott

Title: Re: Old time sufferer, first time poster
Post by thebbz on Aug 25^th, 2005, 10:04pm

Hello ,
The information is plentiful here and always someone to dump on. Sorry you have to be here. Read, Read. Just the history in some of these threads make dummies of neuros that know it all.
All the best.
BB