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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Hi everyone!
        
(Message started by: Davies on Feb 17^th, 2005, 5:52pm)

Title: Hi everyone!
Post by Davies on Feb 17^th, 2005, 5:52pm

:'( Hi this is my first post.I went to the doctors today and he told me that I have got cluster headaces.Havent heard of it before.He gave a spray to use.Its got to work I have two small kids Dan 5 and Sophie nearly 2.When I get a bad head I cant look after them.Well just wanted to say hi and if any one wants to let me know more I would find it very helpful Jo xx

Title: Re: Hi everyone!
Post by Filbert on Feb 17^th, 2005, 7:45pm

Hi Davies and welcome to the board but sorry you're suffering so much at the present time. This is a great site with loads of info but if you you want to check up on the UK angle then go to www.ouchuk.org where you'll get the Brit slant on all things CH.

Cheers Filbert.

Title: Re: Hi everyone!
Post by vig on Feb 17^th, 2005, 8:42pm

Hi,
What kind of spray is it?
Make yourself comfortable...
relax and enjoy

Title: Re: Hi everyone!
Post by nani on Feb 17^th, 2005, 9:12pm

Welcome Jo and sorry you're here. You've found a place with lots of good info. Pain free wishes, nani

Title: Re: Hi everyone!
Post by sandie99 on Feb 18^th, 2005, 1:33am

Hi Davies! :)

Welcome aboard.
So sorry that you have ch... But I'm glad that you have found us!

You can find lots of info here about ch. I hope you have meds which work with you... :)

Best wishes & PFdays,
Sandie

Title: Re: Hi everyone!
Post by Davies on Feb 18^th, 2005, 4:06pm

Hi all thank you the sprays called imigran.I really hope it helps as i was in tears today again with the pain.Are you lot like that? [smiley=huh.gif] I have to keep busy too as sitting down just makes me feel worse.Spaek to you all soon Jo xx ::) ::)

Title: Re: Hi everyone!
Post by RichardN on Feb 20^th, 2005, 12:54am

So sorry you're in our boat, but you won't find better information anywhere about clusters. This board saved my life and now I can deal with our common "beast".
When I came here(2/02), I was having 6-8 ha's a day, KIP 5-9 (see KIP scale - six down on the left), and sometimes 3-5 a night. This, after a year of mis-diagnosis, non-working meds, and lots of tests (all normal of course). Here I found a "name-for-the-pain" and ways to battle CH.

Oxygen is my only abortive (see oxygen info - ten down on left) - I can't take triptans (like your nasal spray). The injections (imitrex) are preferred by those that can use triptans because they work within 5-10 minutes. I can abort a ch within minutes with 02 if caught early enough (daytime no problem - - kill him in minutes ) and within 10-15 min if he wakes me with a KIP 3-5. . . . and then back to sleep . . . it's wonderful and works for about 70% of us.

The above is for aborting an attack, but you will need to consult your doctor about a preventative (I use Verapamil, but there are many and many combinations . . .. sometimes it takes awhile to find the right one for you. The motto here is "nothing works for everyone, but something works for everyone"

Read up on melatonin, it's an over-the-counter supplement that helps reduce the number/intensity of nighttime hits . . . makes you kinda groggy in the morning, but many believe it is of benefit.

Identify your triggers . . . alchohol was one for me . . . . would trigger an attack within 20 min - - quit 2/02. Any particular fumes/chemicals trigger them for you?

Read, read, read . . . .ask questions on the boards or PM folks who you wish to communicate. Check the "where we live" link on the left below the yellow OUCH website . . . you'll find several from the UK.

GET SOME OXYGEN !

Be safe, PFDANs

Richard

Title: Re: Hi everyone!
Post by jasckorohod on Feb 20^th, 2005, 1:08am

Were you diagnosed as episodic or chronic? If episodic, you can expect to go through weeks or months or attacks followed by week, months or years before they return; if chronic, like me, you can expect several attacks a day of varying intensity with some short (a few days) remissions, then back to the attacks; it is a lifelong illness, very sorry that you have it.

Nasal spray Imitrix is not as effective as the injections, but they don't always work. Nasal spray Stadol is effective, but you'd need to see an anesthesiologist about that-I'd recommend that you get a referral to a pain clinic. Best of luck to you.

Title: Re: Hi everyone!
Post by don on Feb 20^th, 2005, 3:45pm

Quote:

I'd recommend that you get a referral to a pain clinic.

Why would she do that?

She seems to have found a Doc who prescribes the appropriate meds.

Title: Re: Hi everyone!
Post by LeLimey on Feb 20^th, 2005, 4:07pm

Hi Jo :)
How are you doing? Nice to meet you!!
I'm Helen and I live in Notts, are you in the Ringwood in Hants? I'll be down that way on the second May Bank Holiday so if you want to meet up give me a shout!
I've got 3 kids myself so I can relate to your struggles there.. it all seems a bit overwhelming, especially at first. Ther imigran sprays WILL help, its also available as injections which are even quicker at working.
Have you thought about trying O2 at all? I find it an absolute lifesaver.
Have you had a look at the OUCH UK site at all? Its worth pointing it out to your doc too.
If you want to IM me your phone number I'll happily give you a call
Look after yourself! Oh... and keep letting us know how you are getting on!
Helen

Title: Re: Hi everyone!
Post by Davies on Feb 20^th, 2005, 4:18pm

:'( Hi Helen nice to speak to you.I need info please can you help me? How do you get O2? is it on perscription? How long does it last? I used the nasel spray today.I have had these since Thursday.Last night it almost gave in but toady got worse at 4 pm.so I used the spray and my head dindt get better or worse.How do you fell as im getting cross with mine.It starts off very bad then goes off a bit so the I can cope dont go away compleatly.Then before I know it its back again so bad that Im crying.Is this the way you are? When I thought it was sinus pain I would take tablets and when it went off I was thinking that the tabltes were doing there job.Sorry I do go on...Would love to chat and get to know you and all about ch keep in touch Jo xxx

Title: Re: Hi everyone!
Post by LeLimey on Feb 20^th, 2005, 4:40pm

Check your IM's...
I've sent you my phone number so you can call if you want.. anytime os okay! I'm home now (duh!!) and I'll be home most of tomorrow.. a trip to asda and the school run apart!
If there is anything I can do to help I will do. You aren't alone :)

Title: Re: Hi everyone!
Post by Davies on Feb 20^th, 2005, 4:45pm

Sorry check my ims???? whats that? and how do i do it? Thank you xx

Title: Re: Hi everyone!
Post by Davies on Feb 20^th, 2005, 4:54pm

:'( Hi thank you got the massage in the end Joxx