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        New Message Board Archives >> 2004-2005 Getting to Know Ya Posts >> About Me
        
(Message started by: Jamiecolt on Jun 8^th, 2004, 4:32pm)

Title: About Me
Post by Jamiecolt on Jun 8^th, 2004, 4:32pm

I started to get cluster headaches when I was 16. My first cluster lasted a few days. I would then get them about every year until I was 22. Every year each cluster would get longer and longer. My last cluster lasted over a month and I was getting four or five headaches a day. I was in my senior year of college. I missed a month of school and a month of work. I commuted to school and drove over an hour each way. I would get them on the road. Nothing was harder than driving with a headache. Well since that loooooooooong episode, I have not had another cluster of them. I get one here and there, but that is about it. I am 27 now. I found that Imitrex is the only thing that works. I use the nasal spray. IMITREX IS THE BEST. Now, I usually only get them in the middle of the night. And I get up take my Initrex and it is gone within 10 minutes. I have learned to control them better than I ever have. I know if I get worked up the pain only intesifies. I try to keep myself calm. But it took alot of headaches to learn that. I used punch walls or do anything else that would cause pain somewhere else other than in my eye! Before I found Imitrex, nothing worked. The pain would be so unbearable it would make me sick. I would throw up and from all the exhaustion of the pain and being sick I would finally fall asleep. And when I woke up the pain in my eye was gone, but my head still hurt. That would usually last hours. I have been admitted to the emergency room several times because the pain would not go away. I have tried everything. Oxygen would do nothing for me. Imitrex saves me everytime. Thank god for it! I get scared that they will someday come back in clusters. This is pain I would not even wish on my worst enemy. No one I know suffers from this. I had no idea that this website existed. I wish I would have known about sooner. Although I am not as bad as I used to be with clusters, I would like to help people that are and give them any advice I can.

Title: Re: About Me
Post by pubgirl on Jun 8^th, 2004, 8:34pm

Welcome Jamie!

Good to have you aboard. Help away, there are always new people here who need help and advice

Wendy

Title: Re: About Me
Post by Cerberus on Jun 9^th, 2004, 11:50am

Greetings ...

Yes Imitrex is great..however it is NOT the only treatment available. Do you have any Preventative medications? Verapamil works for many, it takes a while to build up in your system and sometimes the side effects can be troublesome but the latter are FAR less of a problem than the CH pain. Stick around...live, learn and hopefully contribute to the betterment of life for someone in worse shape. :) ;)

Ramon

Title: Re: About Me
Post by echo on Jun 9^th, 2004, 4:59pm

Welcome to the neighborhood.

Title: Re: About Me
Post by BlueMeanie on Jun 10^th, 2004, 8:17pm

Welcome Jamie.

Glad you found this site. It is a great place for those of us who suffer with Clusters knowing you are not the only one in the world who gets them. As i'm sure you're finding out, everyone has different remedies for both preventing & aborting clusters. That's what makes this whole messed up headache thing so difficult to deal with. In my case, I agree with you. Imitrex is the ONLY thing that works for me most times. O2 & Amerge are a 50/50 chance of it actually doing any good. I've never found a prevent that works. You may want to try getting a script for 02 as it will a least reduce the amount of Imitrex you take.

Hope you get a super long pain free time.

Title: Re: About Me
Post by TxBasslady on Jun 11^th, 2004, 12:51am

Welcome aboard, Jamie

Stay in touch.....let us know how you're doing.

PF vibes,

Jean

Title: Re: About Me
Post by UN_SOLVED on Jun 11^th, 2004, 12:58am

on 06/08/04 at 16:32:32, Jamiecolt wrote:

IMITREX IS THE BEST.

[smiley=sayyes.gif]
Welcome

Unsolved

Title: Re: About Me
Post by Gator on Jun 12^th, 2004, 4:21am

Welcome aboard. I never used Imitrex. I got hit hard during my first visit to the neuro (what a great stroke of luck) and he had some Zomig NS samples. He gave me one right then and there and it worked like a charm. So I use Zomig NS. From what I understand about insurance compaines and trex, I lucked out on the Zomig.

I used to say that about never wishing this on my worst enemy. Now there is an ever growing list of people I would inflict gladly.

Gator