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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Newbie here but long time sufferer
        
(Message started by: Darlyc on Sep 3^rd, 2004, 9:41pm)

Title: Newbie here but long time sufferer
Post by Darlyc on Sep 3^rd, 2004, 9:41pm

Title: Re: Newbie here but long time sufferer
Post by synergy on Sep 4^th, 2004, 5:29am

Hi and welcome to the board - not sure what the St johns wart thing is but 02 is the best! It has saved my partner (as well as all the support from this board).

All i know about St johns wart is that is was the antibiotic that was used in the victorian age! Not sure about its effect on CH - cant see any though!

Title: Re: Newbie here but long time sufferer
Post by BobG on Sep 4^th, 2004, 7:04am

on 09/03/04 at 21:41:23, Darlyc wrote:

Hi, I have had cluster headaches for over 18 years. I was in remission for 3 years but last year they came back. Mine are always in September. I was a non-smoker for the 3 years they were gone but due to cumulative stress I am back a smoker and it is September and I am started to see some signs. Scared to death. I will have 8 weeks of them.

I really want to know about St. John's Wort. I feel depressed and stressed and usually that brings them on too. I'm a believer that stress helps to keep the attacks away. Don't know anything about the depressed part. I have a new neurologist appt in 2 weeks.
I am a strong believer in oxygen therapy. I have used it twice. It makes the attacks shorter.

Any advice about the St. John's Wort? I have seen reports that St John can maybe help with the depression but I'm not convinced. For the stress, I doubt it will do anything
I know I need to quit the cigarettes and quit them fast.Giving up the smokes is always a positive move. Cluster sufferers seem to smoke more than the general population. I am a smoker. I have smoked before, during and after attacks and it didn't seem to matter one way or the other for me. I smoked for at least 6 years before I had my first cluster.

Thanks guys for your input. :-/

There is a wealth of information under the buttons on the left side of your screen. Read it, print it, educate yourself so you can talk with authority to your neurologist.

I'm not a doctor and what I said above is only my opinion.

Title: Re: Newbie here but long time sufferer
Post by BlueMeanie on Sep 7^th, 2004, 7:27pm

Welcome Darlyc,

Yes, you should quit smoking. It's not gonna do squat to end your cycle, but it'll make you a healthier person.

Hope you cycle is a short one this time around.

Bob, who smokes like a chimney.

Title: Re: Newbie here but long time sufferer
Post by writer on Sep 20^th, 2004, 1:29pm

If I were you, I would wait until later to quit smoking. When in a cluster cycle, you're already under great stress, and trying to kick the habit will only add to it (a lot).

By the way, I was a smoker for many, many years and was only able to give it up 8 years ago. I know how hard it is, assuming you're a true addict, as I was.

Anyway, here are a hundred wishes for more pain-free times--

Writer

Title: Re: Newbie here but long time sufferer
Post by thebbz on Sep 22^nd, 2004, 7:40pm

Houdy and welcome,
St.johns wart, Hmmm Im into more traditional medical therapy. Study all the information on CH you can get your hands on . Hope for the best and I hate it for ya.
BB [smiley=wave.gif]