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New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Newbie for MA.
(Message started by: marycav on Aug 2nd, 2005, 7:43pm)

Title: Newbie for MA.
Post by marycav on Aug 2nd, 2005, 7:43pm
Hello All,

Glad to have found this site...it only took me 23 years of suffering.  I've tried many things over the years and have just about had it.  The latest meds that the doc has put me on is "Nortriptyline"...anyone heard of it??  Also, can anyone tell me how to get insurance to pay for more thatn 2 Imitrex shots per month??  This is probably the worse CH attack I've had yet.

Thanks,
Mary

Title: Re: Newbie for MA.
Post by burnt-toast on Aug 2nd, 2005, 8:09pm
Hi Mary

You probably want to give  us a little background on your headaches, diagnosis and history.  Have you been diagnosed with CH?  

I personally have no experience with Nortriptyline but others may.  Ask you Doc. if he/she has some Imitrex samples you can have most drug salesmen load em' up, if you time it right you'll have a reasonable supply.  Insurance coverage is something I can't help with.  

In any case 23 years is a long time to suffer, I hope you're eposidic.  There seems to be a lot of "worse attacks yet" going around this year and I believe someone started a thread on the subject.  There's a lot of good information available on the site.

Read and learn.  

Welcome to the "Headbangers Ball"

Tom  


Title: Re: Newbie for MA.
Post by Sean_C on Aug 2nd, 2005, 8:23pm
Hi Mary, lots of people from Ma. here. Who's your nuero? Maybe I can help.

Cheers

Sean...............................

Title: Re: Newbie for MA.
Post by don on Aug 2nd, 2005, 8:30pm
Hi Mary

Right up the road in Weymouth.

Have your Doc write a letter of neccesity to the insurance company and also call them directly.

Did this Doc Rx the Nortriptyline specifically for CH ?

Check your PMs. (upper right hand corner of the board)

Title: Re: Newbie for MA.
Post by Sean_C on Aug 2nd, 2005, 8:32pm

on 08/02/05 at 20:30:54, don wrote:
Hi Mary

Right up the road in Weymouth.

Have your Doc write a letter of neccesity to the insurance company and also call them directly.


exactly ;;D worked for me too ;;D

Title: Re: Newbie for MA.
Post by Jonny on Aug 2nd, 2005, 8:37pm
Mary,

Im in Weymouth and having a CH cookout Saturday.....Bring your hubby or boyfriend.

PM me and I will give you directions.

......................................Jonny

Title: Re: Newbie for MA.
Post by Sean_C on Aug 2nd, 2005, 8:40pm
or girlfriend ;;D

Title: Re: Newbie for MA.
Post by eyes_afire on Aug 2nd, 2005, 8:50pm

Quote:
The latest meds that the doc has put me on is "Nortriptyline"...anyone heard of it??


Yes, I have personal experience with it.  It is also known as Pamelor.  It's classified as a tricyclic antidepressant and is useless for CH.  Docs like to prescribe it for migraine.  All it ever did was make me sleepy (which is not a good thing for me....).

--- Steve (it's nearly 10 pm and I'm getting sleepy... where's my Mountain Dew?)

Title: Re: Newbie for MA.
Post by don on Aug 3rd, 2005, 6:51am

Quote:
Im in Weymouth and having a CH cookout Saturday


Nice front lawn.

Bring some livestock.

Couple of cows, a moose, whatever.

Title: Re: Newbie for MA.
Post by lionsound on Aug 3rd, 2005, 8:28pm
Hi Mary,
I've taken nortriptyline perscribed at the same time as bunch of other things to help my migraines (I get migraines and CH)...and on purpose to make me sleep better. Certainly made me sleepy, but didn't do much for my migraines and didn't touch the CH. As steve said it is also used  as an anti-depressant...usually in higher doses than for HA's.

Welcome and I hope you find some relief.
I also hope you find you way to that cook out :).
-lionsound

Title: Re: Newbie for MA.
Post by Sean_C on Aug 3rd, 2005, 9:15pm

on 08/03/05 at 06:51:01, don wrote:
Nice front lawn.

Bring some livestock.

Couple of cows, a moose, whatever.


ROTFLMMFAO strap on the feed bag boys ;;D

Title: Re: Newbie for MA.
Post by Ree on Aug 5th, 2005, 7:30pm
wE'RE COMING BY THE WAY........ OH HEY MARY.... MY FAVORITE NAME... AFTER OUR MOTHER IN HEAVEN DON'T GET ME GOING I'M PART NUN BUT YOU ALL KNOW THAT...

To the point Nortryptaline is probably the 1st med that docs prescribe.  I would seriously love to know who your doc is too since we are in the need of a good Neuro.  If you want to meet people with the same horror as you.  You really should try to make the cookout.  Its a family of people like no other.   Good luck and God bless..... Ree

Title: Re: Newbie for MA.
Post by sassy_lady on Aug 6th, 2005, 7:57am

on 08/02/05 at 20:30:54, don wrote:
Hi Mary

Right up the road in Weymouth.

Have your Doc write a letter of neccesity to the insurance company and also call them directly.
(upper right hand corner of the board)


Also worked for my husband, my husband Charlie gets 6 shots a month, but he brakes then down & that helps alot, he is jcmquix, will have him post for you,
welcome, nice to meet you, sorry under these reasons, but your in the right place!!
PFDAN'S TO ALL!!
Lots fo Love & Prayers to you & yours!!
LOL Jolene



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