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Title: New member Post by marengo on Nov 4th, 2004, 7:20am Hello folks Just a note to introduce myself as a new member having just discovered this site. My name is Bryan, i'm 47 years old & have been suffering with this nightmare on & off for over 30 years. Since 1995 my attacks have been coming almost bi-annually (give or take a couple of months) beginning slowly with one or two per evening for about a week then increasing in their ferocity till reaching a peak of several attacks, each lasting appx. 1.5 to 2.5 hours, per 24 hours before fading away over a period of 3-4 weeks. I've tried all sorts of medication (including some illegal ones!) and I find some of them work for a day or two before once again being overridden by this King of all Tortures. I'd just like to say how pleasing it is to read some of the comments on this site. Not that I'd inflict this agony on my worst enemy, you understand, but because AT LAST I've found someone who actually understands what I have to put up with. AND I don't have to discuss it face to face, which as you know can be extremely frustrating - enough to trigger an attack in fact. I know people mean well but I find it best to be left alone. Good job I'm single eh? All the Best Bryan |
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Title: Re: New member Post by Bob_Johnson on Nov 4th, 2004, 7:27am Glad you found us but don't overlook the OUCH group in England. Beyond them, you have a good web site to explore: WWW.MELDRUM.DEMON.CO.UK/migraine. At bottom of home page, look for FAQ on clusters: four sections of extensive material; strong on treatment options. |
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Title: Re: New member Post by nani on Nov 4th, 2004, 9:58am Welcome and I'm sorry you're here. We understand and are quite happy to be here for newbies. You'll find a lot of good information and support here. Hope you get some relief soon. |
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Title: Re: New member Post by becky8 on Nov 4th, 2004, 12:14pm Welcome, You'll laugh alot and probably shed a tear or two, but you will LEARN more than I can say. So read and learn. We are a family!! Can't always choose your family, right???? |
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Title: Re: New member Post by LeLimey on Nov 4th, 2004, 2:18pm Hi Bryan, Nice to meet you! Its such a relief finding this website isn't it? :) What meds are you currently using? Have you tried O2? I have only recently got that and for me its just a miracle.. can't sing its praises enough! Have a look at the OUCH UK website too as they have lots of advice for meds etc for us Brits and how to go about getting them. There is a GP section you can refer your doctor too and you can print stuff off from there to show them. There is a GP letter available from OUCH regarding prescribing of O2 if thats a problem so give them a ring or email them and go for it! Let us know how you get on.. there are a terrific bunch of people both on this website and the UK one so I'm really pleased you have found them/us! Helen (ex Londoner.. born in Westminster Hospital!) |
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