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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> GOD, Im relieved this wasnt all IN MY HEAD.
        
(Message started by: wiley789 on Jul 13^th, 2005, 6:21am)

Title: GOD, Im relieved this wasnt all IN MY HEAD.
Post by wiley789 on Jul 13^th, 2005, 6:21am

Hi my name is Willy.
Ive just now discovered this site, and I am so glad to find Im not imagining these headaches, Im working in Kuwait at the moment and the doctor I saw diagnosed migraine, she gave me OLFEN. This worked for two days then started to lose its effect, now Im back on chewing aspirin. I know the dangers of too much aspirin but when an attack comes on I only have one thought in my head, I have to get it to go. Im 48 yrs old and this started about six weeks ago and has been constant, when its not full, its sitting there waiting to pounce, I feel it ALL the time LURKING. Im at my wits end, I have to work, yet when I have an attack I feel everyone thinks I am exaggerating and a wimp. If this continues like it is I think I could lose my job. Im just reaching out at the moment, I can feel tears in my eyes just writing this, the relief of knowing Im not alone, anyway time to wash my face, I will be happy for any advice and look forward to hearing from any fellow sufferers.
Willy

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by AussieBrian on Jul 13^th, 2005, 6:34am

Willy, you are not alone. I repeat, Willy, you are not alone.

You've just walked into a family that completely understands your pain and suffering and fears. Stay with us, this is important.

None of us are doctors. We don't do diagnoses or write scripts, but you have only one defence - information - and this is the place to get it.

There's no such thing as a silly question here, mate, so ask away. Give us a hint as to what you're going through and we'll help you everyway we can.

You're not alone, Willy, you're amongst friends now. Just take a big deep breath and tell us your story.

Brian Down Under.

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by wiley789 on Jul 13^th, 2005, 6:54am

Thanks for your message Brian, Im suffering a bit at the moment so this is brief, Im glad to hear from you mate, i will reply more soon.
Willy

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by AussieBrian on Jul 13^th, 2005, 6:59am

Make sure you do 'cos we're on your side.

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by Bob_Johnson on Jul 13^th, 2005, 8:30am

Print this article and share with you doc. It's the most current practice in terms of treatment. The author is one of the better headache doc in the U.S.

You may wish to look at the "medication" button, left, to see the reported experience of many of us.

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. (2002)

http://www.brightok.net/~mnjday/chtherapy.pdf

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by burnt-toast on Jul 13^th, 2005, 10:45am

It's not uncommon for Docs. to have never treated a cluster patient - gather as much information as possible and be prepared to educate those that will provide treatment.

In the grand scheme of things - I hope you have a condition that's a little more treatable.

In the meantime - hang in there - welcome to the headbangers ball.

Tom

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by Kirk on Jul 13^th, 2005, 11:41am

Sorry to see you here. While there is no "cure" for our condition. It is treatable. Everybody is different, so it will take a little work between you and your Doc to get it rite for you.
Read up on the info to your left, and print out everything you need for your Doc.
I've been dealing with this since May of 69 and the combo that works for me is O2 at 15/lpm and Imitrex injections when that doesn't work.

Remembe you're not alone in this. Jump right in and start rowing along with us. We'll get there.

TTFN

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by RichardN on Jul 13^th, 2005, 12:43pm

Welcome Willy,
. . . . . and sorry you have to be here, but if it is CH, there's no better place to be.

Ditto the above. Also check out the thread E-Double started at the top of the "Getting to Know You" board. There you will find a letter to employers and friends that help explain our little horror.

Take the "cluster quiz" (fourth button down on the left ) and let us know how you do.

Do you drink? Alchohol is a trigger for many of us (including me - quit 2/02 when found this site). A beer, shot of brandy or glass of wine can bring on a ch within 20 min. for me.

Although some attacks can and do last longer (jeez, do they ever), most dissipate on their own within 20-30 min. , and give the illusion that the aspirin is helping . . . .. helping eat up your stomach maybe. I did the same (was taking 6-10 Goodies Powders per day . . . not good).

Oxygen is my only abortive (can't take triptans) and is a miracle for many of us . . . . very effective, especially if used early-on in the attack.

Read, read, read and copy info for your doctor(s). You must get a proper diagnosis. Also ask any questions you may have . . . . Much experience and information on this board from people who truly know your pain.

Keep in touch.

Be Safe, PFDANs

Richard

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by jcmquix on Jul 13^th, 2005, 12:49pm

on 07/13/05 at 11:41:30, Kirk wrote:

Remembe you're not alone in this. Jump right in and start rowing along with us. We'll get there.

TTFN

Exactly, Well Said....

About 45 days ago, I started my cycle again for the first time in almost 3yrs... I was lost...

I did not know what I was going, thought I was going to end up losing my job, also.

But with the Help of ALOT of people here, exspecially E2 & Redd, I have gotten the SUPPORT & Meds that I need.
I am still working the BEAST, but I know now that I am not CRAZY and I am not alone.

Welcome and as I was told Read, Read & Read more.. this is the only place you will find answers to your CH questions... :)

PFDAN to ALL !!!!

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by paul_pero on Jul 14^th, 2005, 7:42am

Gday Willy,

Don't feel alone, there are unfortunately quite a few of us. Check out the links above and read as much as you can on the site.
Paul

Title: Re: GOD, Im relieved this wasnt all IN MY HEAD.
Post by wiley789 on Jul 14^th, 2005, 9:20am

Many Thanks to everyone who has offered me advice and support, just knowing you are there has helped considerably, I have had a good 20 hours since my last one, I work night shift 12 hours, and I have had a real good kip. I can barely feel it there for now. as Im new to this , maybe its gone away for a while????. I really hope so, as then I can concentrate on finding out what I can do about it, I have been reading the boards and there is a mountain of information to sort through, i will print off all the info for the docs and hopefully they will recognise the ailment and work out the best course of treatment. again MANY thanks.
Willy
ps I stopped taking the aspirin, GOOD advice. ta
I hope all you have lots of PFDAN. thanks