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Title: English newboy! Post by english_scottie on Mar 12th, 2005, 6:42am hi guys, Its is indredible to find a forum that actually has other suffers of this painfull headache. Unlike most people that i have read about i was diagnosed yesterday after only having 2 attacks, which i must say, caused the most severe pain than i have ever felt. My name is Scott and Im only 17, and think that these attacks have been brought on by recent stress of "Girl Troubles". I had planned a career in the British Military Police, but if these attacks are going to be a regular thing that is not the best of ideas. I have been refered to a specialist and given an oxygen tank to shorten the lenghts of the headaches, which so far have both lasted 2 hours untill i have fallen asleep with the pain. i was just wondering, [smiley=huh.gif] to all of you who sufffer, what jobs you are able to hold down, and how long everyone has suffered? I have read through the heat or ice topic and think that heat seems to help me but any personal preferences will be greatly taken on board. Thanks Guys English_Scottie |
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Title: Re: English newboy! Post by don on Mar 12th, 2005, 7:04am In 28 years of CH i have never lost any job because of them. |
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Title: Re: English newboy! Post by LeLimey on Mar 12th, 2005, 7:27am Hi Scottie, Nice to meet you! The best advice I can give you is to read read and read a bit more. There is a ton of info here which will help you alot. First of all do the cluster quiz on the left. This is very important. There are several other headaches that are similar to Clusters but get treated by quite different meds and which are extremely effective. Most doctors don't spend much time learning about headaches so to get an accurate diagnosis from a GP is.. more difficult! I want you to get the best treatment possible for you especially if you want to be a red cap! This shouldn't stop you though. There are many members of the forces who post here so hopefully that will give you a bit of encouragement! O2 is a miracle for me but you need to use it properly to get the best effect. Do you have a non rebreather mask and are you using it at 12-15 litres per minute? If not it isn't going to be much use to you. Follow the OUCH link on the left to the OUCH UK site. You will also find tons of help there particularly with meds in the UK and also if you need a regulator for the O2 they can help out. I'm sorry this has been a bit long winded but I hope it helps. Let us know how you get on okay? Helen |
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Title: Re: English newboy! Post by E-Double on Mar 12th, 2005, 7:31am Hey Scottie, You are vey lucky to have been diagnosed so quickly!! It sucks that you have to deal with this but since you have the opportunity to learn about the "disease" so early in your CH career I will offer you some advice...... Stay as positive as you can and have meds stockpiled and ready for battle if/when needed. Life goes on ya just need to live it! Took me a long time to stop questioning the "Beast" and to get motivated to start living. I'm a Special education teacher/Behavior analyst and run home schools for developmentally disabled toddlers. I go from house to house all day and have to teach, counsel, and train. It gets hectic but I have learned to never leave home without my meds regardless how I feel(sometimes feel great....then BAM!) Keep your chin up and remember... "IT IS WHAT IT IS" so breathe and try to live to the best of your abilities. DO NOT LET THIS THING DETER YOUR DREAMS!!!! You want to go into Law enforcement...GO FOR IT!!! Here is the UK site for the Organization for Understanding Cluster Headache: http://www.clusterheadaches.org.uk/home/index.cfm?address=../home/txt_welcome.cfm&added=Dec2001&code=AD This is also a great resource to know like the back of your hand http://www.brightok.net/~mnjday/chtherapy.pdf It will present the appropriate treatments that you should seek adn your doctor should know!!! Wishing you the best !! Best, Eric |
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Title: Re: English newboy! Post by english_scottie on Mar 12th, 2005, 8:35am hey, thanks for all replying so quickly. I have been givin a giving set and a mask but have no idea what to do with them so its just a matter of waiting now until it hits again. The doctor was pretty quick in deciding what it was with the symptoms that i described, but. Its great to hear that it doesnt effect any of your jobs, especially those such as Erik where he is with other people. Red Caps here i come hey. Thanks guys Scott |
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Title: Re: English newboy! Post by TonyG1 on Mar 12th, 2005, 8:36am Hi Scottie - Welcome to the board! So sorry you have to be here for CH :( but glad you were able to get diagnosed so quickly! As Helen points out -- read, read, and read some more. This board is by far the most excellent source of information I have found about the CH condition. I've had the CH condition for about 18 years and as Don pointed out I've never lost a job because of them either - currently work as a software developer. (sometimes stressful but for me that seems to have very little to do with my CH cycles) In terms of your attacks, how did they present -- Did the initially wake you up? of were they of the daytime variety? One important thing to remember is that CH should not run your life -- Certainly, you have to make some accomodation for it BUT my advise is to pursue what you want to do in life and LIVE! Take care and I wish you many PFDANs! Tony |
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Title: Re: English newboy! Post by english_scottie on Mar 12th, 2005, 8:42am hi tony, umm, the first one i had was right before bed, and the pain was out of this world. i think i rolled about for 2 hours trying to relieve it. It wasnt until the pain killers took effect that it went....... i think, or whether the pain actually knocked me out! Um the second one was yesterday afternoon, right behind my eyesocket and then engulfed one side of my head from my forhead to cheek and then my ear. But, that was in the middle of the day, drove home from college only to roll around again for 2 hours! Thanks for the advice, scott |
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Title: Hey Scottie.Re: English newboy! Post by jokrs2 on Mar 12th, 2005, 7:10pm Hi Scottie. That is an amazingly quick diagnosis. I have had ch for over 20 years and was misdiagnosed for the majority of the time between then & now. I would like to recommend that you check out all the information on the left side of the screen and read as many of the posts by others as you can, as there is a wealth of information and advice, which is priceless. I could never go to sleep with a full blown CH so Someone ;) is definitely on your side. Best wishes and may your cycle end soon and never return. And don't worry the right woman will show up at the right time, so relax. Joe P.S. I got off Morphine and Imitrex and now only take Kudzu (a natural herb & root) and I am having great success. |
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