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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Cronic or episodic? I'm not sure!
        
(Message started by: fun bobbi on Aug 20^th, 2004, 2:38pm)

Title: Cronic or episodic? I'm not sure!
Post by fun bobbi on Aug 20^th, 2004, 2:38pm

I am a "Baby Clusterhead" so to speak. From what I've read about the two, I am still unclear as to where I fall (besides my floor on a regular basis).

I realize we are not doctors but y'all are definately more "experienced" than I am. So some input would be helpful.

My attacks started in January of this year.
I have been going steady since the with a 1 week remission and a 1 1/2 week remission, one in May and the other in July.
I have 8-12 a day ranging from KIP 6-9 with the occasional 5 or 10.
Other than through the night, I get my first one at 10:00-10:30am, the second at 1:30-2:00pm and then we're off.
They last anywhere from 5min-45min with occasional
1-2hour marathons.
From 1:30pm-midnight I get 7-11 attacks.
If you do the math and factor in the lengths.... YEAH.... that's right, usually about a 5-15 minute break. Whick leaves not room for imitrex or hospital visits for oxygen (none at home yet...coming today THANK GOD!!!).

What do y'all think cronic or episodic? Or is it too soon too really tell? With it only being 8months and not much of a pattern, it may be.

Title: Re: Cronic or episodic? I'm not sure!
Post by pubgirl on Aug 20^th, 2004, 3:09pm

Hi there fun bobbi (pasetd this from the other thread in case you don't see it)

Sounds like not funbobbi to me :( life sounds tough!

Doesn't appear that either applies, sounds more like either paroxysmal hemicrania or chronic paroxysmal hemicrania or a condition called Idiopathic stabbing headache

http://www.upstate.edu/neurology/haas/hpstab.htm

http://www.ninds.nih.gov/health_and_medical/disorders/paroxysmal_hemicrania.htm

Do you get a runny nose/eyes or other symptoms as well? If so, there is also a possibility of SUNCT syndrome, which is rarer.
Have you seen a neuro?

Most good neuros will do an indomethacin therapeutic trial at the outset for most patients whose headache duration may suggest one of these conditions as they are all indomethacin responsive, and in the case of PH/CPH there is a 100% success rate.

Has to be worth a few days of your life to try it as that is all it takes to work if it is going to work

Wendy

Title: Re: Cronic or episodic? I'm not sure!
Post by fun bobbi on Aug 20^th, 2004, 3:31pm

:-*NO MORE MESSAGES HERE PLEASE :-*

I boo-boo'ed
I cross posted!
MY BAD

Sorry all!
If u want to reply, it's posted under 'cluster headache specific'

SORRY again!!