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(Message started by: Punky on Jun 4th, 2005, 11:53am)

Title: New Member
Post by Punky on Jun 4th, 2005, 11:53am
Hello, everyone!  I just wanted to thank all of you for being here and give you all a bit of a background on myself.  

I began having chronic daily headaches on the right side of my head during mid July of last year.   I was diagnosed with another neurological medical condition last November, but after a trip to a neurosurgeon a few weeks ago, they now feel that I am also suffering from cluster headaches.  I didn't ask, but I assume they are referring to the chronic clusters.

Yesterday, on a trip to my neurologist, they started me on three days of Prednisone to try and break the cycle and 50 mg of Topamax for continued therapy.  I have tried Topamax before with no success (for the other condition), but never with the Prednisone, so maybe that will be the key.

Again, thank you for being there, and my thoughts are with all of you wishing you a pain free day!   :)

Title: Re: New Member
Post by TKDFORCHRIST on Jun 5th, 2005, 10:12am
welcome punky.

Hope the treatment works.


Title: Re: New Member
Post by Jonny on Jun 5th, 2005, 10:18am
Welcome aboard, Punky

Sorry you had to find us, but this is the best place to be if you have CH.........Keep reading.

................................jonny

Title: Re: New Member
Post by jokrs2 on Jun 8th, 2005, 1:47am
Hey Punky. I hope your treatment works for you. Lots to browse thru here and lots of help. Blessings, Joe

Title: Re: New Member
Post by yikes-another-one on Jun 8th, 2005, 7:23pm
I tell you what.

I went and had my wisdom teeth pulled
(just two in the left side, and not because of the headaches.)

But the dentist prescribed a steroid
to reduce the swelling.....

Oh man.

What a great time I had for 3 days.
No clusters.

I would have danced from the rooftops!!!

(everyone talks about how bad it hurts to
  recover form the toothaches....
  but I tell you, even that pain didn't reach a level 3
  and at least I had oxycodene to take care of that pain)

i actually cleaned my apartment....
and could formulate a thought without
pen and paper.

As soon as the taper began,
it was back to normal.

4-8 headaches every single day.


Of course, I won't take no more steroids...
didn't like the heat-effect,
and with ADD  it just wasn't a good thing
to SPEED up....hahahhahahaahhaha


But it was nice.  to catch the break...
In fact I still dream about that feeling,
you know, not looking over your shoulder
and second guessing how your day will turn out.

Title: Re: New Member
Post by mcf69 on Jun 8th, 2005, 11:19pm
Welcome to the board Punky, take a look around and check out all the info available.  Best of luck to you.

Title: Re: New Member
Post by Sandy_C on Jun 10th, 2005, 9:02am
Welcome Punky

Sorry you had to find us but glad you did.  The folks on this board are absolutely awesome with their knowledge, suggestions, and most of all support.  You've come to the right place. :)



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