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New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Please help me !
(Message started by: outoftheblue on Jan 11th, 2005, 5:09pm)

Title: Please help me !
Post by outoftheblue on Jan 11th, 2005, 5:09pm
Hello everyone,

I don't know what type of headache I have.  As a teenager, I used to have migraines, that come once a month or once in two months, and lasted for  5 or 6 hours and with a night of sleep would go away.

About 7 months ago, I developed a CONSTANT headache. I have a nagging pain at my temple every second. Although it is bearable, I have lost any interest of doing anything, struggle to keep up with daily chores and work. I sometimes think I am going mad, crazy. Sometimes,  the pain is throbbing, and then dulls back to a constant nagging pain. I wake up with it and go to sleep with it. My blood tests and brain scan are normal. I am helpless and don't know what to do. Does anybody know what kind of headache I have? I am not sensitive to light, but my right side head, neck and shoulder pain like hell and this has lasted 7 months and still continues. I will do anything to ged rid of this. I empathize with all of you since the meaning of life is pointless when you have pain every second of your life. Please help!!! and thanks for all your suggestions.

Title: Re: Please help me !
Post by CC2004 on Jan 11th, 2005, 5:32pm
hi there - sorry about your pain  :( but you've come to the right place to get pointed in the right direction.  Take the quiz on the left - almost certainly you'll see you dont have clusters but there are links there to get you on your way to find the right help...
Wishing you all the best on your journey to find relief

take care & keep strong
CC  :)

Title: Re: Please help me !
Post by maureen on Jan 11th, 2005, 6:13pm
Sorry to hear about what your going through, it took 12 yrs before I was finally diagnosed. I just kept trying different dr until someone listened, and did alot of research myself, I no this probably is not what you want to hear but keep looking don't give up!

Title: Re: Please help me !
Post by Kris_in_SJ on Jan 11th, 2005, 8:03pm
If you haven't done so yet - run ... do not walk ... to the nearest neurologist who might specialize in headaches.  The fact that your pain is localized to one area and fairly constant means there's certainly a problem somewhere.

My first cluster episode was somewhat like you explain.  I had one bad HA and then a constant shadow that varied in intensity for about 10 weeks - about the length of time a normal cycle now runs for me.  But there's not doubt that 7 months is a long time!  My heart goes out to you.

Read all you can and find a doc who will listen to you.  You may not have clusters, but you've got something that needs threatment.

Hugs,

Kris

Title: Re: Please help me !
Post by nani on Jan 11th, 2005, 8:40pm
Welcome and I'm sorry you are having such a bad time. Yes, as Kris said,  please find a neurologist that specializes in headaches. You deserve to have some answers and some relief. I know that this is really wearing on you, but truly- you are stronger than any headache...Read all you can, learn all you can and I'm hoping you find some answers and some pain free time...nani

Title: Re: Please help me !
Post by outoftheblue on Jan 12th, 2005, 9:21am
Thanks for all your  suggestions.  I have been to a neurologist / headache specialist. I started taking maxalt and am on nortriptyline now. I am trying to exercise regularly, improve my diet etc. Nothing seems to have worked up until now. I will continue to research adn make trips to my headache specialist.

Title: Re: Please help me !
Post by RichardN on Jan 12th, 2005, 2:05pm


  Did you take the cluster quiz?  

  Hope it's not CH, but as has been said already, "this is the place to be" if it is.

  Be safe,

     PFDANs

        Richard

Title: Re: Please help me !
Post by Bob_Johnson on Jan 13th, 2005, 8:25am
A new headache pattern as you describe calls for an immediate evaluation. I would not wait weeks to see a headache specialist but get see a neurologist for a screening.

Title: Re: Please help me !
Post by TxBasslady on Jan 14th, 2005, 1:00am
If you haven't had an MRI.....then you probably should.

As Bob said......you need to see a neurologist!

A headache that never goes away could be an aneurysm.   I'm sure others can give more info on that.

See a Neuro a.s.a.p.

PF vibes,

Jean






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