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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> pancakes
        
(Message started by: bigAl on Mar 23^rd, 2005, 8:29pm)

Title: pancakes
Post by bigAl on Mar 23^rd, 2005, 8:29pm

I'm a long timer CH; more years than I want to count.
First timer on this board.

I was really happy to find the site at first. Lots of helpful info.

Now I find myself wondering if I want to make company with misery. I've just spent too much time with the beast.

God it's really hard sometimes.

I love making whole wheat pancakes with my kids on Saturday mornings. I love shooting arrows and riding my mountain bike in the spring when it's warm. I love long walks in the park in the fall when the leaves are everywhere. I love late night dinners with my wife on the weekend. I love falling asleep with a good book and waking up the next morning (without the beast), and time to ponder my dreams.

God help us all to have good dreams.

bigAl

Title: Re: pancakes
Post by judkins on Mar 24^th, 2005, 2:34am

Welcome new timer [smiley=wave.gif]

bigAl when I first read the boards I thought OMG what am I doing here. Then I realised that being a fellow clusterhead I needed people round me.. people who understood. It was the best thing I have done in a long while, and I'm so thankful I found the site.

True I get upset when I read some of the posts... but reading them gave me so much support and hope as I read how all these peeps deal with the beast in their own ways... we are all different. When I feel miserable when I'm being hit I visit the boards and there is always some-one alot worse than me.. this gives me the encouragement to carry on. For that alone I am truly grateful.
Like you I love doing the things you mention although my pancakes leave alot to be desired.
I find walking my dog can help an attack as I find it hard to keep still.
I can't remember the last time I read a book... one of my favourite pastimes. Just can't concentrate enough. I am positive that as soon as this cycle ends I will again be a bookworm.
I really hope that you visit the boards again bigAl because you will find the support you need from these good people who have put me back on the right track.
God Bless em all.
Wishing you PFDAN's
Sincere best wishes Judith

Title: Re: pancakes
Post by jokrs2 on Mar 24^th, 2005, 2:37am

Hi bigAL. Sorry you have the demon at your door, but it sounds like you have a lot to be thankful for also. I have been hoping and praying that I can have more (non CH time) so that I can enjoy doing more of the things I like & be around the people that I treasure. Recently another sufferrer suggested that I try a different therapy and as a result I'm starting to get what I've been hoping & praying for. I am blessed to have been able to find this site and to be available to the information & help that is here. My world is very small but this site is a very big part of it. I wish you many pain free days & nights and all the joy of God's blessings. Joe

Title: Re: pancakes
Post by ninaperdida on Mar 24^th, 2005, 9:10am

Hi BigAl and wife,

Alot of props to your wife for hanging in there with you.My daughter and I read your post this morning We both sit here and cry like babies when we read some of these messages.Its good to vent your frustration out in tears.All along I thought I was alone but im sure happy that I found a family that shares the same ups and downs that CH suffers go through.I've been sick since December 2003.The beast just dont want to leave me alone.Day after day I've suffered and Im still waiting one pain free day.I know that people out there have it worse than I do but that gives me motivation to go on.Anyway welcome to the family I am new too!! [smiley=wave.gif]

Title: Re: pancakes
Post by TxBasslady on Mar 25^th, 2005, 12:09am

Welcome to the board, bigAl

I enjoyed reading about the things you like to do. I know that it's hard, and extremely difficult to cope with CH. But...somehow....we make it thru each day. I used to wonder, every day, if the CH would ever go away. I realized that much energy was spent hoping and wishing for something that I had absolutely no control over.

Thanks to the great support on this board, I learned to take things one day at a time. So much understanding and love passes thru these threads. As bad as I thought my CH was, I came across so many here that have it far worse than I. Thru the sharing of our pain, we can make it thru the bad times.

The greatest experience of my life was meeting another clusterhead. There's nothing like it. There's an instant bond like you wouldn't believe. I've found lifelong friends here.....friends that will never forsake me. Friends who suffer just as I do....friends who understand the pain.

Don't be discouraged.....I can't promise you that the pain will go away, but I can promise you that the support on this board is the best...anywhere.

Usually someone here 'round the clock.....and the best part of all....is that you're not alone.

Best of luck to you....give us a shout anytime. ;)

PF vibes,

Jean

Title: Re: pancakes
Post by E-Double on Mar 25^th, 2005, 12:13am

short and sweet....ditto all the above!

Hugs to you and welcome.

Always around with a shoulder to lean on and an ear to listen :)

Eric

Title: Re: pancakes
Post by Kim Y. on Mar 25^th, 2005, 9:31am

Welcome bigAl

I have been here a few months now and still continue in cycle.

I am afraid that if I didn't have this sight to turn to I truly would go insaine. This sight and these wonderful helpful individuals here help me want to wake for another day and face it head on. As well as my husband who worries nonstop and wishes just like me that the beast will leave me alone soon.

You have found a wonderful place and it is full of pick me ups when your down.

Please come back again. :)