Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Headpain
        
(Message started by: Soror on Aug 11^th, 2005, 5:25pm)

Title: Headpain
Post by Soror on Aug 11^th, 2005, 5:25pm

Lorem ipsum dolor sit amet.

Title: Re: From South Texas, Fresh off the Grill
Post by rextangle on Aug 11^th, 2005, 5:39pm

Again, welcome (I greeted you on your other post)
Sorry you have to be here, but this is the place to be.
If you are thinking about taking Kudzu, most people recommend that you detox from other meds.
There's also another alternative treatment.
You can find information at:

http://www.clusterbusters.com

Feel free to ask questions, vent, laugh, cry, anything that you need to do.

Take care,
Rex

;)

Title: Re: From South Texas, Fresh off the Grill
Post by burnt-toast on Aug 13^th, 2005, 5:58am

This nightmare is never an easy thing to adjust to.

How does one explain how a rare non-fatal disease with no regularly outwardly visible symptoms has such a dramatic impact on ones life? After all, headaches and lack of sleep are signs that someone isn't copeing with stress, right?

It's even more difficult when most folks we deal with have never even heard of CH. Good support is critical and information is key. Both are here, read and ask questions.

Welcome to club dred.

Tom

Welcome to club dred.

Title: Re: From South Texas, Fresh off the Grill
Post by don on Aug 13^th, 2005, 8:43pm

Well. Here is some good news for oyu. (Sort of)

Your not chronic! Chronic is 12 months of CH without 30 days of pain free time.

So far your episodic.

Title: Re: From South Texas, Fresh off the Grill
Post by Kevin_M on Aug 13^th, 2005, 9:15pm

on 08/11/05 at 17:25:46, Soror wrote:

At the moment, I am taking Depakote, Verapimil, and use Maxalt as an abortive. So far it works -pretty- well, but occasionally I don't get the Maxalt in time, and sometimes it doesn't work at all. It's still so early after the diagnosis that we haven't had time to test anything else, and the doctor is loathe to switch meds quickly, worrying about what it will do to my innards.

Preventatives usually take some adjusting to get right or to see if they are going to be effective for you. Abortives are important, in combination with icepacks too. Oxygen helps many.
If going the kudzu route, stay on schedule all the time.

Welcome

Title: Re: From South Texas, Fresh off the Grill
Post by Jasmyn on Aug 14^th, 2005, 1:35am

Welcome!

Unfortunately meds have side effects and it sometimes takes a while before we get something that works. Just to have it only work for another while and then you have to start looking at other alternatives. But it is no reason to get despondent.

The great thing is that you will find a lot of alternatives and advise on this site. There are people here that will guide you because of experience (not because they are doctors) but they definitely have more experience with meds than any doctor regarding CH!

So read, ask questions or advise and you will always find some good info from the people who knows the most.

PFDAN's to you! ;)

Title: Re: From South Texas, Fresh off the Grill
Post by Juan_Carlos on Aug 14^th, 2005, 10:35am

Hi:

Really this is the place for us, the ClusterHead sufferer !!!!

In addition to abortives (O2 plus Triptanes) try Melatonin (9 mg per night 30 before sleep).

I was strarted with melatonin with 3 - 4 attacks per night. Last night I have ONLY one attack.

Good luck!!!

Juan Carlos

Title: Re: From South Texas, Fresh off the Grill
Post by Jasmyn on Aug 14^th, 2005, 12:16pm

Great news Juan Carlos!

Wishing you more and more PF nights! ;)

Title: Re: From South Texas, Fresh off the Grill
Post by Juan_Carlos on Aug 14^th, 2005, 7:58pm

on 08/14/05 at 12:16:55, Jasmyn wrote:

Great news Juan Carlos!

Wishing you more and more PF nights! ;)

Tks a lot Jasmyn .....

The first nigth with Melatonin was terrifying!!!. I had have 6 attacks this night. But the next night I had have only one attack.

Hope to have a better sleep today.

regards

Juan Carlos

Title: Re: From South Texas, Fresh off the Grill
Post by Barry_T_Coles on Aug 16^th, 2005, 7:01pm

Hi Soror
You are in good company here, I have only been diognosed with CH late last year but have suffered for nearly 6 years.
I have learned more in the last 6 months from this site than I ever thought possible.

If you have trouble with people understanding our condition I have found the best way to get the message across is to print off a copy of the piece Margi wrote about us, it's located in the panel Cluster traits to the left, third from the top, give it to people you need to get the message across to especially your family it really puts into plain language where we are at and puts thier mind to rest a bit.

The link below was placed in another post and has a lot of good info.

http://216.25.100.131/ihscommon/guidelines/pdfs/full_form_watermarked.pd f

Hope things get better for you, keep the chin up & keep punchin.

Kind Regards
Barry