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Title: Sayin' Hi Post by scarmig on Jan 27th, 2005, 12:24pm Since I broke my lurker status on the Convention thread I might as well say Hi to the general community. I've been lurking off and on for a couple of years near, ever since I was diagnosed with CH. I get 12 weekds of CH every 9 months. My last session ended January 1, 2005 was the first time I've ever lost awareness due to pain. Even though I was on Zomig, my wife found me curled in a corner screaming into a towel. She held me for 45 minutes while I fought it off, but I never even knew she was there until it broke. But the most horrible experience I've ever had was being home alone with my 2-year-old daughter and getting hit with a 6-7 (rocking and moaning) while she patted my shoulder, shakily repeating, "It's okay Daddy. It's okay." and trying to kiss my head to "make ouchies go away". Prior to finding a doctor I suffered with much milder cases for years thinking they were yearly sinus infections. Finally I paid attention to the pattern and got myself to a *real* doctor, a heachache specialist in Houston. He knew exactly what I had, and we've had pretty good luck finding abortives, even if preventatives seem to make me sick. I think that about covers the basics... duration, frequency, intensity, and personal anecdote. :) |
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Title: Re: Sayin' Hi Post by nani on Jan 27th, 2005, 1:01pm Welcome scarmig and sorry you're here. Since you've been lurking, you know all about what this place has to offer. Hope to meet you in Dallas! Pain free wishes, nani |
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