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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Just to say Hi x x x
        
(Message started by: Night_Zombie on Jan 28^th, 2005, 5:17pm)

Title: Just to say Hi x x x
Post by Night_Zombie on Jan 28^th, 2005, 5:17pm

Thought I have been mad, ::)Thank god for all u lotxxx
I have been having what I now know is chronic clusters for abour 14 weeks or so, at first hadent a clue what was wrong had tests and more tests ,sent to one doc after another, until I was sent to see one guy who took one look at my eye and said cluster,gave me some pills and sent me home...did some reserch and went back to him and asked now will u lister to whats going on with my head.(Brave) no just very much needed.
after 4 weeks I had been on lots of pills my tummy was in bits but had to go on, steriods were the last straw.
Demanded oxygen which I now have but totally the wrong type, this I shall sort Monday first thing.Started on lithium so give that a try and pray for the best.HUGSto all XXX

Title: Re: Just to say Hi x x x
Post by Jonny on Jan 28^th, 2005, 5:26pm

on 01/28/05 at 17:17:15, Night_Zombie wrote:

I have been having what I now know is chronic clusters for abour 14 weeks or so

Not even a Doc can tell you that you have chronic clusters after only 14 weeks or so, it takes about a year to make that call.

Welcome aboard, read all that you can....sorry you have to be here.

.............................jonny

Title: Re: Just to say Hi x x x
Post by Night_Zombie on Jan 28^th, 2005, 5:37pm

Hi,
My doc is a total Ass with a very large (A) I cant belive much what comes out of his mouth,but he's all I got at moment the place I live I dont have much choice!!!I just have to learn all I can from all u lot and do the best I can. I realy dont have much of a clue, all I know is he told me, and that these headaches are I have are never going to stop 5/6 per day I just want to sleep (yawn)
XXX

Title: Re: Just to say Hi x x x
Post by Jonny on Jan 28^th, 2005, 8:07pm

Like I said....read, read, read.....there is no place on this planet with more info on CH like this site has.

The more you read the more you can fill your Doc in ;;D

Good luck...and bounce on over to the general board, thats where the family shoots the shit.

.............................................jonny

Title: Re: Just to say Hi x x x
Post by sandie99 on Jan 29^th, 2005, 5:01am

Welcome to CH. family!

So sorry that you have CH... :(

For your sake I wish that you're episodic... I'm a chronic. Jonny is right, it takes time before you know which one you are.

Best wishes & lots of PFdays,
Sandie

Title: Re: Just to say Hi x x x
Post by Bob_Johnson on Jan 29^th, 2005, 1:03pm

See my message in this section, under "Medicare".