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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Hi everyone
        
(Message started by: Blackrosa on Jun 15^th, 2005, 6:21am)

Title: Hi everyone
Post by Blackrosa on Jun 15^th, 2005, 6:21am

Im sarah and i have been having these headaches since jan!

At first the doctors told me it was just a migraine and gave me a list of triggers..so i stopped eating and drinking all on that list..But they just came back and with a vengence..This time i have had these head aches for 3 weeks..And at last the doctors have a result..Im a clusterhead!!!

Title: Re: Hi everyone
Post by BobG on Jun 15^th, 2005, 7:31am

on 06/15/05 at 06:21:47, Blackrosa wrote:

Im a clusterhead!!!

Be proud! Stand and scream it to the world!

"I am among the few, the proud, the .05% of the world's population with the title of CLUSTERHEAD!"

Well............uhmmmm......maybe not.

Welcome to the board Sarah. Sorry you had to come looking for us. There is a lot to learn.

Please tell us some more about yourself. Like........
what is a Blackrosa?
;;D

Title: Re: Hi everyone
Post by E-Double on Jun 15^th, 2005, 7:39am

Welcome aboard sister!!

This is a great resource to know like the back of your hand...print it out and give it to your doc

http://www.brightok.net/~mnjday/chtherapy.pdf

It will present the appropriate treatments that you should seek and your doctor should know!!!

Ask for a script and if needed FIGHT fOR Oxygen...
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm

Educate your doctors!!!

Here is a link to OUCH (Organization for Understanding Cluster Headaches) UK

http://www.clusterheadaches.org.uk/home/index2.cfm?address=../home/txt_welcome.cfm&added=Dec2001&code=AD

Good luck and stay strong!

E

Title: Re: Hi everyone
Post by Langa on Jun 15^th, 2005, 9:50am

Welcome to the family Blackrosa!!

Langa

Title: Re: Hi everyone
Post by Blackrosa on Jun 15^th, 2005, 10:57am

thankies for the warm welcomes...Im trying to do as much research on it as i can...but when the beast awakens its pretty hard.

I love black roses...I know they aint really real and have to be dyed..but they are so sweet and beautiful. and true beauty is on the inside...so i picked the name..besides its my devaint art name too.

Title: Re: Hi everyone
Post by LeLimey on Jun 15^th, 2005, 11:22am

Hello Sarah!
Its nice to meet you. What meds are you on at the moment? I'm only asking because sometimes doctors don't always know of the better treatments and we can arm you with knowledge!
Have a look at OUCH UK too, it will be very relevant to you as some meds have different names between here and the US for instance, also they have some stunning new info on employment law which is groundbreaking (Thank our Pubgirl aka Wendy for that, she is incredible!)
Reading IS your best weapon and I know its alot to take in at once. Feel free to ask any questions and ask them as many times as you need to as well!
Look after yourself
Helen

Title: Re: Hi everyone
Post by Blackrosa on Jun 15^th, 2005, 6:28pm

im on a preventor...to stop or reduce the attacks..plus i have to take somehting whenthe attacks happen

Title: Re: Hi everyone
Post by vig on Jun 15^th, 2005, 10:03pm

Hi!
read up, enjoy the wonderful people here....
Hope you get better soon

Title: Re: Hi everyone
Post by Blackrosa on Jun 16^th, 2005, 5:26pm

ye i will...had an attack in work...the other girls must have thught i was crazy lol

Title: Re: Hi everyone
Post by Gator on Jun 17^th, 2005, 11:47am

on 06/15/05 at 18:28:06, Blackrosa wrote:

im on a preventor...to stop or reduce the attacks..plus i have to take somehting whenthe attacks happen

Hi and welcome. Either of these two meds have an actual name? LOL Knowledge is power and there's tons of it just laying around waiting to be absorbed. You are your own best advocate in your treatment, but you have to be well informed. Read everything in the links to the left and in the various message boards. Check out the UK site as well. Lots of location specific info there and even a hotline you can call to talk to a clusterhead who's been there and will help you, too.

Good luck and again, welcome!

Title: Re: Hi everyone
Post by pubgirl on Jun 17^th, 2005, 7:35pm

Gator

She's been given a migraine preventer called Pizotifen (an anti-histamine) that probably isn't worth the energy it takes to digest it

Wendy