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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> Help please!!!! 
        
(Message started by: E-Double on Jun 13th, 2004, 11:05pm)
Title: Help please!!!!
Post by E-Double on Jun 13th, 2004, 11:05pm
Going through a doozy right now!!!!!! :-[
Have my first Dr. appt. tomorrow but right now I'm in agony!
Advice please.
Pacing not helping. No heat! no steam! not pressure!
anything I can do without meds?????????

I have vicadins for my back but I don't want to pass out only to get an even worse rebound!

Thanks so much
Eric
Title: Re: Help please!!!!
Post by Superpain on Jun 14th, 2004, 1:06am
Goto the firestation and beg them to hook you up to O2 at at least 12-15 lpm.

Sorry your in pain.... :(
Title: Re: Help please!!!!
Post by 5-string on Jun 14th, 2004, 11:38pm
Hang in there Eric.
If you can,take Superpains advice.
...Mark..
Title: Re: Help please!!!!
Post by marfanoidus on Jun 16th, 2004, 10:46am
Before you go to your doc, make sure s/he is well versed in CURRENT CH therapies.
My regular physician wasn't and I would have suffered for weeks following his advice. Then I looked around and found a neuro that specializes in headaches, and I walked into their office and started getting a CH, but walked out of their office with it going away from an injection they gave me for it and haven't had one since.
Trust me - if they aren't versed in current treatments, don't waste your time.
Find someone who is familiar with the meds listed on this site.
What worked for me like a miracle straight from God was:
1) Prednisone;
2) Verapimil;
3) Ergotamine;
And find someone who will also prescribe 02 and an imitrex/Zomig nasal spray or injectibles.

Good luck to you, sorry you're in pain. Hang in there, help is out there - just don't allow yourself to be treated by someone who isn't up to date - it isn't worth the price you will pay.
marfanoidus
Title: Re: Help please!!!!
Post by Superpain on Jun 16th, 2004, 3:04pm

on 06/16/04 at 10:46:15, marfanoidus wrote:
Before you go to your doc, make sure s/he is well versed in CURRENT CH therapies.
My regular physician wasn't and I would have suffered for weeks following his advice. Then I looked around and found a neuro that specializes in headaches, and I walked into their office and started getting a CH, but walked out of their office with it going away from an injection they gave me for it and haven't had one since.
Trust me - if they aren't versed in current treatments, don't waste your time.
Find someone who is familiar with the meds listed on this site.
What worked for me like a miracle straight from God was:
1) Prednisone;
2) Verapimil;
3) Ergotamine;
And find someone who will also prescribe 02 and an imitrex/Zomig nasal spray or injectibles.

Good luck to you, sorry you're in pain. Hang in there, help is out there - just don't allow yourself to be treated by someone who isn't up to date - it isn't worth the price you will pay.
marfanoidus


Good advice... Just because they're a neuro doesn't mean they know squat about clusters.


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